[Who has Small Cell Lung Cancer?]

Hi Steve,

My husband has small cell extensive.  Dignosed November 2019.  I don't get on here too  often, but I try to comment when I do.

Just me

[Small Cell Diagnosis]

Diane,

I am so sorry ... . I  wish I could hug you, and help you cry.  He fought a good fight.

Prayers for healing.

Cindy

[Small Cell Diagnosis]

Hi Diane,

Sorry to hear about brain mets.  This disease is mean.Hope the steroids and radiation help.

We aren't scheduled for a MRI in the near future.  We will have a scan after 2 more cycles of the irinotecan.  Although, hubby is not tolerating it well and moral is low.  

We are in Massachusetts, our stay at home order has been extended to May 14th.  The silver lining is more time together.

just me

[Small Cell Diagnosis]

Quote

Hi Steve,

Diane is correct my husband was on the same treatment plan as her husband.  The immunotherapy didn't work for us, although I have heard some people have great success. We are no trying irinrotecan. I haven't been able to find alot of information on it but I will continue to do research.  

I am sorry you are in this journey, prayers for you and your wife.

just me

 

[Small Cell Diagnosis]

Hi Diane,

I am not sure how to update the treatment plan the way you do.  But latest scans April 9th, show disease progression. Things are changing,  in the midst of this Corona virus , we received the news over the phone.  My husband will recieve a new chemo treatment ironotecan.  Once a week for three weeks and a repeat scan.  Trying to remain positive and enjoy the day.

just me

 

Diane

I will add a signature to my profile,  Thank you for the information.

I was wondering why the Dr. chose Irinotecan over Topetcan, but I wasn't in the room and  it was difficult to hear due to the masks and the telemed connection . I will be following your huband's reports as well.  

[Small Cell Diagnosis]

Hi Diane,

I am not sure how to update the treatment plan the way you do.  But latest scans April 9th, show disease progression. Things are changing,  in the midst of this Corona virus , we received the news over the phone.  My husband will recieve a new chemo treatment ironotecan.  Once a week for three weeks and a repeat scan.  Trying to remain positive and enjoy the day.

just me

[Small Cell Diagnosis]

Happy New Year,

Diane, we seem to be on the same treatment plan.  I wondered about side effects from the Neulasta. He seemed weaker after receiving the medicine than the previous treatment cycle.  We finished third cycle, will start the fourth on Jan 16th.  I am not sure what the next step will be.  My husband is officially retiring, he ran his own  landscape construction company  for the past 35 years, and just doesn't have the energy to continue.  But at 66 he deserves a rest. I am also retired.

On a positive note, he seems to have his appetite back.

Justme

[Small Cell Diagnosis]

Hi Diane,

Sorry I did not respond sooner.  I forgot to book mark this page.  My husband's journey is very similar to your husband's.  We have some mets in the liver, lymph nods and bones. Our cocktail is the same as the one you are being treated.  We had quiet holidays, the white cells dropped extremely low before Thanksgiving so we were isolated for a week. The second round they gave us the Neulasta on his arm.  Which seemed to help, but he was fatigued much longer.   We were back on the 26 of Dec. for more scans and a third round if the previous treatment was effective.  The mass is shrinking and so is the lesion on his liver. Terrific news for us. Even the Dr. was smiling. We just finished round 3. Today the  nurse told us about the Claritin.  I will give it to him in the morning. 

We also had problems with constipation and was told to use Miralax and a stool softener.  

 

My husband is 65.  We have 2 grown children.  He was a smoker in the past, therefore we were receiving scans every six month for scarring and a stable nodule. This cancer was not there during the last scan less than six month prior. It is a scary, aggressive cancer, and I empathize with you.

Just Me

[Small Cell Diagnosis]

My husband also was diagnosed this week with small cell, extensive.  It is very scary. He seems to be declining so fast.  We are wondering if he will survive treatment. There is comfort knowing others have made it through.

 

update April 10th,, 4 rounds carboplatin, etoposide and tecentriq, showed a good amount of shrinkage. The plan was to continue with just the immunotherapy which did not work.

Beginning a  new second line of chemo.