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Terrie

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Posts posted by Terrie

    Where to go for surgery

    in INTRODUCE YOURSELF!

    Posted

    I also live in the Pittsburgh area and had wonderful doctors from Allegheny General. I couldn't have asked for more. I had friends willing to send me to NY and help with the kids, but I needed to be closer to my support system, including my family. In the end, I was happy I stayed here, however, Pgh. is only about a 30 mile trip for me. I wouldn't have gone to the local hospital even if they could have performed the surgery -just wanted someone who specialized in lung cancer surgery. Good luck with your decision and God Bless!

    Has therapy helped you?

    in CAREGIVER RESOURCE CENTER

    Posted

    Therapy was never offered or suggested to me from any of my doctors - I just assumed it was an "insurance thing" and I wasn't eligible. Although I am NED and thankful to be there, I still have issues and wish I had someone to talk to from time to time. All I was offered was an antidepressant which I still take, but I think talking to someone about my experiences might make a difference.

    Friends -

    in HOPE

    Posted

    I haven't been on the boards much lately - a little browsing and reading when I can. I would just like to share that two years ago today I was given my diagnosis - I can't believe I actually forgot the date until now!! WOW! Just came back from vacation with my family - thanking God for the miracle that saved my life! Thank you all for being here each and every day - you support and inspire people in ways you don't even realize!

    Terrie

    WRONG FREAKING DIAGNOSIS

    in GENERAL

    Posted

    I was originally diagnosed as NSCLC - squamous cell - and treated as such. Had chemo and radiation as such, then had the tumor removed - even though they said the treatment didn't shrink the tumor - and final path came back neuroendecrine carcinoma - typical carcinoid.

    Was told that was a GOOD THING. Then about six months later my pneumologist told me different pathologists may not agree on the diagnosis, but let's "go with this for the time being". After years of misdiagnosis (believe me, I could write a book!) and lots of treatments, several surgery attempts - I have faired VERY well!!! I will tell you, however, still wage a "mental" war occasionally over the quacks that let this go for so long - and me for believing them - but that's another story.

    I really only did research AFTER my surgery, because I didn't know the final path till I went for a followup with my surgeon. I didn't receive treatments for NE, because they thought they were dealing with NSC at the time. My onc., however did say it was a very slow growing type.

    Good luck - like everyone said - take a minute to let all of this sink in and move on with your fight!! Now that you have the knowledge, you have the power - you go girl!

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