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Suzie Q

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Posts posted by Suzie Q

    Steady decline

    in GENERAL

    Posted

    Nancy,

    Sometimes just being there is the best thing.

    Relating old memories is a good thing. Giving a back or foot massage is nice, too. maybe ou can read to him or share an old movie with him.

    Anyhow, you are doing the right things, and I'm sure he knows how mch you love him and want to help.

    So sorry you are going through this.

    ~Suz

    Taxotere

    in NSCLC GROUP

    Posted

    Try the Immodium Liquid. My dad's onc nurse said that the pill form rarely works, especially if one can't keep it down! The liquid is absorbed sooner. If it doesn't work, ask for a prescription for anti-diarrhea.

    Frequent small meals are the key to avoiding the nausea. Even just a few bites of toast or a cracker will keep something in the stomach.

    ~suz

    Elbow Pain????

    in NSCLC GROUP

    Posted

    They do not want the arm used for BP checks or IVs because the removal of lymph nodes increases the risk of lymphedema in that arm.

    If all of the veins in her "good" arm are bad, is there any reason she cannot have a port installed in her chest? It makes chemo much easier and less time-consming, provided all the nurses are trained to use a port. Even if the patient goes to the ER, the port should be accessed instead of looking for a vein. It cannot be used for CT contrast injections, though, because it cannot sustain the pressure needed for the bolus injection of contrast (or so I am told via the literature sent home with Mom).

    I would go for the port, hands down.

    ~Suz

    I need a plumber or this place is haunted

    in GENERAL

    Posted

    When I was growing up, we lived in a 40 year old house, and on occasion would get the fog horn sound. It was related to turning on a certain faucet only to a certan point - once past it, there would be no noise.

    So I agree this is likely a plumbing issue. Or maybe Mike wants you to be a third-shift person and sleep suring the day!

    ~Suz

    Mother in law is dying.

    in CAREGIVER RESOURCE CENTER

    Posted

    You may or may not see mottling of the skin in the feet & lower legs and hands. The feet and hands may feel cold to the touch.

    My dad had increasing episodes of apnea (absence of breathing), some lasting 30-45 seconds.

    Care wise, it is imperative to turn/reposition the patient every 2 hours to prevent bedsores. The skin breaks down more easily as death nears, and although they may be inevitable, prevention of bedsores is key to keeping loved ones comfortable.

    If she can't drink or swallow any longer, the little sponge-on-a-stick things (I think they are called "toothettes" here in USA) dipped in water help keep the mouth moist. Apply chap-stick frequently.

    If she's still alert, ask her if there is anyone she wants to see. As death approaches, often the patients don't really want a lot of visitors and draw their "inner circle" tighter. But if someone really has something to share with her and she does not want a visit, ask them to write a message and you can read it to her.

    Gosh, I wish you the best. This is probably the most difficult thing you will ever do, but it is the most loving act. God bless you for your courage and loving care.

    ~Suz

    brain surgery-again!

    in NSCLC GROUP

    Posted

    Lori, I can see where you get your tenaciousness from! It's so refreshing to hear someone counter a response to a doctor on so sbvious an issue, yet one that they might not be aware of or take for granted. Continutiy of the plan and the belief in the good it will bring is essential, and I for one am in awe of your ability to verbalize at the appropriate time! I uaually think of that stuff hours later.

    Bathing is such a soothing and essential thing! I remember the first shower my dad received after about 4 months. I'm sure the bath was heavenly for your mom!

    Best wishes that all goes well, and do try to get yor mom to sign durable POA and living will to YOU to be sure her wishes are carried out. You seem to be the one most likely to execute her wishes.

    God bless you for being you!

    ~Suz

    A mama update

    in CAREGIVER RESOURCE CENTER

    Posted

    Lori,

    Real nice of them to transfer your mom to the new place when they KNOW that no therapy will be done and no assessments done on the weekend! At least where she was at, she could get up on her own! Frustrating!!!

    Hope they will d/c the stool softeners. She obviously has no need for them.

    I so hope that all goes well at the new facility.

    Enjoy your birthday celebration. Party hats all around!

    ~Suz

    Getting to Know You - February 7

    in JUST FOR FUN

    Posted

    Both of our girls were adopted, but I will answer about when our eldest was finally "ours."

    After court we picked our daughter at the orphanage and returned to the hotel for a few hours of rest until taking a train back to Moscow. my husband and I sat in awe of her while she napped. We knew our lives would never be the same.

    Suz

    Martha reminder

    in GENERAL

    Posted

    Ok, so I sat through the whole thing, going through each pan of the audience...was that a brown turtleneck? ... No, but there is a pink shirt. Woops! Female, definately not Aime's bro...still looking for brown next to pink...maybe I got the colors wrong...why do they HAVE to show Barry singing anyway? Pan the audience, camerapeople!

    Shoot, I missed you! I feel like an idiot because it seems you were plain as day to everyone else.

    Anyway, I'm glad you enjoyed yourself. Now go bill some hours at work! :wink:

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