Addie
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Posts posted by Addie
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DavidA....
Hope you didn't take my "underdog" comment to be an insult to Detroit! I didn't mean it to be. To clarify....I just think the "expectation" was that the Lakers would win...that it would be harder for Detroit to win.
Well...I guess Detroit showed what they're made of, eh?
And yes...from what I read of the earlier games AND what I saw last night...Detroit definitely outplayed the Lakers and deserved to win.Just didn't want you to think I meant anything negative by saying it's nice to see an underdog win. The way I look at it....the Lakers themselves have the attitude that compared to them....EVERY OTHER TEAM is the underdog.
In that regard then, I'll always pull for the underdog!!
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This sounds much more hopeful....to know that the radiologist is not convinced that this is a met! Heaving a little sigh of relief here and hoping that the facial CT defines clearly, what this is so that it can be taken care of!
I know it's got to be hard...still not knowing yet....but so far, so good if there is doubt about it being a met...eh?
Still sending prayers for some good news and an easy resolution!! You guys "keep the Faith".....and we'll all keep sending the Hope and Prayers....ok?
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Let me add my prayers and gratitude to you for going for this trial! It takes courage, I think....yet there seems a good potential for positive results too! I'll be "vibing you" for success and looking forward to a report from you!! Best wishes......
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I actually watched this game, even though the Trailblazers had no part in it!!
It was worth it to see all those Laker butts getting kicked! Woo Hooooo.....way to go, Detroit! And to do it at home, made the win even sweeter, I'm sure!
My hubby said it won't be long before the Lakers look like a brand new team...as he has a feeling a lot of them will be changing jerseys soon.
As I said before, I'm just tired of LA dominating as they have for so long....when you just know that it's all a matter of $$$ to pay those big salaries to get the big talent.
It's nice to see an underdog win once in a while...and I'm happy to see Motown take it to Tinseltown!!
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Thinking of you Bean...and hoping NOT to hear any faint "Jiminy Crickets" from you today. Hope you are relaxed, and that the test goes well and provides answers...
A friend told me that at those times I'm feeling really scared or alone....to remember that I NEVER am....that my support group is there always...."like a soft echo".
So I'm telling you that WE are here for you, like a soft echo....and if you do get scared and you just have to yell, "Jiminy Cricket"....then listen hard, as there will be many echoes coming back and surrounding you, absorbing your worries and helping you get thru the day....ok?
Let us know how you're doing.
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Some days I actually forget to remember that I have cancer..
All by itself, this is worthy of celebration! Congrats to you Debi...on all of your accomplishments!
I think it's hard sometimes NOT to keep letting that "c" thought track through our heads...when in fact, there is SO much more to our lives than simply cancer.
You give me a lot of hope for the time when I sleep thru the night without interruption and if I DO wake, that one of my first thoughts is NOT cancer.
Here's to many, many more years of feeling even better than you do today, with lots more to celebrate!!
Ry...
This just cracked me up!Just out of curiosity, how do you know your mind is improving?? I mean its not like you'd know if you were losing it.... The thing is....even if WE didn't know we were losing our mind....most of us know somebody who'd take great pleasure in telling us we were.....right?
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They absolutely have my prayers and ALL positive wishes and thoughts. I had a couple of lovely emails from Karen recently...and this is distressing news....but yet I believe in the power of all our prayers AND in Karen and David's positive and united approach! Whatever this is...they will knock it out of the ballpark!
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.....we ALL know how hard it is. So...I want to share something that a radiology tech told me. She is the granddaughter of a woman I play golf with...and was most upset to find me in the waiting room one Friday, there for an abdominal CT a week after my dx.
Anyway....I had the CT at about 3:30 in the afternoon...but she told me, "Have your doctor call at the end of the day and the radiologist can give him a VERBAL report!! That way you won't have to wait till Monday for the results!!"
And that is just what I did. My internist called and then called to give ME the report by about 6:00 that night!! It was clean...and let me tell you, I enjoyed that weekend a lot more than I would have if I was waiting on test results, not knowing~!!
It sure would be nice if more doctors would do this. My internist happens to be a really wonderful guy....very sympathetic to how hard it is to wait for results. I'm sure not all doctors would be AS accomodating as mine is.
But...those who would be...might be more than happy to do this...to call the radiologist for a verbal report and then let the patient know.
So...while I know some of you may already do this or have thought of it....for those who may not have, it seemed worth posting about. Hope it helps some of you to get results sooner and not have to cope with that awful waiting period!
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Thinking of you and Alan too, Jane....and continuing to send prayers for you both.
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Well dangit....this is not what I wanted to hear either.
But I know that you both have the right attitude and that you'll simply proceed with the conviction that this too, can be overcome....whatever it is.I've been waiting to hear...and I'm sorry there wasn't a simple "all clear, but try to avoid collisions with your daughter's head from now on" explanation.
Prayers and positive vibes coming at you....from all directions, I expect. Please keep us posted and know that lots of positive energy is coming David's way....
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Well, I sure hope the dream catcher does the trick for you, Fay...and Ed as a stalker makes a bunch of sense. But if he looks like Martha Stewart....then you can just subconsciously put him to work cleaning your house!! Let him attack dust bunnies and grease under the stove burners, let him hang you some new drapes or make a slipcover for the sofa....putting his evil energies to good use, eh?
There's a thought....picture ED IN AN APRON AND RUBBER GLOVES, WEARING "SENSIBLE SHOES"!!
Somehow he isn't quite so scary that way, is he?
If all else fails....set ED down at a table and let HIM make you some dreamcatchers for every window and door in your house. That'll keep him busy and then you can get on with the more pleasant dreams....perhaps with Robert Redford or Pierce Brosnan or Brad Pitt in them?? Whoever floats your boat. Dream up a hunk to hang out with in your dreams and let ED take care of the housework....eh?
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sclc
in SCLC GROUP
I too, just had my first cycle of chemo two weeks ago. My oncologist assured me I would NOT get nauseous and I didn't! My appetite wasn't great at first and some smells bothered me...but once I was about a week past the chemo...I pretty much was eating normally and even put a couple of the pounds I'd lost previously, back on!
Before each chemo, I am given Decadron (a steroid) and Zofran (anti-nausea) by IV. I also had prescriptions for Zofran and Compazine pills, plus Ativan (anti-anxiety) to help me sleep. The nights surrounding the three days of chemo I was restless and did need some help to get a decent night's sleep. But I found I really didn't need the prescriptions at home except for those first three nights....because what I got in the IV's prior to chemo, really took care of any problem with nausea!!
In this day and age, there is NO reason for someone to suffer needlessly from nausea and loss of appetite when there are things that can be given to offset these reactions. ASK YOUR HUSBAND'S DOCTOR about them and ask for your husband to be given something! In fact, if it were me...I'd INSIST on it!
Staying hydrated is really important too. I drink about 2 liters of water a day, plus a couple of cups of coffee and two glasses of milk. The oncology nurses told me to drink between 2-3 liters of fluid daily. Do encourage your hubby to keep drinking fluids....but I know even that is hard when one is nauseated.
I'd get right on the phone and put a call in to the oncologist and start making a mighty noise about your hubby getting something for nausea. I just cannot imagine why - since it's available - a patient wouldn't be given the IV's or some meds to help with this. Be your hubby's advocate and insist he be given something! It will make things a bit easier for both of you....as this is all hard enough without being nauseous on top of it!!
You've found the best place on the net for help, support and advice. Sorry you have to be here....but I hope what you find here will help make this journey a bit easier for both of you!
Call your husband's doctor and let us know what happens...ok?
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This does sound like good news! It's nice to have some answers and have most of these tests behind you...eh? I hope the open MRI goes alright.
One thing they did when I had my MRI (it was not an open one either....but I'm not especially claustrophobic!!) was to place a washcloth over my eyes. That way, even if you open your eyes, you cannot see how close the machine is to your face...BUT I was able to see a bit of light from underneath the cloth and it sort of helped to orient me.
Perhaps this little trick would help Len??
Good luck and keep us posted.
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Cat...
I don't know what happened....and I haven't been here very long but I've yet to see anything but kindness and support and knowledge here....and you are an active part of all that!
Whatever has happened...it's always wise to remember the gaps that occur in cyberspace because anything we say lacks tone of voice, body language, facial expression...and all the things that can help us better understand the words!
I'm sorry you felt hurt or misunderstood when you're smack dab in the middle of such a stressful time. And OF COURSE it's fair and it's absolutely right for you to ask for prayers...and I hope you know you have them.
I always say I'm a turtle too....because "home" is on my back. It's not WHERE I am....it's WHO I'M WITH. At this time in your life...you need to be the same kind of turtle that I am....and BE with the people who will help and support you. Please reconsider about taking leave....because the strength of this place, I think...is in ALL the people who are here.
You are needed here and besides, it sounds to me like Peggy has laid down the law!
I wouldn't want to mess with Peggy when she's sounding so definite....would you? -
Well, this is wonderful news. Stable is good....and I too am sending prayers for good results after the MRI!!
I'm also sending some increased strength vibes to Earl. Some days it seems harder than others to move around much, I know...but I'm hoping you can find some gentle, low impact things he can do to help boost his strength and energy a little! Like you said....you've got witnesses that it's okay to nudge him a bit on this one.
Keeping everything crossed for you...but am so delighted the news was so terrific so far!!
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Well, the Shearing and Pizza party was lots of fun!
Our friend Joe did the complete barber thing...except for me taking one swipe with the electric shaver myself. Everyone else was content to watch or take pictures.Joe started by giving me my first Mohawk!!
It was a rather curly, white one...and rather hilarious looking....but Joe was quite pleased with himself. I was pleasantly surprised to find a lack of knobs, knots, indentations or lumps on my skull....but man, is my head cold??? I've got a knit cap on at the moment, and have started knitting one out of lighter weight yarn....as I don't think baseball caps are gonna cut it. It's only in the 60's here today....and dang....the old noggin is feeling every little breeze!
The pizza was great and I didn't have to worry about finding any hair in it!!
Well, okay...some floating dog hair, maybe...but none of my own!Bald ain't so bad....except for the breeze. My son's girlfriend said she thought I looked "beautiful". I think that is QUITE a stretch....but I love the girl anyway and have to say this just makes me love her a bit more!
This morning....when I came back upstairs to get the dogs up (they were still in their beds, snoozing away like my DH was....when I got up) my female took one look at me...jumped up and started barking at me!!
She'll get used to a mom in a stocking cap I hope!!
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I've noticed here that some people have had their dx changed after treatment. For example, someone getting chemo for sclc ends up being rediagnosed with nsclc or some combination of large and small cell.
I'm just sort of curious as to how often this happens? In reading the pathology report from during and after my biopsy....the initial frozen slide was inconclusive.....the notation being that it could be sclc or lymphoma.
I asked my oncologist about it and whether or not it seemed like a good idea to get a second opinion on the biopsy. He seemed to feel the report left little doubt once further tests were done, that this is sclc. But when I read the report it says the pathogist "favors sclc" over lymphoma.
That doesn't sound all that positive to me!! So then the worrier in me thinks...."I'm being treated for sclc but what if this IS actually lymphoma? What if a mistake was made?"
I'm probably just borrowing trouble with these thoughts, I know. But when I keep reading about those of you whose dx has been changed....it does cause a person to wonder!!
Should I think about a second opinion on the biopsy anyway...or should I go with what my oncologist said? I should say here, that I REALLY like my onc. He's straightforward and open and takes as much time as we need to get our questions answered...so already, I do have a great deal of trust in him.
It just troubles me that others have apparently been misdiagnosed....and it makes one wonder about one's own dx, you know?
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Jen...think I already emailed you this info....but I receive IV's of Decadron (steroids) and Zofran (anti-nausea) and both work well to keep appetite up and nausea at bay. I have the feeling the steroids also sort of help energy level or diminish the fatigue a little.
Prior to radiation I will also receive (daily) a shot of Amifostine (Ethyol) which is a radiation protector. I've been told to take a Zofran pill an hour before getting the shot to offset any nausea the Amifostine might cause.
As you know....I had no nausea at all with my first round of chemo. Just a little "unsettled tummy" from trying to eat some Gen'l Tso chicken less than a week after chemo
Sometimes I'm my own worst enemy They told me to avoid spicy foods...but I couldn't resist.Others might have info for you...but I'd sure ask my doc about getting something to offset the nausea. It's available and I see NO reason not to take advantage of that fact! Same goes for the amifostine before radiation.
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Funny threads, Peggy....thanks. Funny...but a bit scary too when I read that I may end up with a white, fuzzy BEARD eventually!
My hair is very curly...and already pretty white. I'm just hoping when it grows back that it STAYS curly. Long sleek locks would have been fine when I was a teenager...but at this age, short and sorta naturally curly works better with white hair and....ahem....crow's feet (if ya catch my aging drift!
)I'm already missing most of my eyebrows and lashes. Five eye surgeries and having to tape your eyes shut at night (because of protrusion, they did not close fully...so I taped them to avoid corneal ulcers) will do that to you.
Hey...maybe after chemo ALL my eyebrows will come back....eh? Uh oh...Maybelline is gonna lose a LOT of business if they do!
I quit "painting" my eyebrows on about a week or so ago. There's another 10 minutes a day saved. I'm gonna have so much free time on my hands once I'm hairless...who KNOWS what I can accomplish!!
Sheesh....I sure hope I don't grow a beard though. That's a little TOO much like looking like my hubby AND my dogs....you know?
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Hey...if lime green hair can get me into a band....I say "why not?" But I gotta tell you....I'll only lip synch!! You don't want me actually singing!
Here is a link to that knitted hair hat. I can't wait for the yarn to get here...as this is almost how I wear my hair anyway....short, but a bit curlier than this knitted cap!!
http://www.headhuggers.org/patterns/kpatt10.htm
Hope I linked that correctly!
Elaine, I figure to keep a lock of my hair since I was the third child in my family...and so never had a baby book OR a lock of hair saved. Now...I'll have a lock of almost 58 y/o hair in a cancer journal! Hey....close enough, huh?
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....in that I'm starting to shed!
My head has been itchy for several days now...but not until yesterday did running my fingers thru my hair leave me with a handful!! My hubby remembers the doctor saying it would be about 14-15 days from the first chemo. I remembered hearing 19 days. Yesterday was 15 days so I guess hubby's hearing is better than mine, huh?
Anyway, my oldest son - who shaves his head - and a good friend who also shaves his head are coming over tonight, with their respective girlfriend/wife and the six of us are having a Shearing and Pizza Party.
Everybody that wants to...gets a shot at shearing a patch off my head.Now that it's happening....I think I'm sorta going to miss my hair...altho not having to mess with it everyday will give me those 10 minutes to do something else....right? I don't figure on getting a wig. Our lifestyle is pretty casual and I can't imagine that there is anyplace I'll need to go in the coming months where hair is mandatory.
In the grand scheme of things....this isn't exactly big or unusual news...but I guess it's sort of a significant "milestone" for my journey with cancer....to have reached this point.
I did find a pattern on the web yesterday for a knit hat, made with "eyelash yarn" that almost looks like hair!! Since I knit, I ordered some of the yarn to make myself a couple of these "hair hats". One yarn is sorta close to my own hair color.....but the other yarn is lime green!! It might just be fun to be a 57 y/o "punker" with lime green "hair"
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Tess....I am so sorry to hear your latest news....but I will pray that the Iressa works for Rob and works well.
I do admire your spirit...such as how you've figured out a way for Rob to sleep more comfortably and for you to be by his side.
Keeping you both in my positive thoughts and prayers for things to turn around and for the Iressa to work. I will look forward to a good news report from you!
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Such good news is always welcome!! Congrats to Mom!! I'm sure this will send them off on vacation with big smiles. Hope the Iressa just keeps on working for her!!
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Sending up a prayer and holding ALL good thoughts for Rich and for you, Char.
And yes...from what I read of the earlier games AND what I saw last night...Detroit definitely outplayed the Lakers and deserved to win.
But I know that you both have the right attitude and that you'll simply proceed with the conviction that this too, can be overcome....whatever it is.
It was a rather curly, white one...and rather hilarious looking....but Joe was quite pleased with himself. 
Obituary for Mo_Sugar "Missy"
in SCLC GROUP
Posted
I couldn't access it either....and would like to read it. A bright light has been dimmed with Mo's passing....and though I've not been here long, it didn't take long to recognize how special she was.
Randa, your strength shows in how you've handled such a hard time in your life...and proves too, how the apple doesn't fall far from the tree. I think your mom would be very proud.
Mo will be sorely missed here and long, long remembered.