Jump to content

dianew

Members
  • Posts

    1,066
  • Joined

  • Last visited

Posts posted by dianew

  1. Today started off pretty quiet and slow - but lots has happened already and I can see it is not going to be a boring day - in fact maybe it's actually Monday? :? Sure can't complain about the weather though - it is going to be sunny and high 60s. I'm getting really antsy to get started gardening, although I know we have a lot of below freezing temperatures to come yet. We've been able to open the house up a couple of times, and that's been really nice.

    My printer has stopped working, so I think I'm going to be spending part of the afternoon on the phone with HP tech support . . . but I'm waiting for a call from the oncologist's office to pick up a patient after chemo so don't want to get involved with HP until after that call comes in.

    Katie - LOVE the bus - I can smell the Pina Colladas! Cindy, after you get the tank filled up and pick up Bruce -- maybe you could just hop over this way. I am sure ready for a party! I think Lillian might want to come too - and Kellie isn't far away either.

    Have lots of work to do before the bus gets here - so better get going.

    Happy Tuesday!

  2. Woke up not feeling so great this morning and decided I needed to start the day off with a laugh - came across this old post of Annette's and it got me feeling better - thought maybe some others could use a laugh today ---

    And That's How The Fight Started

    One year, I decided to buy my mother-in-law a cemetery plot as a Christmas gift...

    The next year, I didn't buy her a gift.

    When she asked me why, I replied,

    "Well, you still haven't used the gift I bought you last year!"

    And that's how the fight started.....

    ______________________________

    My wife and I were watching Who Wants To Be A Millionaire

    while we were in bed.

    I turned to her and said, 'Do you want to have sex?'

    'No,' she answered. I then said,

    'Is that your final answer?'

    She didn't even look at me this time, simply saying, 'Yes..'

    So I said, "Then I'd like to phone a friend."

    And that's when the fight started...

    ________________________________

    I took my wife to a restaurant.

    The waiter, for some reason, took my order first.

    "I'll have the rump steak, rare, please."

    He said, "Aren't you worried about the mad cow?"

    "Nah, she can order for herself."

    And that's when the fight started.....

    ________________________________

    My wife and I were sitting at a table at her high school reunion, and she kept

    staring at a drunken man swigging his drink as he sat alone at a nearby table.

    I asked her, "Do you know him?"

    "Yes", she sighed,

    "He's my old boyfriend.... I understand he took to drinking right after we

    split up those many years ago, and I hear he hasn't been sober since."

    "My God!" I said, "Who would think a person could go on celebrating that long?"

    And then the fight started...

    ________________________________

    When our lawn mower broke and wouldn't run, my wife kept hinting to me

    that I should get it fixed. But, somehow I always had something else to

    take care of first, the shed, the boat, making beer.. Always something more

    important to me. Finally she thought of a clever way to make her point.

    When I arrived home one day, I found her seated in the tall grass, busily

    snipping away with a tiny pair of sewing scissors. I watched silently for

    a short time and then went into the house.. I was gone only a minute, and

    when I came out again I handed her a toothbrush. I said, "When you finish

    cutting the grass, you might as well sweep the driveway."

    The doctors say I will walk again, but I will always have a limp.

    ________________________________

    My wife sat down next to me as I was flipping channels.

    She asked, "What's on TV?"

    I said, "Dust."

    And then the fight started...

    ________________________________

    Saturday morning I got up early, quietly dressed, made my lunch, and

    slipped quietly into the garage. I hooked up the boat up to the van, and

    proceeded to back out into a torrential downpour. The wind was blowing 50

    mph, so I pulled back into the garage, turned on the radio, and discovered that the

    weather would be bad all day. I went back into the house, quietly

    undressed, and slipped back into bed.. I cuddled up to my wife's back, now

    with a different anticipation, and whispered,

    "The weather out there is terrible."

    My loving wife of 5 years replied, "And, can you believe my stupid husband

    is out fishing in that?"

    And that's how the fight started...

    ________________________________

    My wife was hinting about what she wanted for our upcoming anniversary.

    She said, "I want something shiny that goes from 0 to 150 in about 3 seconds."

    I bought her a bathroom scale.

    And then the fight started......

    ________________________________

    After retiring, I went to the Social Security office to apply for Social Security.

    The woman behind the counter asked me for my driver's License to verify my age.

    I looked in my pockets and realized I had left my wallet at home.

    I told the woman that I was very sorry, but I would have to go home and come back later.

    The woman said, 'Unbutton your shirt'.

    So I opened my shirt revealing my curly silver hair.

    She said, 'That silver hair on your chest is proof enough for me' and she

    processed my Social Security application..

    When I got home, I excitedly told my wife about my experience at the Social Security office...

    She said, 'You should have dropped your pants. You might have gotten disability, too.'

    And then the fight started...

    ________________________________

    My wife was standing nude, looking in the bedroom mirror.

    She was not happy with what she saw and said to me,

    "I feel horrible; I look old, fat and ugly.

    I really need you to pay me a compliment.'

    I replied, "Your eyesight's damn near perfect."

    And then the fight started........

  3. It is really good that she has you! I didn't want anyone to know anything either, but as with most things that got better with time and I'm sure she will open up to people more and more as time goes on, especially with your support. The anger gets better with time also, but I notice I still get really touchy when I am due for a scan. Please keep us posted on how you are both doing.

  4. Welcome Debra! Congratulations on being a stage 1 survivor - it is always such a shock to be told you have lung cancer, but if you do then the earlier you are diagnosed the better. As Bruce said, this is a wonderful site to come to.

    I hope you will come by often and let us know more about you.

    Diane

  5. Beautiful day here, but lots cooler - only about 45. That is okay though as long as the sun is out. I would have to say today that I really appreciate the blue sky and sunshine!

    I would also have to say I appreciate my husband. Because of my shortness of breath, shopping can be really hard for me. One of the stores has been having a huge clearance sale and he volunteered to go try to pick out some things for me. (He HATES shopping). I was pretty hesitant because in 48 years the clothes he has given me as gifts have been a pretty interesting lot to say the least! They have either been 5 sizes too small, 5 sizes too big, or just plain ugly. This past weekend he did a super job - about 2/3 of what he brought home were great - he only had to return a couple items. Obviously some things do get better with age :)

    Diane

  6. I think Cindy is off, doing something fun I hope. I’m really excited - the weatherman says it will hit 70 tomorrow! Would be wonderful to be able to open the windows and let the house air out after being closed up all winter. Think I’ll stay away from Home Depot though. Every year on the first warm day, it seems every single resident of the valley is out, in t-shirts, shopping the home improvement store. I’m doing my bit for home improvement - got half the wallpaper in the guest room off yesterday, and should be able to finish it up today – hallelujah!

    Our local Farmers Market starts next week – I always see that as the first sign of spring. Don’t forget, time changes Sunday – moves up an hour.

    Does anyone have anything really special planned for the weekend?

  7. Riggles - I hope you can get her to be more open about what is going on. When I was first diagnosed I felt the same way - I wanted no one to know anything - but it really just compounds the sense of isolation and fear and I think most people suspected something was going on anyway, they just didn't know what. Once it became more common knowledge and I was forced to start talking to people about it, things got easier. This must be very confusing for a 6 yr old. Is there any chance you live in an area where there is an "in person" lung cancer support group? If not, then a general cancer support group might be of real help to her as well - they also have support groups for caregivers, and you might want to check into that for yourself. And of course we are always here.

  8. Welcome Riggle. This is the right forum to introduce yourself. I also read your post under "My Story". I am very sorry you have had reason to find us, but this is a good place to come for support. There are many people here who have loved ones with lung cancer. I am a patient, so I have not been in your position, but some of our members who have been just where you are will be along soon. You are right, and lung cancer can travel to the brain, but your girlfriend's behavior reminds me of my behavior at times when I was first diagnosed and going through treatment. It is very frightening, you feel completely alone - as if you were the only one this awful thing is happening to, and unfortunately you are most apt to take it out on those closest to you. At times I was not a very nice person. Looking back I'm surprised my husband put up with me - I am not so sure I would have. Remember, she needs you more than ever.

    Please come back often and let us know how things are going. This is a good place just to vent if you need to. We all understand.

  9. Hi Cindy - our weather doesn't seem as extreme as yours right now, but we are at the stage where it is hard to decide which coat to wear. It has been around 50 and raining, and it seems if I choose the heavy coat I am way too warm, and if I choose the lighter coat I am shivering. The light weight coat with a sweater seems to be the best choice. I doubt that Bruce is feeling much pity for either of us :)

    Just a reminder that time changes this coming weekend (3/9) - can't believe it's that time of year already, but if that means spring is here (or at least on the way), I'm all for it!

    I'm visiting a friend for the last time this afternoon. She is in hospice and not doing well at all. This is the friend I've mentioned before whose bucket list consisted of eating as many different dishes that she had never tried before. We've had a great time the last couple years trying all sorts of new things. I'm really going to miss her.

    The rest of the week is looking pretty uneventful - and that's okay.

  10. Hi Kellie - thanks for the update. Sounds like you're getting lots of helpful advice regarding the rash, and I hope your energy is slowing coming back. When I was last dx genetic testing was new, but I'm very surprised at this point the insurance companies are not covering it. Shame on them! I hope you area able to get some assistance in either appealing this or help with the cost.

  11. Welcome Angeline -

    Like Cindy, I did traditional treatment also, along with a clinical trial so I don't know too much about alternative treatments, but I hope you are able to find some good information in the other forums. This is a really good place to come for support and encouragement. Even just to vent if you need to. I hope you come back often and let us know how you are doing.

    Diane

  12. Kale is such a healthy food, but try as I might I simply cannot warm up to it. However I stumbled across this recipe for a crockpot soup that is full of kale, but also delicious and super fast and easy to make. I always double the recipe and even add extra kale!

    KALE & SAUSAGE SOUP

    Cooking spray, as needed

    1 (15 oz) can cannellini beans, rinsed and drained

    ¼ cup chopped onion

    1 clove garlic, minced

    1 sprig fresh Rosemary or ¼ tsp dried Rosemary

    1 cup chicken broth

    ½ cup chopped fresh tomatoes or canned diced tomatoes

    7 ounces turkey or chicken sausage cut into ½ inch slices (may sub other sausage)

    1 – 2 cups chopped fresh kale

    Salt & Pepper to taste

    Grated or shredded Parmesan cheese, for serving (optional)

    Spray inside of a 3-1/2 quart slow cooker with cooking spray – if desired. Add the beans, onion, garlic, rosemary, chicken broth, tomatoes, sausage and kale. Stir well to mix. Cover and cook on low for 7 hours. When ready to serve, remove rosemary sprig, season with salt and pepper. Top individual bowls of soup with Parmesan cheese, if desired.

    Makes 2 generous servings.

  13. Brenna - welcome. One day at a time is the best way to get through treatment, and it sounds as though you are doing well - and hopefully without too many side effects. I will be thinking positive thoughts that your CT scan on the 9th shows good results.

    As Cindy has suggested, check out some of the other forums - I found the Good News forum especially helpful when I was going through treatment.

    Please come back often and let us know how you are doing.

  14. Thank you for the update. Your Mom sounds like a fighter. There are many clinical trials out there and hopefully one that will help your Mom. I will be keeping you and your family in my prayers. Please keep us updated as you can.

  15. It's supposed to be in the low 50s here, although I haven't been outside to check, and maybe into the low 60s next week. We've had lots of rain, but no snow in the mountains so doesn't look like our local ski resort is going to open this year which is a shame for the employees, and the skiiers too of course. I know it's early, but I'm getting spring fever. Have been looking through catalogs to order some spring outfits - I am definitely ready for some sun and warmer temps.

    Hope the sun is shining for everyone today.

  16. Dana - Welcome, although I am sorry you had need to find us. It sounds as though you have already learned a lot - especially not to listen to negativity, particularly from doctors! It never ceases to amaze me how some of them can be so ignorant and out of date. It is good news that she is being tested for mutations - it can open up many more options, and new they are working on lots of new targeted therapies. I live in a small town and we don't have a "cancer center", so my tumor wasn't tested because it was standard practice then. I hope you live in an area where your mom can have access to a real cancer center. It sounds like your mom is in a good place to go through treatment. Being healthy to start with, and having a positive attitude, makes a huge difference.

    Please keep us posted on how your mom is doing.

  17. Elyana - I am glad you found us, but am sorry that you have reason to. I am a patient, and not a caregiver, so I can't relate to that aspect of this disease, but many many of our members have been exactly where you are now. As Cindy says, there are many people with stage 4 who are surviving for years. It may seem strange to say that anything having to do with this disease is fortunate, but it is a good thing that your Dad is EGFR positive.

    Please keep us posted as to how your Dad is doing.

    Diane

  18. Lily - I am so sorry to hear that your nephew now has to deal with this awful disease! When I had my lung removed, I was back at work part-time in about 4 weeks (keep in mind I had a desk job), and it was really much too early and I think it made my recovery time longer than it would have been. The VATS surgery they do now wasn't available, and if that is what your nephew had it should make it easier. I remember taking a trip after 4 months, and still being exhausted. I think it was 6-9 months before I felt fairly normal again - and of course everyone is different.

    I wanted to have chemo and/or radiation as "insurance" - but was told they believed I was cured and would not do it. I know it is done more often today. But I think my case was a little different from your nephew's - because they had removed my entire lung, their argument was that since there was no problem with my remaining lung they could not treat a healthy lung "just in case" as it would do more harm than good. In hindsight, knowing what I know now about the long-term effects of chemo and radiation, I can't disagree with that. However, one thing it never occurred to me to do - and the one thing I would STRONGLY recommend to anyone being told "no further treatment", is a second opinion from a lung cancer specialist. I don't think I can emphasize that enough.

    I will keep him in my prayers.

  19. You're right Cindy - it is going to be an AWESOME Monday!!!

    Portland had another storm, so my son's car is still sitting. Portland has lots of hills, and black ice is always a major problem when they have storms - so if you live on one of those hills (my son does), it can be almost impossible to get your car in or out - yourself too for that matter :). The paper this morning said our temperature was going to be almost 50 . . . I can live with that! Speaking as an Oregonian who is very familiar with dark clouds and drizzle -- you are right - they can suck the energy right out of you. I keep all my lights on, and burn the fireplace when I can -- music helps too - and the company of the dogs as well! And my favorite - lunch with friends . . .

    I think my doctor is tired of listening to me whine about the Prednisone. I've been told that there is nothing else that will do the same thing and I just have to get my dose as low as possible - but I'll never get off of it. "It is what it is" as they say . . . I just have days when acceptance seems to come harder than on other days.

    Lily - I hope you have a wonderful trip to see your family this year. Drop in when you can and let us know what you're up to back there.

    Well I'm off to enjoy my AWESOME Monday!

  20. Cindy- thanks for posting this. While sometimes it seems good news and lung cancer don't go together, this study is such hopeful news! I knew that survival had improved, but this is the first time I've seen actual numbers in black and white. Now instead of telling newly diagnosed patients that the statistics are old and out of date, there will be more current and hopeful information to give them.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.