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purplelady47

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Posts posted by purplelady47

    Docetaxol-Talabistat

    in NSCLC GROUP

    Posted

    Hey there Cheryl~

    I just finished a clinical trial with Taxotere and Talabistat which did nothing to decrease the size of my tumors. In fact, there was progression while I was on this clinical trial. This chemo combo was really rough on me too - it made me terribly tired and unable to do my regular activities.

    I hope you have an easier time with this than I did.

    With a gentle hug,

    Pam in FL

    Joels chemo /updated 11/13 & 11/14

    in GENERAL

    Posted

    I just had treatment #5 of 6 of Taxotere. I am experiencing severe right hip and flank pain. I have had this pain prior to beginning my original chemotherapy back in January 06, but it seems to have greatly increased since I started the Taxotere. A bone scan was negative and I just had a MRI of the spine last week to see if there are bone mets.

    I tried Percoset for this pain and it didn't even touch it. Darvocet is doing much, much better for the pain control.

    I have not received any Neulasta injections while on Taxotere, so I know that is not why I am experiencing pain. If my MRI is negative, I am just going to hope that the pain decreases after my last Taxotere treatment.

    A heating pad seems to help relieve some of the pain too. I am sorry Joel is having a difficult time - this Taxotere treatment has not been easy for me either.

    With a very gentle hug,

    Pam in FL

    Helpless and Negative

    in CAREGIVER RESOURCE CENTER

    Posted

    Speaking from the patient's perspective, I can empathize with the difficulty your Mom is having dealing with her terminal diagnosis. It's a really hard blow to cope with along with feeling crummy from the chemo coupled with the changes in her life.

    I am one of those "cup is 1/2 full" people and I was able to deal with my original diagnosis without anti-depressants. When my cancer started growing again, I asked for medication to help me deal with my feelings of anger and sadness. I know that the Lexapro has been a HUGE help for me - I knew I couldn't snap our my my bad feelings and attitude. An anti-depressant might also help with the anxiety/panic attacks too.

    My daughter and son-in-law have moved in with me and we had to set some good rules about what they can and can't do for me. I know that they want to take care of everything for me, but I also know that if I don't have anything to do, I am going to feel useless. So as long as I am physically able to help, I have my list of chores to do as part of the family. Perhaps if you give your Mom some responsibilities (based on her ability) and express how important her assistance and input is, you will motivate her out of her helplessness.

    Can you print up some of the survivor stories here that can give her some hope? Or get her to the computer on Wednesday evening when we have the Survivor's Chat? Knowing that she is not alone and that there are others living with lung cancer might also be of some help to her.

    I know you are doing your best as her daughter and caretaker and it's hard to see your Mom so negative. I am really sorry that you have to deal with all this.

    Consider yourself gently hugged,

    Pam in FL

    more prayers

    in HOPE

    Posted

    We are here for you Tami - feel free to vent, rant or rage with us. That's what friends are for!!

    Prayers and positive thoughts coming your way.

    Consider yourself hugged by me,

    Pam in FL

    My baby is married!! UPDATED with PICS

    in HOPE

    Posted

    Sharing some pictures with all your friends here would be a very, very good thing. :wink:

    Congratulations on your daughter's wedding Joanie. I remember my daughter's wedding - all the beauty, all the emotions and all the love. It was one of the best days of my life too. I am so pleased that you were able to share this wonderful celebration!!!!

    I will be looking forward to the day that you announce that you will soon be called "Grandma".

    With a gentle hug,

    Pam in FL

    Joels doctor visit results

    in MEMBER UPDATES

    Posted

    Hi Maryanne ~

    Sorry to hear about all this but it's good that there's a plan to treat Joel. I will be keeping both of you in my prayers.

    I am on Taxotere right now and I just had my 4th infusion last Thursday. I take 2 Decadron 4mg tablets the night before, the night of and the morning and night after chemo. I don't think the steroids make me any wackier than usual. :lol:

    The Taxotere infusion takes an hour but there are also premeds that need to be infused before the Taxotere. I usually spend at least 2 hours in the chemo room every three weeks.

    The major side effect I am dealing with is the fatigue, which knocks me on my butt for at least a week after the chemo. It wasn't too bad after the first infusion, but has gotten progressively worse with subsequent infusions. I haven't lost any nails yet, but I can see some black spots under my big toe nails and my nails are very tender and sensitive. My hair is still growing but it is thinning out too, which is really strange.

    My blood counts have not been affected by the Taxotere as much as they were with the Carbo/Taxol - I've had a couple of Aransept injections for my red counts but have not needed any Neulasta for my white counts.

    I am part of this study with the Taxotere treatment:

    http://www.cancer.gov/search/ViewClinic ... id=2489711

    I believe the key to dealing with the Taxotere treatment is plenty of naps, maximum hydration and making sure that constipation doesn't happen. If you keep those three under control, Taxotere is doable.

    With a gentle hug,

    Pam in FL

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