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Lisa O

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Posts posted by Lisa O

    Keith update 4/19/06

    in MEMBER UPDATES

    Posted

    I am so sorry Carleen. Has Keith tried a Fentanyl patch? They also have breakthrough meds available. I hope and pray they will find and eliminate the source of the increased pain. In the interim, there are many other meds available. IM me if you would like a list.

    Lisa

    Healing rooms in hospitals!

    in LUNG CANCER IN THE NEWS

    Posted

    I really believe in the power of prayer. There was some recent study where they were trying to undermine the affect of prayer (the study was done using complications following cardiac surgery), but I do not believe one can use a narrow based study to disbelieve such a powerful phenomenon.

    I need opinions regarding lung cancer in elementary school

    in GENERAL

    Posted

    I cannot begin to tell you how much the support of this board means to me right now. I have been in such a bad state over this -- I really needed to know if I was over-reacting due to Leah's insecurities.

    I AM going to do something about this matter. I am going to use these replies to gather the strength and support that only those who have been there can offer. This darn disease can be so isolating - I don't know what we would do without a place to post to eachother in times like this.

    From the bottom of my heart, please accept my love and thanks.

    Lisa

    Additional Alternative Therapy

    in LUNG CANCER IN THE NEWS

    Posted

    I have found accupressure to be very helpful for pain and other symptoms. I used to do accupunture but it didn't work so well with the Iressa.

    A healthy diet is always recommended but oncologists are split on whether antioxidants taken in high doses by way of oral supplement during chemo is a good idea so it is a good idea. Mine doesn't mind ingestion by eating whole foods but the only oral supplement allowed is a multivitamin during treatment.

    I need opinions regarding lung cancer in elementary school

    in GENERAL

    Posted

    :cry:

    By way of refresher, I an a stage IV BAC, diagnosed first by thorascopic biopsy 6/02 then determined to be stage IV during thoracotomy 7/02. I have been

    "relatively" stable on Iressa and Celebrex for three and a half years. I have two children, the 10 year old is the subject of this post.

    My daughter's class has an anti- drug program called D.A.R.E. It is a great program which basically scares the children away from alcohol tobacco and drugs. The problem is that they presented the information regarding tobacco in

    a very terrifying manner to my daughter's class and when she heard the statistics, she suffered a major setback regarding dealing with any ability to

    handle my lung cancer.

    Leah had been told of my lung cancer honestly from the onset. She has also been told that the medication is working. We do not discuss DEATH one way or another although she has not been made any promises and does understand that

    "some people" "can" die from cancer, including lung cancer. This presentation was basically a slap in the face and a promise that I WOULD die from this.

    Unfortunately, the presenting officer's father had died at 42 from lung cancer.

    To complicate matters, during the presentation, the officer made it clear that lung cancer was the result of the person's own actions,.... ie....

    smoking. At that time, my daughter raised her hand and corrected him and told him that I had lung cancer unrelated to tobacco and that it is not unusual to get lung cancer from other causes. The officer was taken aback and felt terrible. Her teacher, however, assumed that Leah was fine and never called me to alert me to the conversation or to tell me what type of statistics would be

    presented in D.A.R.E.

    When Leah got home she was quite unnerved and repeatedly said, "I know that is not going to happen to you though right Mommy.... your medicine is working so you won't die right"? All I could do was tell her that my medicine was

    working right now but that no one knows what the future holds. She was not reassured and she has been calling out for me in the middle of the night.

    When I mentioned this to the teacher she told me that the officer has to answer all questions and that he would continue to talk about death if that is what came up in class. She said if a student asked how long someone would live if diagnosed with lung cancer he would answer that. I told her no one

    could answer that. I then called the officer who was VERY reasonable and said he would not discuss statistics or death at all in DARE and that he regretted bringing it up at all.

    Yesterday, my daughter's principal told me that it was unreasonable to expect the curriculum to change for my daughter. She also said that since my

    daughter spoke in class, "she was fine" and apparently only became upset when she saw me. She also said that since I was on TV (this was regarding women and lung cancer NOT DEATH STATISTICS and LEAH DIDN'T SEE IT) that I shouldn't

    be concerned with the death statistics they presented in school.

    I am writing this because she was extremely cruel and hurtful during our discussion yesterday. Both my mother and I have lung cancer and the discussion

    on death was very damaging to my daughter. We are swimming backwards right now but I am not sure how angry I have a right to feel about the comments made.

    Thanks for any input.

    Lisa

    To Fay A

    in GENERAL

    Posted

    I too am a great admirer of Fay's. She is an awesome example of courage, strength and kindness. I am grateful for the inspiration I continue to receive from her.

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