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raneyf

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Posts posted by raneyf

  1. (from her husband)Hello everybody. Raney is finally pain free. She passed around 2PM in April 10th. I want to thank everybody on here. She made some friends, and I thank you all for the support. She will be missed, but most importantly she wants to be remembered.

  2. For all my regular scans, they do an MRI with contrast on my brain. I believe that is what is most useful in finding brain mets. The one time I was in the ER with headache/vomitting, they just did a CT. Not sure why no MRI in the ER.

  3. My hair is like Colleen's. Reverse mohawk... It amuses my kids and family, so whatever, I guess. It is Brillo pad like in some spots and I have 1 thick spot in the back that's shaped like a heart. Maybe the other mom's at school think I'm making some kind of a statement... I live in Arizona and it's going to be getting hot, plus the Sorafenib makes my head itchy, so I've been going hatless too.

  4. Hi Diane,

    Congratulations on your remarkable history. I'm not sure where all your cancer is, only that you're a stage 4. It's really great that your doctors operated twice. I've found that to be pretty uncommon for patients with metastatic disease. You'll have to let us know where you get treatment. Congratulations again!

    Raney

  5. I've never had a CT w/out contrast, but on all my other CTs and even on chest x-rays, they've always differentiated between fluid and my tumor. So, I would think that a mass is probably solid. That's not a great (or even a for-sure) answer, but hope to help a little. Best of luck to you.

    Raney

  6. I had my baby and then started chemo, so I hadn't had a cycle since 12/05. They just did a blood test on me and confirmed I'm in menopause. Woo hoo, isn't all this fun...

  7. Randi,

    It is strange and new to most people for non-smokers to get lung cancer. It was certainly a shock to me. I think most of the members here just want to gently educate the public that no one is safe from this horrible disease.

    Raney

  8. Julia,

    I'm so sorry for your loss. Even though I only met Aaron through this board, I considered him a friend, and I'm so sad for you two and your family. Again, I'm just so sorry - I can't understand anything about this disease.

    Raney

  9. Hi Rachel,

    Wish the Tarceva would have worked longer for you. I'm also tired of being poked and examined and scanned. Today I told my mom they were lucky if they were going to get another CT out of me, much less a PET. I was kidding, but sometimes I wish I could just forget...

    Raney

  10. Hi Nova,

    I'm sorry for this news. The CPT11 isn't horrible with the diarrhea if he chooses to go that route. I'm on my 6th round with it and can control the diarrhea with immodium. I'm sure it's harder on some than others, but I didn't want him to dismiss it just for that reason.

    Raney

  11. Yes, we changed a lot. We moved from the outskirts of town where we had a big new house to the middle of the city so we could be close to my parents. Our house went from 2500 s.f. to 1600 s.f. We sold one of our cars and got something cheaper. My husband used to work a 2nd job so I could stay home with the kids. When I was diagnosed, he immediately quit so he would be home more for us. Overall, I'm happy to be "in-town" again, happy to have my husband home more, and we're making it without the 2nd job. Now -I'm not saying I'm happy I got LC to motivate me to make these changes. I'm never going to embrace the silver lining of my disease - I hate my disease. But we did make some big changes that were important.

  12. Hi Bucky,

    I would work on the surprise party and plan on going and having a great time. As far as pain, my experience is that bone pain is going to be shoulders/ribs/back/or hips to start with at least. So I wouldn't worry about my hands or feet for sure. Try to be happy and have a great new year!

    Raney

  13. I'm sorry to hear this news. I'm surprised the doctor didn't have more ideas outside of clinical trials? I hope Aaron is feeling better soon and able to get home. We were just in NYC and I thought about you guys and wished I had been able to meet you... I should have thought ahead.

  14. I'm Raney,31 years old, married to Chris, my high school boyfriend for the last 8 years.

    2 sons, Jaren (5 years) and Conor (1 year).

    I am a CPA, but quit my job in 2005 to stay home with Jaren and to have another baby.

    I live in Mesa, AZ, where I was born.

    I've been fighting stage 4 NSCLC since 10/06 when my baby was 6 weeks old.

    Rachel (Fight) - I have an aunt and several cousins that all live in Grand Junction...

  15. They told me they put mine on the right because my left lung is the biggest problem? I don't know, it sounds like it could go either place. I guess they have a new kind that can be used for CT contrast too. I'd ask for that kind if you can.

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