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Tomm last won the day on April 7 2020

Tomm had the most liked content!

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    Junction City
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    Lung cancer patient/survivor
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  1. Hello All... I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions. How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L. Get your Pd-L1 checked too. I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and lucky me after that I got to take Durva. I have been in remission for 3 years now. I want people to know there is hope and Durva does work for many. Stay safe. old joke ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab
  2. SteveD.. more on PDL-1 PDL1 (Immunotherapy) Tests What is a PDL1 test? This test measures the amount of PDL1 on cancer cells. PDL1 is a protein that helps keep immune cells from attacking nonharmful cells in the body. Normally, the immune system fights foreign substances like viruses and bacteria, and not your own healthy cells. Some cancer cells have high amounts of PDL1. This allows the cancer cells to "trick" the immune system, and avoid being attacked as foreign, harmful substances. If your cancer cells have a high amount of PDL1, you may benefit from a treatment called immunotherapy. Immunotherapy is a therapy that boosts your immune system to help it recognize and fight cancer cells. Immunotherapy has been shown to be very effective in treating certain types of cancers. It also tends to have fewer side effects than other cancer therapies. Other names: programmed death-ligand 1, PD-LI, PDL-1 by immunohistochemistry (IHC) What is it used for? PDL1 testing is used to find out if you have a cancer that may benefit from immunotherapy here is the link https://medlineplus.gov/lab-tests/pdl1-immunotherapy-tests/ and a joke... Atheism is a non-prophet organization
  3. SteveD sorry to hear about your bad reactions... I suggest you try CBD oil in a tincture, it's good for a lot of your problems. Do a search about it and talk to your doctors 1st. Most people on this Forum that had to stop Durva because of side effect did start again after a pause. Do you know your PDL-1? good luck on your journey
  4. Lindsay.. real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer after Durva is done. So real life after is great, your future is Bright. I got results from my CT last week... still NED Good news! There are well over 100 labs in America working on developing a vaccine. Just wait til they get the German shepherds involved! .
  5. Roseann, my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in. Why did the chicken cross the road? Because the chicken behind it didn’t know how to socially distance properly.
  6. Roseann congratulations on joining the Done with Duva club. A year of your life is a big investment and it appears it paid off for you. A link on Naltrexone .. https://khn.org/news/naltrexone-addiction-medication-chronic-pain-treatment-small-doses/ and this link is about it's use for cancer treatment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126779/ I get it from my naturopathic oncologist. I was once bitten by a rabid female deer. Now, every time there's a full moon, I turn into a weredoe.
  7. Barb .. I hope the results show you are cancer free down to the cell level. Good news! There are well over 100 labs in America working on developing a vaccine. Just wait til they get the German shepherds involved!
  8. Barb Great news! When I got my news last week I treated myself to a piece of chocolate cheese cake... give your self a treat for the year you invested in Durva. Grahame .. enjoy the wedding and the cake that goes with it . That's really fast good news on you progress. Lindsay ...Hope you get great CT result .. #10 already ..your on your way thanks everyone for the good wishes ..I hope you all enjoy the season Q: What do you get when you combine an elephant with a fish? A: Swimming trunks! Q: Why don’t oysters share their pearls? A: Because they’re shellfish!
  9. I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. What do you call seagulls that live near the bay? Bagels.
  10. Hi Barb.. I have never gotten a Pet scan and when my last Durva. treatment was cancelled because of Covid in March so was my CT to see if I was still NED. Today I finally got a CT and a port flush. My thinking was (is) if no one says I have cancer then I don't. Roseann ..Good to hear your almost in the Done with Durva club Summer is here, so I'm moving all of my bad habits outside.
  11. Hello Fellow Durvas and Done with Durvas club members ... I'm in the Done with Durva club. My update: My last infusion that I should have gotten in April was canceled, my CT that was due in April was canceled, my port take out was canceled, my port flush was canceled and all doctors visits canceled. I just got a date for my big reveal CT on July 1st. The last CT in late January showed I am NED and I have gone with the "if no one says you have cancer, you don't have it" I like that feeling and now I have scan scanxiety again. My side effects started around #4 and it was just fatigue.. turned out my thyroid was not being checked and when they did I ended up at 139.. normal in 3.5-4.5. I got meds to fix it and in a month or so I was down to 3.6. I did not gain any weight during the entire treatment. Now that treatment is over I have itching from my knees down to my ankle at night. We are all different... take care all..enjoy the season What did the little corn say to the mama corn? Where is pop corn? How do we know that the ocean is friendly? It waves!
  12. Lisa66 enjoy the greatest new lung cancer drug with curative intent this is true at my house
  13. Ron ..this new information sounds good to me, my last CT stills shows post treatment things in my lung. When you wake up in the morning you know your still here and you have a large team watching after you. Barb congratulations on making it to #26. I'm starting to feel much more energy now that I'm done I hope all the Durva club has a great spring and nice gardens Stay Safe Do you want to hear two short jokes and a long joke? Joke, joke, jooooooooooooke.
  14. Barb ..nice to hear your almost ready to join the I'm Done with Durva club. I get out of my house but not out of my car. These are the places that I ordered and paid on the phone and when I get there I call and they put it in the back of my car. Garden store, hardware store, pizza shop and grocery..my dog enjoys ride and I like the no traffic. Watch a doctor demonstrate how to safely bring groceries home during the coronavirus crisis. enjoy spring everyone A photon is going through airport security. The TSA agent asks if he has any luggage. The photon says, "No, I'm traveling light."
  15. Barb... did you get your thursday infusion?
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