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chloesmom

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Posts posted by chloesmom

    what is the Importance??

    in GENERAL

    Posted

    The day I happened upon the LCSC was the best day I had in my journey through lung cancer. It was that day that I found hope that I could get through the diagnosis and treatment with success because I found others who had gone before me and succeeded.

    I saw people who were successful and getting back to their lives before cancer-changed for sure, but getting back and that made me think it was possible for me as well.

    I saw people who were not as fortunate as I in terms of regaining their health, and I stood in awe of their courage and grace, and felt better for having 'known' them, if only online.

    Caregivers gave everything they had, and sometimes it was still not enough to bring their loved one through, and yet they stayed here to help all of the rest of us with our battles.

    Things change, and I don't come here nearly as often as I used to-life gets in the way and other things can quickly divert your attention.

    My mom is sick-not cancer related at all, but very serious and her status can change on a dime at any time-and has, several times over the past year.

    My sister, who has been my mom's most direct caregiver, is moving to another state in a few weeks, and I am truly at a loss. Not only is she my mom's best advocate, she's my best friend. She's the person who's known me longest besides my mom, and I find this all very upsetting that she's leaving.

    I attended the HOPE Summit 2012 a few weeks ago as a panelist/survivor and I can't quit thinking about it. Last year, I attended, and I met some amazing new people and reconnected with some old friends. This year, it was the same thing, but much much more. Without the LCSC I would have never been exposed to this network of fantastic people.

    June 20 will mark my 9th anniversary of my lung cancer surgery. Coincidently, it is also the day of my annual visit to my lung surgeon. I have had a lot of anxiety issues with these visits in the past and while they get better as time passes, they still can get my head spinning.

    So, long story short, I am here today because I find comfort and hope here, just the same as I found it in 2003 when I was facing the scariest time in my life.

    Squamous & adenocarcinoma found after surgery

    in NSCLC GROUP

    Posted

    I had my upper left lobe removed 9 years ago for stage 1B adeno. Pain was an issue for a time, but it did disappear eventually, and now all I feel is some numbness at the incision site.

    I did have chemo. At the time, studies showed some benefit to having chemo after surgery to improve survivial. Now, that benefit is in doubt for my particulars but I still have no regrets. It was a few months, and I thought that would be a small sacrifice to increase the chance of a cure.

    I also think that one of the keys to success is to access the best possible care available to you. MD Andersen has an excellent reputation, and, if you are close, and can get in, I would advise you go see what they have to say.

    I hope you are feeling better now, and please let us know how you are doing.

    Cindy

    Can exercise help treat or even prevent lung cancer?

    in LC SURVIVORS

    Posted

    I certainly think there is something to this-exercise is a known stress reducer and if you believe stress is a causative factor in cancer (I do!) then exercise should reduce your risk.

    Definitely exercise improves quality of life, and I was told that if I could exercise even lightly during chemo, the side effects would be less.

    One thing for sure-exercise never is a bad thing!

    Cindy

    Not husband Too!

    in LC SURVIVORS

    Posted

    Hi Donna,

    I am so sorry to hear that your husband might have to deal with lung cancer. But he can take a lot of hope from knowing your success story. Just kind of stinks that you both have to go thru this all over again!

    Keep us posted,

    Cindy

    It's Back?? UPDATE 4/17/12

    in NSCLC GROUP

    Posted

    Hi Denise,

    Well, I don't blame you for being worried, but it sounds like your answers are coming really soon, and with the answers will certainly be a plan.

    Please keep us posted about what's going on with Tom.

    As far as the rash, is he using anything new topical? I developed a strange rash just prior to starting chemo, and it turned out to be a bad reaction to a new lotion I tried.

    Cindy

    New to this site & to cancer. Many ??'s

    in INTRODUCE YOURSELF!

    Posted

    Hi Dani,

    They can't do official staging until after surgery, but early stage diagnosis at this point is a really good report.

    During surgery they will remove sample lymph nodes and test them to determine spread.

    I had the upper left lobe removed almost 9 years ago and am still doing great.

    Good luck to you,

    Cindy

    Gemzar

    in GENERAL

    Posted

    I had the cisplatin/gemzar combination. It was both on the first week, then gemzar, gemzar week two and three.

    No hair loss, but it can knock your platelets down. I missed a couple of weeks because of low platelets.

    Other than being really tired, I don't remember anything significant from gemzar. The cisplatin was the tough one for me.

    In my case it was not a long infusion. About 90 minutes if I remember correctly.

    Good luck with it Judy.

    Cindy

    My update (2)

    in MEMBER UPDATES

    Posted

    Surgery is super-tough, but here is the good news-every day from here on should get better. I found recovery to be slow but steady. I got stronger (slowly) every passingday. Hopefully will be the same for you.

    And then chemo-its not too fun either, but I tried to look at it as a prevention from future problems, and that helped keep me in the fight mode.

    Please keep us posted and wishing you well in your recovery and treatment.

    Cindy

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