Debbiethewife

What AWESOME news! I'm so happy for you. ~Debbie

iaban, My husband had some bone mets when he was diagnosed. Then at his 3month scan checkup it showed they had just about doubled. So the changed his chemo and started him on Aradia(which is similar to zometa). These things seemed to have help him he also is having a little radiation. My husband actually just had another PET yesterday so we will know more soon. I too get frustrated by the maybe answers. Not knowing is very difficult because we want to help so badly. Hanging in there. ~Debbie By the way my stepmom was treated for breastcancer at Moffet and she really liked it there.

Thank you for your help. Randy that was a great link. It had some good infomation for me. Don again I'm sorry about Lucie. Thank you for taking the time to respond to me. You translation about the mets was understandable to me. Something DH docs have tried to explain to us but yet we remained confused. Take care, Debbie

A great post from a great friend. I agree there needs to be more fighting for a cure. I haven't figured out the best way to do that yet but I will. Take care, Debbie

Oh I am so sorry. You are in my thoughts and prayers. Debbie

So sorry for your loss. She put up a brave fight. Prayers for you and your family at this time. Debbie

Hello all, I think I am still in the dark about bone mets. Does the cancer ever leave that area? And do the bones always remain damaged? I read somewhere bone mets shorten life expectancy. How does it do that? DH has double digit bone mets(seriously I've lost count) so I understand he is fragile... Is it like the more you have the less time you have? Because really somedays I just look at him and he looks like my lovely healthy husband to me. Just hard to believe he is so sick is all. Any information would be appreciated. As always thanks to you all. Debbie

My hubby has two primaries as well, sclc and non-sc. His only option was chemo, due to the extensive nature of his, so they use one chemo for each cancer. We have been told it is a little slower going into remission than if he had one. Otherwise that is all of the difference there seems to be for my hubby. Wishing you the best. Debbie

I"m sorry about the UTI. How scary. I've been following your story and your and your mom seem like such troopers. As far as Thanksgiving goes I say let's go for it! We can share virtual turkey on the big day and celebrate. DH and I are looking forward to it already as well. Take care!

My hubby just had test time and the report came back "overall good" bones mets are questionable whether they are healing or still spreading like last time. Dr. has ordered more tests to clarify. We are happy with the results because well it was mostly good. However he is still being told that he has a long way to go on chemo. He has had 10 treatments. The dr. can't give us answers I want to hear about what to expect. We have been told it is more difficult to treat (i think he said shrink) a mixed lung cancer. He also has reminded of how extensive dh cancer is. Ugh! I just hate cancer. I want my husband well. I'm scared the cancer will starting winning if he doesn't get well soon enough. Is that even possible? I just don't know where this is going. Sorry to unload but it is so hard to carry that cancer anger by myself and you guys are so understanding. Thank you!

I think we all share your pain. That slap really stings. On Monday of this week I was sobbing because I hate the new routine so much and I realized that there was not a thing I could ever do to get the old back. Hang in there. ((Hugs)).

I want to thank you all for your helpful sugesstions for us and your support. The news doesn't feel quite and crushing as it did when we first heard it. In order to help cheer him up I made reservations for our 10th anniversary dinner at a fun resturant for next month. It always helps us to look forward to something positive. Thank you all!

His Oncologist made an appointment with and ENT for us yesterday and the appointment was yesterday as well. They tested his hearing and the loss he has right now is permanent and he expects more. His Cochlea (sp?) is being damaged from the toxicity of the chemo. All of my husbands doctors are against stopping the platin based drug. He has too much small cell cancer and it is responding to the drug. They said if they stop it he could die. Anyway ENT also said Hubby would benefit from hearing aids so we will start looking into that now. I will check out the web sites. Thanks for your support really need it today.

It has been awhile since I have been here. I think I need to get over my message board shyness. Ok hear it goes... I know this may seem so petty, but my hubby is losing his hearing from the chemo (platin drugs). They can't stop using those drugs. He has lost the high frequencies and a couple of sounds at the voice level. It started with his first dose of chemo 7 cycles ago. It is expected to continue. Has anyone else experienced this? This is just breaking my heart. I know how upset he is. We understand he has more life threating problems. But there is something precious or sentimental about hearing. Also it is hard to watch all of these other things happen to him along the way. And to have them be permanent is hard. I just keep thinking he too young to have these health problems. Sometimes it is just not easy being the caregiver. Because sometimes when I hear news like that and the disappointment in his voice I have to have a get away to have my little break down so can be there for him. Thanks for listening. Sorry if I rambled.

Cindy, I did mean the medical staff DH doctor is out sick and another oncologist in his office gave us the results we have. However doesn't want to say more than what he has already told us. He needs to wait on the head oncologist. I just found out from DH the office told now it maybe next week before we know. I have a few colorful words to discribe their making us wait when they already have the results. But I will not share them. Grrrr

Hello everyone, I was wondering if anyone has had a similar experience... My hubby has extensive SCLC mets to lymph nodes, bones and liver. And we just had his first scan after 4 treatments and everything but his liver is responding. 3 of the 4 tumors are still the same size and the 4th is still growing. Is this a bad sign? I've heard unresposive and small cell is bad. Nobody really wants to say anything until they have talked with the doctor. Welll the last time that happened the result ended up being that we found out about the cancer.

Thank you so much for your nice responses. They are helping. It is nice to hear I'm not being weird. I actually spoke with the dr's office they are going to get some support group information together for us they think might help. Also the dr's are still working on his pain management and nausea, both are still pretty bad. I like to busy myself to a certain extent but my husband doesn't like me, or shall I say let me, make too much of a fuss so I have to balance my needs with his. If I had my way I would fuss over him all of the time. ((hugs to all))

Hello, I'm a newbie and I know I need to post an intro on other board and I will soon but I have a question in the mean time. Do any other caregivers have trouble with anxiety at chemo time? I really do. My husbands 4th treatment is on Monday and I am already starting to feel it today. I seem to go through this every time. I love him so much and I just can't seem to prepare myself enough for seeing him suffer through the treatments. I feel so helpless. (Stupid cancer!!! ) Thanks in advance,