Amy P
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Posts posted by Amy P
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Kim -
I am so glad you found this wonderful place (I think I posted to you on the Yahoo group). These are by far the most knowledgeable, compassionate group people around. They will be your biggest cheerleaders and pick you up when you are down. I don't post much but read EVERYTHING and I can say without a doubt you are in the right place to help your mother as well as yourself.
As someone told me when I first joined, welcome to the club that nobody wants to be in.
Much Love,
Amy
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Elaine -
My Mom is taking Iressa without ever having done chemo or radiation. Her doc didn't even question her when she chose that as her first line vs. radiation (chemo not really discussed).
On another note, a guy I work with was able to get the drug Co to foot the bill for his mother-in-law who was retired and had no other insurance but medicare (who won't cover it). They had to submit some paperwork - proof of income etc but they paid for as long as she was on it (9 months). I would be more than willing to contact him for you if you want more information! Just let me know.
Much Love,
Amy
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A little old lady had always wanted to join a local biker club.
One day she goes up and knocks on the door. A big, hairy, bearded biker with tattoos all over his arms answers.
She proclaims, "I want to join your club."
The guy was amused, but says she needs to meet certain biker requirements in order to join.
The biker asks, "Do you have a motorcycle?"
The little old lady replies, "Yep... my bike's parked over there", and points to a Harley in the driveway.
The biker asks, "Do you drink?"
"Yep... drink like a fish. I'll drink any man in your club under the table."
"Do you smoke?"
The little old lady replies, "Yep... smoke like a chimney. At least 4 packs of cigarettes a day and a couple of cigars in the evening, while I'm shooting pool."
The biker is very impressed and asks, "Last question. Have you ever been picked up by the fuzz?"
The little old lady thinks for a minute and says,............
"Nope ... but I've been swung around by my nipples a few times."
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Too Funny!!!! Thanks for sharing (maybe
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Frank -
LOL - It sounds like you and my husband would get along well!
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Dolly -
My Mom has the same thing, she said she just doesn't feel like eating and usually eats a small breakfast and small dinner but not much more than that. She isn't losing much, if any, weight. Her doc doesn't seem to concerned as long as she doesn't start losing a lot of weight.
Interesting note, mom's oncologist is on the FDA committe that is studying the response to Iressa as well as the side effects. Since she is not to concerned, I try not to let myself be either (try being the key word).
I hope you husband is responding and this proves to be the silver bullet!
Love,
Amy
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I may have a warped sense of humor but I was almost crying when I got done reading this one!
Notes From An Inexperienced Chili Taster Named FRANK, who was
visiting Texas from the East Coast: "Recently I was honored to be selected as an outstanding Famous celebrity in Texas, to be a judge at a chili cook-off, because no one else wanted to do it. Also the original person called in sick at the last moment, and I happened to be standing there at the judge's table asking directions to the beer wagon when the call came. I was assured by the other two judges (Native Texans) that the chili wouldn't be all that spicy, and besides they told me I could have free beer during the tasting, so I accepted.
>
Here are the scorecards from the event:
Chili # 1: Mike's Maniac Mobster Monster Chili
JUDGE ONE: A little too heavy on tomato. Amusing kick.
JUDGE TWO: Nice, smooth tomato flavor. Very mild.
FRANK: Holy shi_, what the hell is this stuff? You could remove dried
paint from your driveway with it. Took me two beers to put the flames
out. Hope that's the worst one. These Texans are crazy.
Chili # 2: Arthur's Afterburner Chili
JUDGE ONE: Smoky, with a hint of pork. Slight Jalepeno tang.
JUDGE TWO: Exciting BBQ flavor, needs more peppers to be taken
seriously.
FRANK: Keep this out of reach of children! I'm not sure what I am
supposed to taste besides pain. I had to wave off two people who
wanted to give me the Heimlich maneuver. They had to walkie-talkie in 3
extra beers when they saw the look on my face.
Chili # 3: Fred's Famous Burn Down the Barn Chili
JUDGE ONE: Excellent firehouse chili! Great kick. Needs more beans.
JUDGE TWO: A beanless chili, a bit salty, good use of red peppers.
FRANK: Call the EPA, I've located a uranium spill. My nose feels like
have been snorting Drano. Everyone knows the routine by now.
Barmaid pounded me on the back; my backbone is now in the front
part of my chest. I'm getting shi_-faced.
Chili # 4: Bubba's Black Magic
JUDGE ONE: Black bean chili with almost no spice. Disappointing.
JUDGE TWO: Hint of lime in the black beans. Good side dish for fish or
other mild foods, not much of a chili.
FRANK: I felt something scraping across my tongue, but was unable to
taste it. Sally, the barmaid, was standing behind me with fresh
refills; that 300 lb. witch is starting to look HOT, just like this nuclear
waste I'm eating.
Chili # 5: Linda's Legal Lip Remover
JUDGE ONE: Meaty, strong chili. Cayenne peppers freshly ground,
adding considerable kick. Very impressive.
JUDGE TWO: Chili using shredded beef; could use more tomato. Must
admit the cayenne peppers make a strong statement.
FRANK: My ears are ringing, and I can no longer focus my eyes. I
farted and four people behind me needed paramedics. The contestant seemed offended when I told her that her chili had given me brain damage. Sally saved my tongue from bleeding by pouring beer directly on it from a pitcher. It really pisses me off that the other judges asked me to stop screaming. Screw those rednecks!
Chili # 6: Vera's Very Vegetarian Variety
JUDGE ONE: Thin yet bold vegetarian variety chili. Good balance of
spice and peppers.
JUDGE TWO: The best yet. Aggressive use of peppers, onions, and
garlic. Superb.
FRANK: My intestines are now a straight pipe filled with gaseous,
sulfuric flames. No one seems inclined to stand behind me except
that slut Sally. I need to wipe my *ss with a snow cone.
Chili # 7: Susan's Screaming Sensation Chili
JUDGE ONE: A mediocre chili with too much reliance on canned peppers.
JUDGE TWO: Ho Hum, tastes as if the chef literally threw in a can of
chili peppers at the last moment. I should note that I am worried
about Judge Number 3. He appears to be in a bit of distress as he is
cursing uncontrollably.
FRANK: You could put a grenade in my mouth, pull the pin, and I
wouldn't feel a damn thing. I've lost the sight in one eye, and the world
sounds like it is made of rushing water. My shirt is covered with chili
which slid unnoticed out of my mouth. My pants are full of lava-like shi_ to match my damn shirt. At least during the autopsy they'll know what killed me. I've decided to stop breathing, it's too painful. Screw it, I'm not getting any oxygen anyway. If I need air, I'll just suck it in through the 4-inch hole in my stomach.
Chili # 8: Helen's Mount Saint Chili
JUDGE ONE: A perfect ending, this is a nice blend chili, safe for all,
not too bold but spicy enough to declare its existence.
JUDGE TWO: This final entry is a good, balanced chili, neither mild
nor hot. Sorry to see that most of it was lost when Judge Number 3
passed out, fell and pulled the chili pot on top of himself. Not
sure if he's going to make it. Poor Yank.
FRANK:
--------------(editor's note: Judge #3 was unable to report)
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These are answers taken from child support forms - #11 is a classic
01. Regarding the identity of the father of my twins: child A, was fathered by Jim Munson. I am unsure as to the identity of the father of child B, but I believe that he was conceived on the same night.
02. I am unsure as to the identity of the father of my child as I was being sick out of a window when taken unexpectedly from behind. I can provide you with a list of names of men that I think were at the party if this helps.
03. I do not know the name of the father of my little girl. She was conceived at a party for NASCAR drivers where I had unprotected sex with a man I met that night. I do remember that the sex was so good that I fainted. If you do manage to track down the father can you please send me his phone number? PS: I think his car color was black and white. Thanks.
04. I don't know the identity of the father of my daughter. He drives a Chevrolet pickup that now has a hole made by my Hi-heels in one of the door panels. Perhaps you can contact local Chevrolet dealers in this area and see if he's had it replaced.
05. I have never had sex with a man. I am awaiting a letter from the Billy Graham confirming that my son's conception was immaculate and that he is Christ risen again.
06. I cannot tell you the name of child A's dad as he informs me that to do so would blow his cover and that would have catastrophic implications for the economy in the South. I am torn between doing right by you, and right by the state. Please advise.
07. I do not know who the father of my child was as all Rednecks look the same to me. I can confirm that he was a wearing a T-shirt with a Coors logo on it.
08. Peter Smith is the father of child A. If you do catch up with him can you ask him what he did with my AC/DC CDs?
09. From the dates, it seems that my daughter was conceived at Disney World in Florida- maybe it really is the Magic Kingdom.
10. So much about that night is a blur. The only thing that I remember for sure is Mrs. Smith did a program about eggs earlier in the evening. If I'd have stayed home and watched more TV rather than going to the party on the beach, mine might have remained unfertilized.
11. I am unsure as to the identity of the father of my baby, after all when you eat a can of beans you can't be sure which one made you fart.
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Hoping Rob is painfree soon. I am hoping for strength for you and your family over the coming days - thoughts and prayers are definately with you.
Much Love,
Amy
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I am very sorry for your loss. Love and prayers coming your way.
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I love this one!!! Hubby did not find it nearly as amusing
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YEAH for Dad!!! Great to hear that he is feeling so good!!!
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This morning I told my 7 year old daughter that we are going to a soccer game (Wizards) tonight to which she replied "I will only go if we can visit the confession stand" I am still chuckling.
THanks for letting me share!
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Hoping for a speedy recovery for Charlie! and please take care of yourself as well!!!
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Thanks to all for your replies - I was just worried that we aren't being proactive enough with the scans. I personally believe that anyone with cancer should have full body scans every 6 months - I am sure insurance Co's wouldn't agree but it sure would make me feel better
As for Mom, it turns out that she does have a blood clot (phew) and just as Tina said started the injections of herceptin (sp) every 12 hours for 3 days and then they will switch her to cumodin. I wasn't able to to to this appt because Mom & Pop live an hour away and went to local NP for this so I was a little nervous that they didn't get the whole story but it sounds like they did. Thanks for helping to ease my fears!
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My Mom has the rash as well - doc told her to take benedryl and it is helping although she can only take 1/2 tab to keep the sleepies away. For her head I gave her a mosturizing treatment and filled a shot glass full of hair conditioner and then heated it in the microwave for 30 sec, put it on her hair and wrapped her head in a warm damp towel and left it on for about 20 min and that helped seemed to help her scalp - she also had a mosturizing treatment at a salon - maybe it was the combination. Hope he finds some relief!!!
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Cat -
Thanks for posting that. My Mom and I have come to an agreement to disagree on church. I don't particularly care for organized religion and it drives her bananas. She has told me her dying wish is for me and my family to begin attending church - now as you will see from my signature - she is nowhere close to dying and I told her I thought it was unfair for her to put that kind of pressure on me and THEN she asked her pastor to talk to me - I about died having to defend myself but I did and I told Mom to butt out, that this is a personal decision. This just helps me realize that I am not a sinner because I pray at home in bed at night, alone with my own thoughts.
Thanks Again!
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Pam -
I see you are in Independence -I am in OP. I am wondering who your Dad's oncologist is? Where is he being treated? This is atrocious treatment and I want to help spread the word to avoid this hospital. Are there any other dr.'s he can see or is he limited (I noticed in one of your posts that you can't take him back unless he is acute)? My Mom has had nothing but good experiences and if I can help in anyway - please let me know!!!
Thinking of you and your family!
Amy
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I have a couple of general treatment questions that I know you all will know the answer to....
1) Are bone scans done only when there is pain? Mom has been experiencing some leg pain since returning from their trip - she attributes it to sitting on their trip but I am not so sure. It is primarily around her knee - in the joint. She went to see a nurse practioner (who is her GP) and she is sending her to get tested for blood clots...which leads to
2) Are blood clots a side effect of Iressa? or of LC in general?
3) Are CTs normally done just of the chest or upper body - esp in the case of recurrance? Mom is having a chest CT in late Aug and since we know the cancer is in the lmpyh nodes should the doc be checking to make sure there aren't any mets to the brain or do they again wait until symptoms are present?
Thanks in advance!
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Ginny -
Love and hugs coming your way and hoping for peace for Earl - he has fought a valiant fight with you by his side. How lucky the two of you are to have each other.
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When my mother-in-law was dying, we had to tell our kiddos (ages 5 & 4) because I did not want to them to be suprised and I also wanted them to have a chance to say good bye - we told them that when Nonna died that she wouldn't be in pain anymore and that she would look like she did before she got sick - my very insightful oldest child said she would be peaceful, like when she sleeps. Later that night when I called to talk to Nonna and I told her the girls knew and what Audrey said - her response was that is all I want - peace.
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Curtis -
I live in the KC metro area - what are you here for? There is some fun stuff going on this weekend - let me know and I can filll you in!
My MIL passed away almost 2 years ago from Ovarian Cancer and my beloved FIL has just started to date again - he is a great man and has a lot of insight and having been through the ordeal of losing his spouse and best friend, I am sure he would be willing to visit with you. I have found him to be a great source of support with my Mom. PM me and I can pass on his info.
PS. he is going back to school to get his master in counseling and wants to councel families of cancer patients
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Don -
I know others before me have said it but your Mother is so lucky to have you to take care of her. You are an amazing son and caregiver. I only hope that if my mother declines that I will be half the caregiver that you are. Hang in there, take care of yourself and I hope everything goes well with her treatments.
Sending pizza and prayers your way!
Amy
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Dean -
I have spent most of my time on this sight just reading and taking everything in and your posts are always of great interest to me - your wonderful positive outlook on life (and life with cancer) reminds me so much of my Mom.
I am sending warm comforting thoughts and prayers your way as you deal with these symptoms.
Amy
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Co-Founder of H&R Block Dies at 78 (Richard Bloch)
in LUNG CANCER IN THE NEWS
Posted
http://www.hrblock.com/presscenter/about/rbloch.jsp
Here is the link from HR Block website via the Kansas City Star - our hometown cancer hero. His first cancer survivor park is in KC and is beautiful - a peaceful place, if you ever get the chace to see one, please do. Mr. Block has touched many many lives. I got to meet Mr. Block a couple of years ago (hubby coaches high school soccer and coached 2 of his grandkids) when my MIL was battling ovarian cancer - what an amazing man. The cancer community lost a great warrior today