Amy P
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Posts posted by Amy P
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Paddy -
You might check again with Medicare - with the "changed" drug program they are now covering Iressa - I know when Mom got her first rx medicare pd nothing and their secondary pd for all but 20% but the past two refills medicare has paid so Mom paid nothing out of pocket. I was suprised until Elaine posted that she thought medicare was paying now and I then did some research and found that they are indeed covering Iressa. Just a thought! Best wishes to you and I hope your hubby finds some relief during this break.
Much Love,
Amy
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Amy -
My Mom had the same thing happen, onc said they didn't get a good enough tissue sample to verify the type of cancer with the bronch and she said if she ever had to do it again she would insist on the needle biopsy. You can PM me if you have any questions. Hang in there - the waiting is the worst!
Much Love,
Amy P
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Ginny -
Thanks for the update - you and Earl are in my thoughts and prayers.
Your love for each other reminds me so much of my parents and it breaks my heart that you are having to go through this. I am wishing you nothing but peace in the coming days.
I am very good at getting rid of people, so if your neighbor gives you any more guff - I'll be happy to work my magic
Much love to you and Earl!
Amy
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Tess -
I am so very sorry. Please accept my sincerest sympathies. May you find peace soon.
Much Love,
Amy
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Don -
I cannot add any words to the wise ones already posted. Please know that I will pray for you to find peace and comfort soon.
((((((((Don))))))
Much love,
Amy
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Amy -
I sure do hope you get to listen in - my Mom always appreciates having another set of ears to hear everything. I don't know if you have a feel for his oncologist but don't let your Dad get hung up on any statistics that they dr. may give - there are many, many, many cases on this board alone where the statistics haven't amounted to a hill of beans. Hang in there and whatever the news may be, remember that we will be here for you.
Best of luck tomorrow, I will be thinking of you and your family and remember to let us know what you find out!
Much Love,
Amy P
PS. this is weird - I feel like I am posting to myself
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Connie -
Glad you are back and hope you had a great vacation and thanks for the hugs - I love hugs, ask my kiddos they get tired of me hugging on them all the time
As for me, I saw the doc on Thursday and he changed my meds a little and added an anti-depressant, was a little alarmed at first but am beginning to feel the difference and I have to admit I am under a lot of stress - I always thought I was handling OK but the little blue pill is keeping me much calmer. Doc suspects I may have a vocal cord disfunction so sent me in this morning for a sinus and neck CT - should have the results next week. I still have nasty cough but doc didn't want to put me on more meds - as he put it - based on a guess. My doc is awesome and he said he would call to check on me and I will talk to him about cough then.
Thanks for thinking of me!!!!
Much Love,
Amy
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My deepest sympathies for the entire family.
Much Love,
Amy
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Peggy -
Thanks and I am actuallygoing to Dr. tomorrow. Just a bit of background for you (what snowflake and I were talking about in chat) starting with a BAD case of pnuemonia about 3 yrs ago I have had multiple cases of bronchitis and pnuemonia (including 2 bouts of pnuemonia this year). I FINALLY saw an immunologist in June who took in interest in why a normally healthy 33 yr old would have these horrible breathing problems. He says my asthma, allergies and acid reflux are all contributors and I am on so many meds it is ridiculous (more than Mom). Well as we go further down the path doc had concluded that my asthma is moderately non-responsive - meaning although I am on the maximum dosage of advair and singular I still wheeze -loud! Next step will be chest ct to check for scar tissue - which because of Mom scares the jeepers out of me but doc knows the history and has been very helpful - wish he could be my primary - he actually calls me every week to check on me
not many docs care that much!Anyway since I have rambled on - I will find out tomorrow how we will proceed and probably come home with anti-biotics and steriods
Sorry you had to get my history - I have a bad habit of giving too much information and being too detailed. I'll stop now.
Good Night and Much Love,
Amy
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Hear you there! I should be doing laundry right now for weekend trip but yet I am sitting here reading. Need sleep as well, feel like the big bad bronchitis is starting up again!
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Thanks Peggy! I have been on here so much I am finally starting to notice when someone has gone missing - don't know if that is a good thing or not
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Amy -
I can't add much to what other have said but you have come to the right place for support. My mom had been cancer free for 3 yrs and when it came back the oncologist was not offering us much hope - she wouldn't give us any time parameters but was pretty pessimistic which flowed over into me - I was very depressed until I accidentally found this site and what a great accident it has been. There is hope, love and caring and above all support, that I sometimes don't even get from my own family (with the exception of hubby!). Please feel free to PM me if you want!
Keep in touch and let us know how everyone is doing! BTW - great name!
Much Love,
Amy P
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I never imagined I would get such responses - Thank You!!!
I love reading everyone's opinions as I know that religion can be a very touchy subject! This discussion has helped me sooo much as I have always (more often recently) struggled with faith - not with the existence of God or Jesus etc for in that area I truly do believe. Where I have trouble is the theory that all sins are equal - Mom says that I need to have faith. I have real trouble understanding that telling a lie is equal to raping a small child - it defies my logic which is admittedly sometimes screwy
and I often err to the black and white (gray is hard for an accountant to see).Anyway, not trying to stir the pot but rather wanted thank you all for giving me some much needed food for thought about faith!!! You all are wonderful people and I am so fortunate to have found this site where ideas are openly shared and discussed.
BTW - I did simplify some of the posts and share some them with Audrey - she was very intrigued and promptly asked me if all people were bad luckily I could tell her about free will and making good choices...I think I need to get her back to church so someone other than me can anwer all these deep questions
I may have philosopher on my hands!!! and Lord help me then (no disrespect intended) -
If you cut off enough - not sure of the amount - you can donate your hair to locks of love...just a suggestion.
Don't know how much help I can be, I recently went from a fairly dark brown to a pretty light blond and am lovin it - so does hubby - I guess I could be fulfilling some fantasy
sorry, did not mean to digress - very tired and not feeling to good tonight. I am sure whatever you decide you will look great!Much Love,
Amy
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I haven't seen her this week...did she take a hall pass and I forgot?
Miss you Connie - hope everything is A OK!
Much Love,
Amy
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This is heartbreaking! Thank you so much for the update. Prayers will definately be said for all of you - especially for Tbone and the kids.
Much love to you!
Amy
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Peggy -
Could you print it out and tell him you liked it and see if he will read it? Others may have some better suggestions.
Much Love,
Amy
PS. It was me in chat tonight
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Mine is boring as well - first name Amy and last initial. My hubby sometimes refers to me as plucky duck and I sometimes use flybunny or curlydog from my daughter who used them to name a couple of stuffed animals. In college there were 4 other Amy's so I was always called by my last name - by EVERYONE! I too was anxious to begin using the board and wasn't being too creative!
I am scared what will stick with my daughters - audie bug, auds and squeezer for Audrey and abber, babber, babigail and babs for Abby
Thanks Debaroo for such a fun thread!!!!
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Here is a poem from Turning Point, an organization in Kansas City that helps individual deal with life altering diseases. I will include the link to the website - http://www.turningpointkc.org/sharinghope.asp
There are also some good resources on how to talk to kiddos about cancer etc. that might be helpful.
This poem will be included in a book of poems and short stories all written by survivors! Enjoy!
Well, It's Like This
Cancer came into my life when
I was most vulnerable, having loss after loss,
When I was working hard to integrate my mind, body, and spirit.
It came to me when the sun shone brightly and I was able to surrender,
When I was the strongest in the family,
When I least expected it.
Living with cancer is like
Riding a rollercoaster, dancing in limbo, walking a tightrope.
It's like waiting for the other shoe to drop,
Like a weight on my shoulders, like a heartache.
It's like university, a school for higher learning,
Where I wait for the next discovery, the unknown unfolding before me.
It's like living with a deadline reminding me to enjoy my life before it s too late.
It reminds me of
A long journey that requires stamina,
A board game with checkpoints, mile markers, a visible destination, and hidden explosions
along the way.
It reminds me of life's uncertainty, of love and hope, of a challenge, of my precious life.
Of mortality.
Cancer has brought me
More good than bad, an opportunity to prioritize, a greater appreciation of life.
It has brought me anger and fear and stress,
Hope and understanding,
Joy and more love than ever before.
It has brought self-discovery, cultivated insight, and
The ability to see my life differently.
And I have learned
More than I wanted to know about myself,
About my inner resources and about receiving support from others,
About how to live with cancer, sometimes alone.
I have learned that I am tougher than I thought,
That a cancer experience doesn't mean my life is over.
I have learned patience, forgiveness, and how to be still welcoming the calmness of spirit, to
be fully present in the moment.
To enjoy myself.
I have learned to live.
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In the car this evening my very intuative 7 yr old daughter asked me if God makes mistakes when he makes people? My youngest (5 going on 35) answered very matter of factly that she thinks he does a pretty good job. As I discussed this with my husband this evening, I realized that I didn't know how to answer. My first thought was No but then we talked about those individuals who do unspeakable things to others esp. defenseless children - could a mistake have let evil in that provoked them do those things? or is it freewill?
Just some food for thought but I am VERY interested in hearing opinions.
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Dean -
You are absolutely AMAZING!!! Your outlook on life should be copied by those who are not facing a life threatening disease and the world would be a much better place!!!! I wish you a early happy birthday with many, many more to come!
Much Love,
Amy
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I have been away since Thursday and am soooooo sorry to read about this. While I have never talked with any of you - I feel I know you. I have been thinking about Tbone all weekend. During this terrible time please find comfort and strength in each other.
Warm thoughts and prayers coming your way - for all of you.
Thinking of you and I too am hoping for a miracle!
Amy
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Too Funny - especially since I am a Mizzou fan living amongs the many rabid KU/K-State fans!
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Rich posted this in LC news but I wanted to make sure everyone saw this.
The Kansas City and the cancer community lost a great warrior today when Richard Bloch passed away
. For those of you who don't know who he is, please read his biography - what an amazing man who truly believed that cancer is not a death sentence. He was dx in 1978 with terminal lung cancer and given 3 months to live - he died today from natural causes after beating not only lung cancer but colon cancer as well.Link to Biography
http://www.hrblock.com/presscenter/about/rbloch.jsp
Link to Bloch Cancer Center
He will always be a hero
sorry, did not mean to digress - very tired and not feeling to good tonight. I am sure whatever you decide you will look great!
Jane's In Memory of link is now implemented
in GENERAL
Posted
Jane-
What a wonderful way to remember your brother. You are a special person and great sister.
Much Love,
Amy