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Kathie

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  1. Sad
    Kathie got a reaction from G.A.M. in Long Term Lung Cancer Survivorship....It's Lonely Out Here!   
    I have viral cardiomyopathy, a severe heart condition. Went in hospital for a scan. Heart has gotten worse but they found a mass in my lung.   Lung cancer.  For two months they checked everything in my body. I have cysts on my liver and pancreas which I have to have checked out every 6 months. So after 2 months of stressing the finally removed the cancerous part of my lung! The immediate relief was amazing but then I started working it would come back. My doc said I most likely have PTSD now from the shock of it all. I didn't suffer with it until after the surgery. Now I have pain where the chest tube went in. Sore ribs and nerves could last a year.
    Like you there is survivors guilt, most lung patients don't survive and mine was there one minute and gone the next. I have a 15percent chance of it returning in the next 5 years then it decreases. So I'll stress for 5 years because that 15 percent might as well be 99.9 percent.  It's hard to explain to people but I see you understand. Besides a bad heart I also have Intercostal Neuropathy and fibromyalgia. So I am in pain a lot. Then I got cancer on top of it all. For those 4 months I was a total wreck, had a breakdown. I don't know how you have done it for so long 
    God Bless You,
    Kathie
     
  2. Like
    Kathie got a reaction from Tom Galli in Long Term Lung Cancer Survivorship....It's Lonely Out Here!   
    I have viral cardiomyopathy, a severe heart condition. Went in hospital for a scan. Heart has gotten worse but they found a mass in my lung.   Lung cancer.  For two months they checked everything in my body. I have cysts on my liver and pancreas which I have to have checked out every 6 months. So after 2 months of stressing the finally removed the cancerous part of my lung! The immediate relief was amazing but then I started working it would come back. My doc said I most likely have PTSD now from the shock of it all. I didn't suffer with it until after the surgery. Now I have pain where the chest tube went in. Sore ribs and nerves could last a year.
    Like you there is survivors guilt, most lung patients don't survive and mine was there one minute and gone the next. I have a 15percent chance of it returning in the next 5 years then it decreases. So I'll stress for 5 years because that 15 percent might as well be 99.9 percent.  It's hard to explain to people but I see you understand. Besides a bad heart I also have Intercostal Neuropathy and fibromyalgia. So I am in pain a lot. Then I got cancer on top of it all. For those 4 months I was a total wreck, had a breakdown. I don't know how you have done it for so long 
    God Bless You,
    Kathie
     
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