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Joost Voorthuis

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  • City
    Washington DC
  • US State (if applicable)
    DISTRICT OF COLUMBIA
  • Country
    United States
  • Status
    Lung cancer patient/survivor
  • Interests
    Get in touch with folks in same trial

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  1. Good day, the break outs were getting bad and the dr agreed so we stopped trial for one week and the breakouts were healing a bit. So on to the trial once again (75 mg ) instead of 100 and the healing seems to continue but breakouts are still visible and funky. But hoping for the best. It beats the alternative no?
  2. I am Joost V and been on this trial approximately 8 months. Started with 25 mg ( no change in module size ) that was good. Then progressed to 50 mg and a few weeks later to 100 mg, (nodules were reduced which is great news) Broke out with lots if skin problems and doses were reduced to 75mg Skin problems still there. A bit of a problem. Have appointment on the 27th. Will see what we can do. My question is to everyone. Have you had skin issues as well? Love to hear from everyone and wish all a Merry Christmas
  3. Good day I am in the trial and dose 75 mg I broke out with skin issues after dose was increased to 100 mg, now redused to 75 and tumors are responding positive however skin us still breaking out in various places.
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