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ale12345

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  1. Sad
    ale12345 got a reaction from LouT in I have strange symptoms and think that I have SCLC   
    HI LouT I am in great worry that I really have the SCLC since my symptoms got worse in the last days.
    I have a really strong wheezing while lying and now I have right back pain on the same side where I have chest pain (my chest pain comes and goes).
    My finger and toes pain also comes and goes and I have mild breathing problems. Else I do have a bit nausea.
    The pulmonologist who checked me has holidays since the 9th January. I do not know if ER can do something since they mostly check heart and do a blood test.
    What do you think about my situation?
    many thanks!
  2. Like
    ale12345 got a reaction from Tom Galli in I have strange symptoms and think that I have SCLC   
    Many thanks for your fast reply! 
  3. Like
    ale12345 got a reaction from LouT in I have strange symptoms and think that I have SCLC   
    Many thanks for your fast reply! 
  4. Sad
    ale12345 got a reaction from Tom Galli in I have strange symptoms and think that I have SCLC   
    Hi,
    I have since 5-6 weeks pain in the fingers and sometimes in the toes, a bit breathing problems and wheezing when lying. I also have chest pain on the right side on one point.
    I visited a pneumologist 4 weeks ago. He did a lung function test and x-ray. x-ray was clean.
    Then my symptoms got worse and He sended me to a thorax CT (without contrast cause I am allergic to it), which He and the radiologist told me was fine too.
    Now I am reading that CT thorax without contrast is not that accurate, expecially for tumors and I am worrying that I have SCLC since I still have this paraneoplastic symptoms and my symptoms get a bit worse. Now with nausea.
    Anyone has any idea? 
    Problem is now between christmas and new year the doctors are hard to get and most are on holidays.
    No idea what to do now.
  5. Sad
    ale12345 got a reaction from Justin1970 in I have strange symptoms and think that I have SCLC   
    First of All congratulation to your 3-year lung cancer surviving! This is awesome!
    Many many thanks for your detailed answer!
    I already went the way I could do. Starting with a pulmonologist, then got the regular check up and questions I had to answer him, after that He sended me to a lung function test, which came back normal.
    Then He sended me to an x-ray, which He told me was clean and without any problems. 2 weeks later After I told him my symptoms are still there and getting a bit worse,
    He sended me to get the CT (without contrast, btw He told me with or without contrast, there is no big difference) 2 weeks ago.
    And after one week I had once again an appointment by him to get my CT results. I went to him and He was checking my Thorax CT together with an radiologist.
    Both of them told me my CT Thorax looked fine. This were great news 2 days before Christmas. 
    Problem is since then my symptoms got a bit worse. That's why I am so convinced that I have SCLC and maybe it was too small for the CT (without contrast), and since I read SCLC is very aggressive, I already worry a lot that this could the reason for my symptoms getting worse and I am already on the way to my end.
    In terms of diagnostic, I do not think I will get a CT that fast after the last one. Maybe a PET CT?
    So could I do a Bronchoscopy then next? I have an appointment at my pulmonologist on January the 11th, since He is on holidays and other Pulmonologist doctors are not that fast available. Most give appointments in 3-4 months at the earliest.
    My primary doctor is also on holidays so,
    right now I am very desperate and have no idea what to do. 
  6. Sad
    ale12345 got a reaction from LouT in I have strange symptoms and think that I have SCLC   
    First of All congratulation to your 3-year lung cancer surviving! This is awesome!
    Many many thanks for your detailed answer!
    I already went the way I could do. Starting with a pulmonologist, then got the regular check up and questions I had to answer him, after that He sended me to a lung function test, which came back normal.
    Then He sended me to an x-ray, which He told me was clean and without any problems. 2 weeks later After I told him my symptoms are still there and getting a bit worse,
    He sended me to get the CT (without contrast, btw He told me with or without contrast, there is no big difference) 2 weeks ago.
    And after one week I had once again an appointment by him to get my CT results. I went to him and He was checking my Thorax CT together with an radiologist.
    Both of them told me my CT Thorax looked fine. This were great news 2 days before Christmas. 
    Problem is since then my symptoms got a bit worse. That's why I am so convinced that I have SCLC and maybe it was too small for the CT (without contrast), and since I read SCLC is very aggressive, I already worry a lot that this could the reason for my symptoms getting worse and I am already on the way to my end.
    In terms of diagnostic, I do not think I will get a CT that fast after the last one. Maybe a PET CT?
    So could I do a Bronchoscopy then next? I have an appointment at my pulmonologist on January the 11th, since He is on holidays and other Pulmonologist doctors are not that fast available. Most give appointments in 3-4 months at the earliest.
    My primary doctor is also on holidays so,
    right now I am very desperate and have no idea what to do. 
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