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Justin1970

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Status Updates posted by Justin1970

  1. Hi Tom I'm really struggling to come to terms with the latest results of brain mets I keep reading online some great survivors stories but my oncologist team seem to be on the side of me me not getting much time at all, I would like to change oncologists but there is a waiting period and treatment would be be put on hold I really am at a crossroads and not sure what to do in some ways I just wish it was over now, sorry for depressing message 

    Kind regards Justin 

    1. Tom Galli

      Tom Galli

      Sorry to learn about the delay on switching doctors. Not sure about UK medical system but In US switching doctors for significant disease is encouraged. Remember, medicine is an applied science and it application is the physician deciding what to do and how to do it. 
      Have you had SBRT already? I can’t recall. If so, I know a number who’ve had it 3 times with no I’ll effects. But brain mets are tricky. 
      My view, there are 2 reasons for stopping treatment: low probability of success or tired of the side effects battering. In my 4th line treatment, both applied to me. Then I saw a radiation oncologist who had a different approach. Might this be your course?

      Regards,

      Tom

    2. Justin1970

      Justin1970

      I haven't started any of the brain mets treatment yet, by the sound of things they want to get on with it because they are only small one 1.3cm the other is 2mm I think the oncology team are hoping to get it all under control but obviously don't want to commit hence all the different prognosis from each one I talk to, one says people can live years with it another says only months, but all have said I haven't been told to go home and get comfortable with palliative care,  when you had your cancer did you have brain mets aswell 

      Regards Justin 

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