Hello, everyone. What a relief to find a message board and forum for just SCLC folks! My name is Anne Burris, I live in Wichita, Ks I am 29 and am the daughter to my mother who was just diagnosed with SCLC on 5/5/03 (my birthday ) with mets to liver, bones and lymph nodes.
My father is married to my mother, I have an 19 year old sister (attends college out of state) and a 31 year old brother (living out of state)
Once I was told of my mother's diagnosis I immediately went from working full time to working part time out of my home so that I could do everything possible to help her (wasn't that difficult, i was going to work from home anyhow after I have my baby, i'm 7 months preg, baby is due on 8/2, my mom's bday) . She was only given 9 months to live by this very "busy" oncologist, so busy in fact he dropped the bomb on us in just a matter of 5 minutes saying "you'll win some battles, but not the war", gave us a handshake and left the hospital - haven't seen him since. As far as I'm concerned those words took the wind out of my mother's sails and took any hope that she could have had. I am trying so hard just to give her hope so that she will fight this battle, she says she wants to fight it, but I just don't see the fire in her. Anyhow, we are going to St. Lukes in Kansas City on Wed 29th to meet with a different Oncologist referred to me by an ALCASE phone buddy, Barbara Mayfield, you may have heard of her. Anyway, the purpose of this trip is just to make sure the treatment protocol that my mother is on is the right one, and hopefully this dr will be a little more encouraging than the last onc she saw.
Anyhow, I'll be posting updates (also hope to get a picture of me and mom here soon), i'm so glad to read your postings, and will certainly be praying for you. I think the best part of this whole thing is seeing just how wonderful people are and knowing that people care. I'll be praying for you all. Talk to you soon.