LovingWife
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Posts posted by LovingWife
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On 5/17/2023 at 9:04 AM, Tom Galli said:
I was NED for 17 years and finally, my oncologist reported that I was cured and promptly retired!
@Tom Galli this makes me so happy to read. This is what I am praying and manifesting for my husband as well!
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On 5/26/2023 at 5:33 PM, Kamoto said:
He just started. I sure do hope that when he hits his bottom, you don't stick to this no sugar nothing good diet. i wanted to be able to taste. i was getting only 400 calories a day, and a box of sweet tarts may have helped me stay alive. sometimes my only tolerable food was a McDonalds Filet o Fish. he will need anything he can tolerate. Being naturopathic while battling chemo radiation sounds good, but staying alive is more important. Tread lightly down this road.
@Kamoto thank you for the feedback. He’s definitely getting natural sugars from fruits, agave syrup, honey and maple syrup. He’s just making a life long commitment to eat better and live a long healthy life as an active 30 year old.
But we will definitely try to stay clear of over processed foods and refined sugars. It’s been recommended by several oncologists that are in the family as well as his current naturopath. -
On 5/28/2023 at 12:19 AM, RJN said:
FGR and some KRAS mutations have targeted therapies that may be possible, so definitely worth asking about.
@RJN thank you, I’ll definitely bring this up next week with his oncologist.
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14 minutes ago, RJN said:
So please make sure that the advice is coming from a health professional with a deep knowledge of this particular treatment
@RJN thank you so much for your advice. I’ve been extra paranoid so definitely triple checking everything with the doctors. We’ve been using CBD oil topically but I’ll definitely double check again.
We have been blessed to also have integrative medicine and my husbands Naturopath has reviewed/approved all supplements and teas. We are only getting ancient Chinese herbs for teas. -
1 hour ago, LilyMir said:
Do you know which mutation(s), if any, they found? Are any actionable mutations present (meaning mutations for which a targeted therapy currently exists)? How much PD-L1 was expressed (which is usually a predictor how well immunotherapy may work).
His PDL1 score was 4.. as far as mutations he didn’t have any that she mentioned.
Some of his biomarkers were but have no idea what this meansPDL1 IHC
ATM exon 33
FGF23 amplification
FGF6 amplification
KRAS amplification
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15 hours ago, Karen_L said:
I’m assuming they’ve done biomarker testing with tissue samples, or at least a blood biopsy
They did do biomarker testing. But to be honest, we didn’t know what kinds of questions to ask. We don’t even know what of it means. Any recommendations?
Are there any questions we can ask when he goes in for his second chemo/immuno treatment? How can we ensure we are getting the best treatment option? -
Thank you both. We got everything cleared with his oncology and integrative medicine team. We were actually taking Turkey tail extract but his Naturopathic Dr provided a Canadian brand that is more pure. She said for his current Turkey tail helps the chemo/immuno treatment.
She also mentioned she couldn’t find any study on Curcumin interacting with his meds.. “ No good evidence for interaction, small clinical evidence indicating benefit.”
It’s hard to tell what works anymore with all the theories on Google. I’ve heard of the vitamin C but we were told not to take an excessive amount. PEMF Therapies have some studies on it working for brain tumors and some on breast cancer. But I couldn’t find anything on lung cancer.
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My husband has just been diagnosed with Stage 4 NSCLC Adenocarcinoma, there is spread to his lymph nodes in the chest and lymph nodes in his abdomen. He is 31, non-smoker and overall healthy guy.
I wanted to see if anyone has tried alternative therapies or has integrative medicine as part of their cancer treatment. Such as acupuncture, Pulsed Electromagnetic Field Therapy (PEMF), photobiomodulation, or controlled oxidative stress therapies?
These are some things we are doing as part of his healing journey:
My husband has a naturopath we met with and it’s been quite helpful in terms of changing his diet, how to consume the most protein and supplements he can take. I would be happy to share what they recommended.He is currently on Carboplatin + Pemetrexed + Keytruda. 4 cycles every 21 days, just had his first cycle on 5/15. For his supplements, he’s taking Folic Acid and Turkey tail extract.
He is also taking Curcumin, Omega 3, Wheat Grass and L-Glutamine. We also made a paste of black seeds and honey, 1 tablespoon a day for any inflammation.
We have switched to an all organic anti-inflammatory diet with minimal sugar and almost no processed foods at all.
He’s been drinking a lot of herbal teas specifically sour sop leaves tea and we also found a Chinese ancient herbal doctor who has put together a concoction of herbs for him.
Topically, he’s been applying a castor oil pack and CBD oil to help with any pain management.
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This post has given me more hope than I’ve had in the past two months.
My husband is 31, non-smoker and just got diagnosed with stage 4. He has a tumor in his left lower lung with spread to his chest lymph nodes and to lymph nodes in his abdomen.
We have been so grateful to receive a clear Brain MRI and no spread to his organs. He has started chemo and immunotherapy as of yesterday (carboplatin + pemetrexed + Keytruda). He has gotten bio marker testing but this was still the treatment they recommended.
Trying to remain as positive as we can. Any advice for us as we go through this journey?
Holistic supplements for chemo/radiation therapy
in LUNG CANCER NAVIGATOR
Posted
Hi @Clarinet bob my husband is currently taking Turkey tail as a supplement. His naturopath who is part of his cancer care team recommended and encouraged taking Turkey tail as well. Please look into it