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Barb1260 last won the day on February 8 2020

Barb1260 had the most liked content!

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    United States
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    Lung cancer patient/survivor

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  1. Just wanted to say hi to all. Michelle I hope your family got through the storms ok. I’m just living life. Hope everyone is doing well.
  2. Exactly one year ago I had my 26th and last Imfinzi infusion. So far so good!!
  3. I agree with LexieCat. I was told not to take anything except a multivitamin and if anything else to get oncologist approval first.
  4. Opal, I didn’t know the joint and muscle pain could come back so long after treatment. Now I’m wondering if the sudden muscle spasms in my thighs are related. I’m sorry you’re dealing with it. I’m probably going to wait a long time to get the vaccine, the side effects scare me.
  5. I still don’t know what to do about this. So many different opinions from my team.
  6. Opal. I will share what I find. I’m not in a rush to get a brand new vaccine
  7. Opal-I’ve been told to get it by my oncologist but my pulmonologist said he doesn’t know because I’ve had anaphylaxis and have developed new allergies. I spoke to an immunologist who said not to get phizer or moderna, wait for the J&J or AZ. I’m still investigating
  8. https://www.jto.org/article/S1556-0864(21)00022-8/fulltext?fbclid=IwAR2DlB6INSmAvksYzf94yS-txd8wGG_1jjI_fWZiWi9Tl3-Np1tcmEUUtKU Good news. Hope the link works!
  9. Hey all Jerseyans-my brother and brother in law in NJ were both complaining today about the vaccine issues. I have no idea what is going on here In GA as 2 docs already said they can’t say for sure if I should get it because of my 3 occasions of anaphylaxis. Seeing the oncologist Thursday so I will get her opinion. Never was in a rush to get it. To me it’s scary.
  10. Barb1260


    You are your own advocate. If something doesn’t feel right, you have every right to take charge. Not sure I would be putting up with that kind of attitude.
  11. Barb1260


    I started treatment a month after diagnosis. Tell your doc to get the CT moved up. Are you in the US?
  12. The fatigue was not every da. Maybe the day after and the following. My hair grew back while on Imfinzi. My PET results showed no cancer anywhere so I’m grateful I had the option. Happy thanksgiving
  13. Taking the family out to dinner to celebrate Tom.
  14. Michelle I’m doing the retail therapy happy dance today
  15. PET SCAN-impression - no hyper metabolic activity in neck , chest, abdomen or pelvis nor skeletal. What does this note mean-The region of pulmonary consolidation upper right lobe minimal SUV of 2.0. This is the location of the original tumor. So I guess it’s not dead? It’s confusing that it says both. It also doesn’t give a measurement
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