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dtay

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Posts posted by dtay

  1. Thanks so much to you all for taking the time to give me your ideas and suggestions - I am so truly grateful as I know that you all have your hands full with your own problems - this is a truly amazing site and I feel fortunate to be part of it all

    Dawn x

  2. It's really great to hear from you all - and you all have such courageous stories to tell.

    My Dad is 76 years old but has always been a 'young' 76 year old - he was very sturdily built and strong but now he appears quite frail and has aged in my eyes.

    They told us first of all that radiation was an option for the lung tumour and chemo for the malignancy in the sub carinal node - but now they say that the lung tumour is to big for radiotherapy at 4cm.

    We live in UK and do not get half as much info from the Doctors that you appear to in USA - most of the info I have gained has been thru internet research.

    I know his liver is clear and his bones are too - the staging they gave was T2N2MX.

    I think that the more knowledge you have about Lung Cancer the better it is when the Doctors talk to you about it, at least you can understand where they are coming from.

    I was hoping that my Dad might be able to try Tarceva but in UK it is not available yet (other that on trials where one patient gets the drug and one a placebo).

    He is currently taking Chinese medication (some sort of Mushroom called Reishi) and it is supposed to boost your immunity to prepare you for the chemo - I pray to God it is working !!

    Thanks for your welcoming comments - they are all very much appreciated.

    My Dad sees his Oncologist tomorrow for the first time so I will have a better idea of what they are going to do then.

    God Bless you all

    Dawn

  3. My Dad has just been diagnosed with 3b NSCLC squamous cell ( sub carinal node malignancy ). He has probably had it around 18mths according to the Chest specialist - symptoms present cough, hoarseness, weight loss, anorexia, fatigue. Had been treated off and on for 6 months for chest infections anf laryngitis, then for heart problems (atrial fib) and eventually he was sent for a chest xray where a 4cm tumour was detected. After biosies to the tumour and lymph nodes they decided it was inoperable and not suitable for radiation. We are all devastated as my Dad was a big strong man and is now a shadow of his former self. He hasnt started his palliative chemo yet and my sister was wanting to take him on holiday over xmas - I was unsure as I didnt know if he would be up to a long flight and would postponing the chemo till over xmas have a big impact on the outcome ?

    My sister thinks that he should enjoy his life while he still can.

    It is such a dilemma deciding what is best for Dad and of course the choice is his.

    This site is a wonderful discovery for me and I have read most of the wonderful stories and comments and have taken some hope from them - thanks to everyone who moderates and contributes.

    Dawn

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