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Jyoung20

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Posts posted by Jyoung20

    Questions, need your input and help PLEASE!!!! UPDATED

    in GENERAL

    Posted

    Hi Chris,

    After my treatment I deal with the same issues you speak of..I could not eat and could not drink enough water to keep hydrated. My problem was largely due to the radiation burns.

    I do know that without the feeding tube, I would not have survived!!!!! I would have died. You can not live if you are not eating and drinking. Your body has to have nourishment. I had the tube for two months and it was a godsend. I immediately felt felt and started to get some energy back.

    It is recommended that you continue to eat while you have the tube and I did this. The problem comes in with losing your muscle memory with swallowing.

    If I had to have a feeding tube again I would get another.

    I hope this helps!!

    God Bless!!

    p.s. I could also take all of my pain meds through the tube. I would feed during the night.

    Oh yes, the peg tube is inserted in the stomach. It is an outpatient procedure.

    Jamie

    Do we want this kind of health care system???????????

    in LUNG CANCER IN THE NEWS

    Posted

    "Yet others argue that Britain should be doing whatever it can to improve what are among the worst cancer survival rates in Europe – which is partly the result of patients not having access to the most advanced medicines quickly enough.

    The latest statistics, covering 2000-2, show that only 8% of English patients with lung cancer are alive after five years, compared with 16% of patients in Belgium and 15% of patients in Germany. Similarly, 17% of stomach cancer patients are alive after five years, compared with 33% in Belgium and 31% in Germany. "

    This is so shocking!! Here's their sign to do make a change!!

    Re: Dad losing weight

    in CAREGIVER RESOURCE CENTER

    Posted

    THe doctors did not recommend a peg tube for me, I suggested it. I am not sure if it is normal procedure.

    It sounds scary but after I have had one I know that it is small in the scheme of things(as far as scary is concerned). I could also take my pain meds through the tube. It worked very well for me. I am 3 years from finishing treatment. I was originally diagnosed Stage IIIB locally advanced. I can honestly say that I would not be here if it were not for the feeding tube. I have a very small scar now that looks like a belly button.

    God Bless!!!

    Jamie

    Re: Dad losing weight

    in CAREGIVER RESOURCE CENTER

    Posted

    A peg tube is a feeding tube. I had one during treatment (radiation and chemo) because I could not eat or drink. It saved my life. It was only temporary. I think I had it for about 1 month and 1/2. The great thing is that you can still eat and drink but the peg tuble allows you to get all of the calories you need daily and the hydration.

    The procedure is out patient as is the removal. I immediately felt better after getting. Although I was very hesitant at first because of the thought of it, I had gotten to the point where I had to do something. You can only live so long without proper nutrition and hydration.

    Hope this helps!

    Jamie

    Oh well

    in MEMBER UPDATES

    Posted

    Shar,

    You had such success with Tarceva, I know you will have great results with Alimta also!! 3 years is such a success story!! It's good to know that your spirit is so strong!!! Keep on keeping on!!!

    Prayers for you!

    God Bless!!

    Jamie

    Baby update

    in JUST FOR FUN

    Posted

    That's the best news that I have heard all day Dana!!

    I am soooo excited and happy for you. You will be an awesome mommy!!

    You had great example!

    xoxo

    Jamie

    P.S. Did you see the pics from Playing for a Cure?

    tarceva

    in GENERAL

    Posted

    Hey Bucky,

    Not sure if it crosses the blood brain barrier. That would definately be a question for Dr. West.

    God Bless!

    Jamie

    Back from Canada and the ATS

    in MEMBER UPDATES

    Posted

    WOW!!!! It was an amazing trip!!!

    I met and was able to network with some amazing peaople.

    The topics discussed were:

    1. A transitional view of the molecular pathogenisis of lung cancer

    2. Genomic predictors of Lung Adenocarcinoma Progression and Outcome

    3. Proteomic Predictors of Diagnosis and Survival in Lung Cancer

    4. Novel imaging methods of nodules/early lung cancers

    5. Molecular Pathology Toolbox in 2008

    6. Current Status of Clinical trials of Vaccine Therapy for Lung Cancer

    7. Clinical Integration of Novel Molecular Markers for the Management of Early Stage Lung Cancer.

    OK..I have to admit that half of the time I had absolutly no idea what they were talking about but it was all so intriguing.

    Gald to be home!!!

    P.S. My speech went well and I got to have dinner with Ted Koppell and his wife (who lives with COPD). They were seated at the table next to us at a special award's ceremony.

    This was certainly a memory I will carry on with me.

    God BLess!!

    Jamie

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