Anniemac
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Posts posted by Anniemac
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Shannon, I'm relieved to hear about Mikes liver report and suprised to hear about all the people dying from malnurisment. Tulsa sounds like the right place to be and I will be praying hard for you to get Mike there.
Annie
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Shannon & Mike-Wow, sounds like a swell hospital. Get back to Tulsa if you can! Our prayers are with you both.
Annie
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Linda,
This didn't happen to Tim, but we donated platelets at the blood bank for about 10 years-every 2 weeks. We were told that most of the time they were going to be used for chemo patients, so this must be very common. The other reason they were used was for organ transplants. Hope this helps.
Annie
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Tim came home from the hospital today---finally. He had a few set backs, but nothing too serious. He spent two days in ICU after his surgery because the doc had to open his pericardium to strip tumor off the vein. He reassured me that the tumor was not in his heart or in the pericardium--it was just the only way to remove it. He did tell me that his heart became unstable a couple of times during the surgery--but didn't tell for a few days after--when he knew all was good.
Tim's had an episode of tachacardia the day he was put in a regular room. It could have been the surgery or it could have been nerves or they thought he might be having a heart attack.
They moved him to cardiac ICU for two days. No heart attack--just nerves. I almost had one!! 
A couple of more days in a regular room and he was ready to come home. They sure don't make it easy to sleep--lots of noise and people waking you up at all hours. He had the most beautiful view of the Puget Sound out his window. We could watch the ships coming and going.
The hospital was great. They have an Al A Carte food system. Tim could order anything he wanted 24 hours a day and it would be brought to him. He could eat when he really felt like it and have just jello or mac & cheese or a fruit smothie. It was a great idea--they would bring me food too--all I had to do was pay cash. It was nice that we could have dinner together in his room.
So glad to have him home. He's doing great. Stands up straight--not hunched over. He had a couple of units of blood 2 days ago, so his color is good. Says the pain is controlled with the meds, so it's not too bad.
I don't have the entire pathology report yet, but Tim got the info that the margins were clean--then he dozed off while the doc was talking.
Sorry this was so long--it's my birthday and having him come home was just the greatest gift. Thanks for the prayers everyone. I know it helped him through.
Annie
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Jay
I'm so sorry about your Mom. What a lot you have to get through at too young an age. I lost my mother to cancer when I was 13 and I still feel her with me to this day. I know that during hard times and good times she is beside me in an almost physical sense. Your mom will always be next to you and will give you strengh throughout the rest of your life.
You have many people on these board who love and support you and have been praying for you. I hope you can take some comfort in that.
Annie
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GOOD NEWS!
in HOPE
Joanie--boy-quite a day for the empty heads!! This is wonderful!!
Annie
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Fresca--more good news!! Yeah!!
Annie
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Ginny & Earl--we just love all this good news. It's the first place I come to on the boards. It just lifts my heart to see how well people are doing. Earl gives us all hope!!
Annie
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Clean Scan
in HOPE
Gail, have a great time in CA. The trip is all the sweeter for the great news.
Annie
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Oh Dave; that's just the best news!! I'm with Ray--my eyes are leaking good tears.
Annie
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Tiny,
Great news!! I know the MRI will be clear too---so many people praying for you---nothing can go wrong. Enjoy your trip.
Annie
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Oh, Peg--just the best news ever. I love it when these da-- tumors respond to the treatments. I'll pray that it just disappears into thin air.
Annie
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Tims is still doing great. He bounces back so quickly, he's surprising the docs and nurses. Today-2nd day after surgery-they took out his chest drain, his IV, his catheter and his heart monitering stuff. He's connected to nothing!! He's up walking the halls and was moved to a regular room tonight. He had a turkey dinner and a salad for dinner. Can't keep a good man down. Watched the basketball finals-though he slept during most of it.
Thanks again for all the prayers. I know for a fact it helped in the outcome of the surgery.
Annie
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Tim's doing good. He's still in intensive care for monitoring, but the docs and nurses are all amazed that he's doing so well. He's standing up, sitting in a chair for hours at a time. He had mac & cheese for dinner!! He'll be moved to a regular room tomorrow and be out in a few days. His epidural started to leak last night, so they took it out and started him on regular pain meds. He's doing OK on those and is without much discomfort. His oxygen rate (without added oxygen) is between 97 and 100--pretty incredible for a one-lunger. He dozes off when I talk to him--my sister says I must be boring him.
Not sure what the prognoses is now. The onc came by and says after he heals up a bit they will start more chemo...but that will be awhile yet.
All your prayer and good thoughts must have worked for him. Our onc said that the surgeon called him in the middle of the surgery and told him how difficult things were getting and our onc told him to continue....that we were determined to fight this with all we had. I'm so glad we communicated that to him and he had no doubts about what we wanted.
Thanks everyone!!
Annie
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Tim had his surgery today and thing didn't go quite as planned. He's OK, but they found that the tumor had wrapped around the vein to his heart, so they had to open his pericardium to be able to remove the tumor. He said they almost stopped the surgery a few times and gave up, but Tim is healthy and his heart is strong and they continued. The surgery took about six hours instead of three, but the doc says he got all the tumor. They had to remove one of the nerves to his vocal cords, so he will be hoarse, but small trade off. They did re-stage him to lllB, but so lucky they were allready doing the surgery. He will have follow up chemo, but I'm not sure what else.
He got to his room about 7:00 PM and by 9:00 he sitting up in a chair with a ginger ale watching a ballgame. Granted, he was nodding off, but his color was good and he wanted me to leave him his cell phone. Can't keep the guy down. Thanks for all the good thoughts and prayers.
Annie
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Thanks everybody. I'll take all of your thoughts with me in my heart tomorrow for the "long wait" at the hospital. Donna G-I think you covered it all and Shelliemacs-way to get to the point.
Annie
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Peg, my husband Tim had this done twice. They lightly sedated him and looked inside his lung. They took pictures (very interesting) and samples for the dx. He had it done a second time by the surgeon that will do his pneumonectomy tomorrow. No real side effects except for coughing after for about 30 minutes after from the irriation. It really wasn't too bad.
Annie
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Oh, I like the sound of that. No change...great!!
Annie
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Hey everbody. My husband is having his surgery tomorrow morning. Please send all you good thoughts and prayers his way. We are both nervous and eager to get it over, mixed feelings...big time! My sister is coming from CA to stay the week with me and the extra moral support is a blessing. No one understands as well as all of you do what we go through, so just keep us in mind in the morning. Thanks for being there...I don't think I could get through this without all of you.
Annie
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Cheryl, I sure understand how hopeless you feel, but please listen to the others. It's certianly not the end of the road for treatment. My husband is Stage 3A and had 1 0r 2 nodes involved. He had 5 weeks of chemo and radiation and the tumor has shrunk enough that he is having his surgery tomorrow. Our doc said that even if the surgery was not possible they would still be treating him with cure in mind. I feel they will never give up on him and I sure won't either.
Feeling depressed and hopeless is normal. I wish you the best and will keep you in my prayres.
Annie
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Yeah!!! WE all ove the good news.
Annie
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Sorry to hear about Lucie's new met, but she will overcome this as she has in the past. With such a wonderful and caring husband and all the folks on the boards praying and keeping their fingers and toes crossed...how can anything bad happen???
Annie
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Michelle, I'm sorry your husband is not doing so well. My husband has phelgm in his throat too. It doesn't sound quite as bad, but he also had radiation and the doc says it's a side effect. Tim says it feels like something is caught in the top of his throat and he coughs up stuff. He didn't do this before the treatment and the doc says it's temporary. Hope this helps.
They moved him to cardiac ICU for two days. No heart attack--just nerves. I almost had one!! 
Taxotere and Carboplatin as a first line treatment
in NSCLC GROUP
Posted
My husband had carbo/taxotere for 5 weeks prior to his surgery. He had few side effects from it, but was on a lower dose because he only has one kidney. He didn't have much nausea, but was taking medication to prevent it. He was tired a few days after each treatment, but not too bad. He also had radiation at the same time and his tumor did shrink. Not sure which one worked, or if it was all three. It was enough for him to have his surgery. Hope this helps.
Annie