raneyf
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Posts posted by raneyf
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I'm in Mesa, AZ. I don't know what you're looking for in a buddy, but let me know and maybe we could do that. I'm the patient though, so I don't know if that matters.
Raney
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For all my regular scans, they do an MRI with contrast on my brain. I believe that is what is most useful in finding brain mets. The one time I was in the ER with headache/vomitting, they just did a CT. Not sure why no MRI in the ER.
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My hair is like Colleen's. Reverse mohawk... It amuses my kids and family, so whatever, I guess. It is Brillo pad like in some spots and I have 1 thick spot in the back that's shaped like a heart. Maybe the other mom's at school think I'm making some kind of a statement... I live in Arizona and it's going to be getting hot, plus the Sorafenib makes my head itchy, so I've been going hatless too.
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Hi Anne,
Hoping the Tarceva works well for you. I have a baby (19 months now) and a 5 year old also. I know it's hard for me to keep up with them sometimes. Hope you're feeling well or have some help. Keep up the good work with the scans.
Raney
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Hi Diane,
Congratulations on your remarkable history. I'm not sure where all your cancer is, only that you're a stage 4. It's really great that your doctors operated twice. I've found that to be pretty uncommon for patients with metastatic disease. You'll have to let us know where you get treatment. Congratulations again!
Raney
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I've never had a CT w/out contrast, but on all my other CTs and even on chest x-rays, they've always differentiated between fluid and my tumor. So, I would think that a mass is probably solid. That's not a great (or even a for-sure) answer, but hope to help a little. Best of luck to you.
Raney
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I had my baby and then started chemo, so I hadn't had a cycle since 12/05. They just did a blood test on me and confirmed I'm in menopause. Woo hoo, isn't all this fun...
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Randi,
It is strange and new to most people for non-smokers to get lung cancer. It was certainly a shock to me. I think most of the members here just want to gently educate the public that no one is safe from this horrible disease.
Raney
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That's really great. Sometimes I imagine hearing news like that so I'm so happy for you. Enjoy your time between scans.
Raney
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Hi Lilly,
Sometimes it seems like you can't buy a break. I can't believe what a hard time you had. I hope you're feeling better and AWAY from the hospital for a long time.
Raney
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Glad to hear from you. Sorry for the recent hard times. I'm glad you're enjoying your time together and have some help coming soon. Praying the Temodar will work...
Thinking of you,
Raney
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I had a bone biopsy in my left hip at diagnosis. They gave me some IV drugs and I had no trouble. I hope your procedure is as easy.
Raney
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I think it depends if they're doing your abdomen too. They always do mine. I have to drink some stuff before the scan too. So no eating 4 hours before the scan for me.
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Hi Rachel,
Wish the Tarceva would have worked longer for you. I'm also tired of being poked and examined and scanned. Today I told my mom they were lucky if they were going to get another CT out of me, much less a PET. I was kidding, but sometimes I wish I could just forget...
Raney
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Hi Nova,
I'm sorry for this news. The CPT11 isn't horrible with the diarrhea if he chooses to go that route. I'm on my 6th round with it and can control the diarrhea with immodium. I'm sure it's harder on some than others, but I didn't want him to dismiss it just for that reason.
Raney
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Good luck Lilly. I'm happy for you!
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Yes, we changed a lot. We moved from the outskirts of town where we had a big new house to the middle of the city so we could be close to my parents. Our house went from 2500 s.f. to 1600 s.f. We sold one of our cars and got something cheaper. My husband used to work a 2nd job so I could stay home with the kids. When I was diagnosed, he immediately quit so he would be home more for us. Overall, I'm happy to be "in-town" again, happy to have my husband home more, and we're making it without the 2nd job. Now -I'm not saying I'm happy I got LC to motivate me to make these changes. I'm never going to embrace the silver lining of my disease - I hate my disease. But we did make some big changes that were important.
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Hi Bucky,
I would work on the surprise party and plan on going and having a great time. As far as pain, my experience is that bone pain is going to be shoulders/ribs/back/or hips to start with at least. So I wouldn't worry about my hands or feet for sure. Try to be happy and have a great new year!
Raney
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I'm sorry to hear this news. I'm surprised the doctor didn't have more ideas outside of clinical trials? I hope Aaron is feeling better soon and able to get home. We were just in NYC and I thought about you guys and wished I had been able to meet you... I should have thought ahead.
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I'm Raney,31 years old, married to Chris, my high school boyfriend for the last 8 years.
2 sons, Jaren (5 years) and Conor (1 year).
I am a CPA, but quit my job in 2005 to stay home with Jaren and to have another baby.
I live in Mesa, AZ, where I was born.
I've been fighting stage 4 NSCLC since 10/06 when my baby was 6 weeks old.
Rachel (Fight) - I have an aunt and several cousins that all live in Grand Junction...
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They told me they put mine on the right because my left lung is the biggest problem? I don't know, it sounds like it could go either place. I guess they have a new kind that can be used for CT contrast too. I'd ask for that kind if you can.
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Did you ask about Abraxane? I was allergic to Taxol, but o.k. with this. I was o.k. with Taxotere too though. But maybe worth asking.
Raney Fleck
in GRIEF
Posted
(from her husband)Hello everybody. Raney is finally pain free. She passed around 2PM in April 10th. I want to thank everybody on here. She made some friends, and I thank you all for the support. She will be missed, but most importantly she wants to be remembered.