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Tomm

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Tomm last won the day on April 7 2020

Tomm had the most liked content!

Profile Information

  • City
    Junction City
  • US State (if applicable)
    OREGON
  • Country
    Unite
  • Status
    Lung cancer patient/survivor
  • Interests
    garden

Recent Profile Visitors

1,388 profile views
  1. Roseann... good to hear you are still NED!! I quite smoking by changing to Pot ... Maybe try some CBD weed and use a vaporizer, it is safer for your lungs. What do you call a boomerang that won’t come back? A stick.
  2. RonH... Great news!! You earned you Duva membership ... Q: What travels all around the world but stays in one corner? A: A postage stamp!
  3. This was the 1st time I got to wait 6 months to get my CT and results are NED. I get to wait 6 months again. My 6 year cancerversary is in two days. This is 2 1/2 years after Durva treatment is finished. 2 jokes bonus Q: Why don’t oysters share their pearls? A: Because they’re shellfish! Q: What kind of candy do you get at the airport? A: Plane chocolate!
  4. Barb..I remember when we started at the same time just a week apart great news to hear you are still NED!! In what state does the Willamette River flow?… Liquid
  5. Barb and Rower I'm on the same train your two are. Scan this friday, 2 1/2 years since last durva... Scanxiety time until results are known... What did the beach say to the tide when it came in? Long time, no sea.
  6. Kelvin ... My only side effect was fatigue, when Durva was new my oncologist was not checking my thyroid and my tsh went up to 139, I needed a cane in my house. When he did check it I was given Levothyroxine and that fixed it. It turns out Durva effects most peoples thyroid and the doctors now know this. No others side effects, I ate well, slept well and my hair grew fast. Joke Q: How are people during a heat wave like clothes? A: Their sweaters.
  7. Hi Kelvin... Here is my story that I posted last September. After all the tests I was diagnosed with Stage 3a lung cancer in September 2016. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo , I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and lucky me after that I got to take Durva. I have been in remission for 3 1/2 years now. When I got my Durvalumab infusions I called it my picnic day and brought my ipad, earbuds and a nice lunch with a chocolate bar. I try to only eat Organic food. A joke... How do we know that the ocean is friendly? It waves!
  8. Hi Kelvin.. The good news is your mother is getting the 1st new lung cancer treatment in decades. Before Durva the only treatment after Chemo/Radiation was wait and see (when the cancer returns). It came out of clinic trials in May 2017 and is given the best chance for long-term survival in a curative intent setting. I have been cancer free for over two years since my treatment. Don't look at old information about survival rates as most are from 5+ years ago. Be here now. Eat healthy and know that it works for most people. Ask or vent anything here. best wishes for you mom and now a joke... “Thoughts are great, but Ativan and pot are better.”
  9. Hello Fellow Travelers on the Cancer Train. I was treated for stage 3 lung cancer 5 years ago and one of the targets was next to my esophagi's. The radiologist was sure I would get a sore throat, have trouble eating and swallowing. My naturopathic oncologist told me to eat a spoon full of Manuka honey on the way to radiation, a spoonful after treatment and one before bed. I had no sore throat, no trouble swallowing and no trouble eating (didn't loose an ounce). The radiologist was very surprised. This link is from a clinical trial from NIH. https://clinicaltrials.gov/ct2/show/NCT01262560 The honey only comes from New Zeland and comes in different strengths but any honey will help. I hope this is some help to people on their journey. Manuka honey may prevent or reduce esophagitis-related pain caused by chemotherapy and radiation therapy. What do you call a snowman that tells tall tales? A snow-fake! Why did the girl keep her trumpet out in the snow? She liked playing cool jazz. enjoy the season, Tomm
  10. Hi Ron... good to hear your doing well with ALK+, I'm doing well too and hope the rest of the club is staying safe I'm so excited—it's time to take out the garbage. What should I wear? So many coronavirus jokes out there, it's a pundemic. The only jokes allowed during the coronavirus are inside jokes.
  11. Hello All... I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions. How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L. Get your Pd-L1 checked too. I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and lucky me after that I got to take Durva. I have been in remission for 3 years now. I want people to know there is hope and Durva does work for many. Stay safe. old joke ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab
  12. SteveD.. more on PDL-1 PDL1 (Immunotherapy) Tests What is a PDL1 test? This test measures the amount of PDL1 on cancer cells. PDL1 is a protein that helps keep immune cells from attacking nonharmful cells in the body. Normally, the immune system fights foreign substances like viruses and bacteria, and not your own healthy cells. Some cancer cells have high amounts of PDL1. This allows the cancer cells to "trick" the immune system, and avoid being attacked as foreign, harmful substances. If your cancer cells have a high amount of PDL1, you may benefit from a treatment called immunotherapy. Immunotherapy is a therapy that boosts your immune system to help it recognize and fight cancer cells. Immunotherapy has been shown to be very effective in treating certain types of cancers. It also tends to have fewer side effects than other cancer therapies. Other names: programmed death-ligand 1, PD-LI, PDL-1 by immunohistochemistry (IHC) What is it used for? PDL1 testing is used to find out if you have a cancer that may benefit from immunotherapy here is the link https://medlineplus.gov/lab-tests/pdl1-immunotherapy-tests/ and a joke... Atheism is a non-prophet organization
  13. SteveD sorry to hear about your bad reactions... I suggest you try CBD oil in a tincture, it's good for a lot of your problems. Do a search about it and talk to your doctors 1st. Most people on this Forum that had to stop Durva because of side effect did start again after a pause. Do you know your PDL-1? good luck on your journey
  14. Lindsay.. real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer after Durva is done. So real life after is great, your future is Bright. I got results from my CT last week... still NED Good news! There are well over 100 labs in America working on developing a vaccine. Just wait til they get the German shepherds involved! .
  15. Roseann, my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in. Why did the chicken cross the road? Because the chicken behind it didn’t know how to socially distance properly.
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