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Rose Kaiser

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  1. Like
    Rose Kaiser reacted to LouT in NED Is a Nice Way To Start the Day   
    I had my first annual CT Scan yesterday (lobectomy was 5/2/19) and although I was concerned about the longer interval between scans all worked out well.  The scan result reads "stable with no evidence of recurrant or malignant neoplasm".  I have my meeting with the oncologist on Wednesday and can focus on the future. Scanziety is real, but some great folks in my life kept my feet on the ground and my head on my shoulders while God did the rest.  I'm quite blessed.

    Lou
  2. Like
    Rose Kaiser reacted to DFK in Durvalumab   
    Tomm-Excellent on #23. The countdown is on and your finish line is just around the corner. Opal and I have crossed the finish line with NED.....and speaking for myself.....the fatigue is gone and the wonkyness of the Durvalumab coursing thru my veins are gone. My stamina and endurance have improved and I find it mentally and emotionally refreshing to not have to plan another visit for another infusion. In a lot of ways, I feel I have gained back the normality in my life.
    Now with the Covid-19 on our heels, another annoyance to contend with but being NED makes it just that, another annoyance like a pesky mosquito. Due diligence will get us thru this "crisis", the same due diligence, intelligence and fortitude that got us thru Durvalumab. 
    Today I officially cancelled our trip to the Pacific Northwest. We did good as no losses were incurred except for a teeny tiny smidgen of disappointment for our celebratory end of treatment indulgence. No biggie, there will be time later for celebration.
    Grahame-You are on your way, though at the beginning of your journey. I hope that those of us who have traveled your road provides you with inspiration to keep putting one foot in front of the other, and to use this forum to support you, educate you and get you to the finish line. With your background, you are fortunate to have a huge knowledge base to address your symptoms. I think Tomm said it best, a lot of the annoyances (side effects) was and is part of the price in (hopefully) extending our overall survival and halting progression. Hope is omnipresent.
    Take Care, Blessings, DFK
    Did you hear about the man who fell in an upholstery factory? He is said to be fully recovered.
  3. Like
    Rose Kaiser reacted to Tomm in Durvalumab   
    Babs ... turmor scar tissue and no signs of cancer cells is great news. I am NED and the scar tissue still shows on my CT. It is advised that we all get our thyroid checked, it was the cause of my fatigue. I was given levothyroxine and in about 6 weeks fatigue much less. Have your husband take notes so you can read them at home, it helped me.
    "When tempted to fight fire with fire, always remember… The fire department usually uses water."
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