Dollfinn
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Posts posted by Dollfinn
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Where can I get bioten? It's not that Im not a bad pool player aor anything! Mary
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Ann~
I was surfing the site for a chuckle, and you sent it my way! Sening all junk mail back w/ stuffed envelopes! How did everone miss this? Thanks, Mary
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Dear Michigan~
Hope 10/17 is "our" luckey day! I also will have my 1st scan since Tx end. Much "scanxiety" on this end. Staving it off w/ the extended summer we are having here and the help I get from this site, stay in touch, I'll look for you on the 18th! Mary
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Joe~
Congradulations to you!! I needed that lift, thanks for sharing. Mary
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I'm reaching for tissues after reading Beckys post, and going to plant tulips and watch them bloom in the spring, thank you Cindi. My nurse told me, "you are a suvivor everyday after the day your diagnosed" She was trying but that was a little to "fluffy" for me, I'm going w/ the tulips!
Cancer is not killing me, it's forcing me to live!
The work thing really wrapped it up for me. I PUSHED to get a back 2 work note, I'll let you know if I go. Mary
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I have not seen alot posted on hair so lets go there! I took Cisplatin; velban and Radiation almost 2 wks after last chemo 8/17 and to date it just comes out in clumps. ONC. Dr. not much help. My husband and I reasoned chemo has a 1/2 life in the body so we just went w/ it. The hair thining thing. But it wont stop! I am VERY greatful, I have not reached the bald shiny stage, but will I? Right now I look like I have a great plug job! I stay away from hats as I feel it stresses what I have left, and I sleep on satin pillow cases. All posts welcome. Mary
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Trudy~
Tears are good medicine some times, the other times I take xanax! great drug, we keep "stashes" for the "crashes" like something will just hit you. I am a fellow IIIB'er who has just completed Tx no one on the site I have seen yet has followed my Tx path. Dr. does not believe in Tarcivea or any other anti-neo's (hummmmmmmmm) my 1st post Tx CT is next Wens.
will start new post about hair~ I need to talk about hair! Glad you found us Trudy, please keep us posted. Mary[/i]
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Welcome! My take on this is, You are a champion in your 3rd year of this crummy battle. I'm sure you can take on those little benifit mongers~ Were here to help, and again, CONGRADULATIONS!! Mary
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Dear Vivian~
Welcome, I'm so glad you found us. Wow! what a history. I agree that you should if you can, remind your Aunt that you are both vertan fighters and you have no desire to drop out now. Thers a true push-pull here and it's real. You are worried for Paula and she for you.
Visit this site often, take time for yourself too.Tues. night is a "chat" on line I try to visit about 8pm, light banter just to share, we'll be looking for you and wish both of you some sunny days ahead. Mary
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Dear MM~
I/We are so sorry to learn about your sister, wishing her comfort and peace. The next 13 days will pass fast, just enough time to get a note book, and begin to gather more strength. Knowledge is strength.
Dates, names , phone numbers, contatcs, us ( your password) keep them all in one place. Keep those questions commming, keep us posted. Mary
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My Dr. said you become a suvivor, each day after the day you were diagnosed. Oct.17 will be my 1st scan after completing Tx. I feel great. signed, scanxiety Mary!
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Dusti~ What a situation, I do need to ask, is your Mom willing to accept help? May sound funny but she seems pretty set in the decisions she makes.
My LC is being treated soley by the Bx from my chest wall outside the lung. The mass in my lung has never been Bx. I also know for sure, if the hospital can (they SHOULD) give symptom relief, it may give your Mom just a tad more strength to press on.
keep in touch, sending prayers your way, Mary
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Keep your "A" game on. When the wind blows and the rains come down, shine your light.
I also would ask Dr. West on Onctalk.com. That web site has a 5 min. survey to see if you fit into any trials in the country.
You will miss 100% of the shots you dont take. Go for it, we're here with you~ Mary
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Hello All~
OMG talk about scanxiety! The Dr. feels the CT scan set for 10/17 will show stable at the very least!! No more meds, he feels some of the anti-neo's can excellerate recurrence, soooooooooo, no chemo, no radiation no meds, just Mary on my own till the scan. PS I feel pretty good .
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Trish~
see, I feel like such a weenie, I did not recieve any of the meds anyone on this site got-? I was on the balls of my arse for 14 days at a clip, and my Dr. has never mentioned the word tarcevia.
I did cisplatnin x2 and velban weekly x5, w/ 13 zaps of radiation each day x36, during the chemo. I was soooooooo shot, so sick. I have never been sick, I have never been in the hospital (except for the children). This wiped me out~ This all @ MSKCC in Manhattan.
I feel pre-diagnosis now, just a little residual couch potato syndrome. I'm going for it, to young to retire, I went full time when my husband retired 6 yrs. ago! I love him, but that 24/7? hummmmmmmmm
I'll keep you guys posted. Mary
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Donna~
Kuddos to you! Just the message I was looking for. Im not sure what the Dr. will tell me next Wens. I feel out of my Tx loop but my onc. has gotten me this far. I didnt get the idea surgery is in my future. More medistnal lymph nodes involved then the 1.9cm in RLL. My Dr. is a more deal w/ the moment type of guy, he does not acknowledge "B" until "A" is complete. ( I did have some large bumps in the road). Really I just think 1/2 of me is afraid, and the other 1/2 wants to look past yesterday.
I work in same day surgery~ A very fast, buzy, crazy place. Critical thinking is a must, and I've been so knocked down for 3 mo. The girls at work are all rooting for me.
Happy Birthday to you and many , many more! Thanks for your help. Mary
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I am not sure if I am being realistic, or just pressing on. I am 49 and up until 6/07 was working full time. I completed a VERY AGGRESIVE chemo/radiation protocol, and while I await scans (full of scanxiety), I want to return to my very busy job, I am a nurse~ any thoughts, has anyone done it? All posts welcome. Mary
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Ned!
You made my day.thats it! Im suffering from scanxiety. I cant get past it, so I just go through it. I had my last chemo 8/17 and last Radiation 9/12. My first scan will be the end of Oct. PS I feel pretty good.
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My name is Mary, Im pretty good w/ PC, but this format and this cancer is all new to me. I will "test run" this post before I share my road from a back ache in June to stage IIIB NSC adenocarcinoma.
Wheres My Hair?
in LC SURVIVORS
Posted
Mary Go get a wig because it looks CUTE ON YOU!!! Don't make a job out of it. Make it a FUN DAY!!
Hugs,
Connie
Liz, Connie , Sue`
I'm on my way 2 the Mall. I have the Rx for a wig, it's just the action of going to pick it out, I think gee, how easy 6am will be! I'll try the bioten and use the "insurance" benifit of a wig. My Mom had 2 and I donated them both after she never used them. I just think it's not fair to the people you encounter, I think we wear a wig for "OP" other people. Thanks, Mary