Jump to content

MelanieLR

Members
  • Posts

    245
  • Joined

  • Last visited

Posts posted by MelanieLR

  1. Dear Laurie,

    Good to hear from you. I'll be praying for those good scan results. Keep us posted when you can. I really think I'd go insane (or more so) if I lost my little puter! I hope your Mom has a great visit with you. Those can be such precious times.

    Bod Bless.

    Prayers & hugs,

    Melanie

  2. Welcome Joyce,

    As always, so sorry for your need to be here but you just won't find a better group of people to support, comfort & attempt to inform whenever possible. May God bless you & your Mom on this journey & please let me know If I can be of help at any time.

    Prayers & hugs,

    Melanie

  3. Hi,

    My Mom had WBR, & I have had Gamma Knife. I was under the impression that it was standard to give the steroids to keep the brain from swelling & to alleviate the side effects. Both of the procedures in my experience were preceeded by the steroids & were tapered back after the treatments were completed.

    Good luck & my prayers are with you.

    Melanie

  4. Hi Patkid,

    As one who has traveled this journey from both sides of the street, I hope I can be of a little help. I remember so well when Mom was sick & there were days when I really didn't feel up to taking care of her. I didn't know that I had the same beast. There were times when I would be so angry at myself thinking "Here is my brave & courageous Mother in the battle of a lifetime & I just feel a little icky of tired & just don't have the guts to do this!" YOU MUST LISTEN TO YOURSELF! Here all that time I thought I was just having a pity party but that wasn't all it was.

    I pray for you that it's just nothing - being worn out or whatever but please - DO NOT IGNORE IT! The best that can happen is to have your fears alleviated. The worst is that it would be found sooner. Sounds sensible, right?

    Please take care of yourself. You are no good to anyone with yourself all in a dither so take the time to ease your soul.

    My prayers are with you,

    Melanie

  5. I guess I'll give it a go:

    1.) Life - so precious!

    2.) My husband who loves me so very much, even when I wake up cranky!

    3.) My canaries who seem to be contemplating parenthood at the moment - that would be so sweet!

    4.) All the beautiful people on this site who pray for me daily. Thanks!

    5.) A new pair of shoes that actually feel & look good on my bloated feet!

    Gee, this isn't so hard after all!

    Hugs & prayers,

    Melanie

  6. Hi Beth,

    So sorry for your steroid blow up. God knows I can relate! I sew for my sanity (or what little of it I've hung onto) & you should see the huge difference in sizes of the patterns I own. Half of the time I'm no where near done with the outfit before I've changed sizes. I've been off, on, off, on... so blasted many times, I can't keep up with it. I've run back & forth between size 12 & size 22 through this mess. If it weren't for the sewing though, I'd be totally nude! It hits my face the hardest but it really has hit me everywhere. When I'm on the things, I'm a ravenous beast! Well, I think me & all my chins are going to waddle into the kitchen for a refill!

    Hugs & prayers,

    Melanie

  7. Hi Lisa,

    So sorry for your Mom's troubles. My prayers are with you both for a speedy recouvery & quick news. I know how bad it is just waiting around for the blasted results.

    Hugs & prayers,

    Melanie

  8. Hi Bill,

    Sorry I'm so late posting. Welcome to our site. Sorry too for your need to be here. I want you to know that you are among some of the most outstanding people I know. This site helps keep the sanity but as Ry said, "who said we keep it?" As always, the waiting is truly the worst part. Just keep your chin up, or as in my case with all the steroids, I work on keeping all my chins up.

    May God bless & you are in my prayers,

    Melanie

  9. Hi Pam,

    Welcome to our group. I'm incredibly sorry you need to be here but you're really in a great place. In my case, they found the mets before they found the LC so I'm sorry I don't have great input for you there.

    The biggie is to keep up the postiive outlook. It's amazing the advances that have been made in treatment of this beastie. Just let your sister guide you on your juorney. I know often, my husband just so allows this to overwhelm him. I want him to have peace & enjoyment during the time God allows us & sometimes he just gets so stressed that, I wish he could forget about it for a little while. I know firsthand how difficult it is for the caretaker as well since I nursed my Mom & Dad through it. Believe it or not (at least in my case) it is so much easier to be the one going through it than to be the caretaker.

    May God bless you & know that my prayers are with you.

    Melanie

  10. I guess I should start doing this - especially today when I really don't have the best attitude going (not sure what my problem is today, just grumpy) - huh?

    1.) I finished sewing my summer robe (just in time for more snow)!

    2.) I won the e-bay auction for a beautiful Sari I fell in love with! Got it for a great price!

    3.) I'm still sucking wind!

    4.) Got a wonderful e-mail from a cousin I lost touch with for a little while!

    5.) My kitties are just having a dickens day & they are so precious! They really keep me laughing!

    Hugs & prayers,

    Melanie

  11. Dear Ginny,

    Thanks for the up-date. Gee, I really hate this d^$* disease. My prayers are with Rosemary & thanking God for Fred's peace.

    Hugs & prayers,

    Melanie

  12. Hi There,

    www.tlccatalog.org is excellent. I have a super huge head & they have accomidated me well with sizing assistance. They are also among the least expensive yet better quality products I've found. Everything I've ordered from them has been quite comfy but I did have a rather tender head for some time & highly recommend the lovies for a while. Also, my head & neck were getting quite cold at night & they were great for sleeping in.

    After 9 months of "bald is beautiful, I've ordered my first wig from them too. I've had nothing but compliments on it.

    Good luck in your quest.

    God bless,

    Melanie

  13. Oh Addie,

    I'm sorry. As if there isn't enough crud to deal with! This kind of reminds me of the old "Rosanne Roseannadanna" skits from Saturday Night Live, "if it's not one thing, it's always another" (I think I just aged myself). Anyway, good luck with the clean-up.

    God bless,

    Melanie

  14. Dear Mrs Manny,

    This is the most wonderous thing I've ever seen! God knows we see miraculous things here but this tops them all! I am so elated for you, I'm in tears. Now for the poopie part, yeah, you had to know it was coming... I still think I would seriously consider one more opinion. Heaven forbid my skepticism but I'm sure the better safe than sorry motto might apply here.

    May God bless you & your family,

    Hugs & prayers,

    Melanie

  15. Back in the end of May or beginning of June, they gave me 2 weeks w/NSCLS. I'm still kickin & doing a pretty darned good job of it most of the time! I'm still rather active & enjoy life most of the time. I'm on the way out to dinner with my Hubby now & I gotta say myself, I look downright ravishing!!! You'd be surprised what they can do for you these days.

    Hang in there sweetie.

    Prayers, good thoughts & a positive outlook really do go a long way!

    Melanie

  16. Dear Lori,

    I am so sorry for your loss. I shared that moment with my Mother when she passed & even though it's now been a year & 1/2, I will always remember & treasure it as if it had happened moments ago. I would have never believed that there could be a bond stronger than the one we already shared but there is. I felt myself lifted up with her as I placed her in the tender loving care of the Lord & the loved ones who had passed before her.

    For several days prior to her passing, she had been speaking to many of our dear departed loved ones & that truly helped me to see how beautiful her LIFE was about to get. Going through that experience with her has also given me such peace in regards to my own eventual passing. This is a gift that I believe that she & God arranged for me to share as they were the only ones who knew at the time to know that I was already in the midst of my own battle with the beast. I received my dx 9 months later & thanks to that incredible moment we shared, I don't cry for my passing but for those who will be left behind.

    God bless,

    Melanie

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.