MomSCLC

I believe there is some data showing possible synergy between radiation and immunotherapy for SCLC. My mom had thoracic radiation + immuno and had a 50% reduction in the primary lung mass and substantial reduction in lymph node. I hope everything goes well for you. Take care.

Thank you Tom, I really appreciate the info. I found out through some research that the traditional serum/blood test for magnesium can sometimes not properly detect low magnesium, so it might be possible that magnesium is actually the culprit. We'll see if the oncologist has any thoughts on that and hopefully get some answers.

I believe there is some data showing possible synergy between radiation and immunotherapy for SCLC. My mom had thoracic radiation + immuno and had a 50% reduction in the primary lung mass and substantial reduction in lymph node. I hope everything goes well for you. Take care.

Unfortunately I think they’ve tested for that already. I don’t know if it’s possible for the tests to be inaccurate, so maybe I’ll ask about getting another one? It’s strange because it seems like these symptoms would be a dead ringer for low magnesium/sodium. 
 
Regardless, thank you for your comment. I’ll keep digging. Take care.

My mom was recently diagnosed with SCLC that has likely metastasized to bone. She is healthy otherwise and a never-smoker. Her treatment consists of chemo & radiation and a clinical trial. The clinical trial is for a drug called lurbinectedin (Zepzelca). Does anyone have any experience with this treatment or other clinical trials? Is there any recourse if she gets a placebo instead of the actual drug?

Thanks for posting this question. Hoping someone has had some experience with this drug. My Mom was diagnosed with SCLC with mets to brain in April. Had 8-9 spots on brain. Has received 10 treatments of whole brain radiation and 6 chemo treatments with immunotherapy. Responded great. Just had follow-up today from most recent MRI....now has approximately 20 spots on brain. Hesitant to do more radiation and was trying to find any new meds, etc., and came across the Zepzelca research. Will be asking her oncologist about it tomorrow. 

My mom was recently diagnosed with SCLC that has likely metastasized to bone. She is healthy otherwise and a never-smoker. Her treatment consists of chemo & radiation and a clinical trial. The clinical trial is for a drug called lurbinectedin (Zepzelca). Does anyone have any experience with this treatment or other clinical trials? Is there any recourse if she gets a placebo instead of the actual drug?