NikoleV
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Posts posted by NikoleV
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This opportunity is still available. Center for Information & Study on Clinical Research Participation (CISCRP) would be grateful for any assistance you can provide by completing this short survey.
If you complete the survey, you can enter a raffle for a chance to win a $50 Amazon gift card.
Complete the survey here: https://survey.alchemer.com/s3/7772279/Lung-Cancer-Survey-Part-II-Lungevity
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Our Caregiver Connection virtual meetup is tomorrow!
If you have a friend or family member living with lung cancer, connect with other caregivers to get tips, share stories, and get support. This virtual meetup gives everyone a chance to talk and listen during a moderated Zoom with others going through a similar experience. Register: https://us06web.zoom.us/meeting/register/tZIodumpqDIoGdCqQYdf0poqUYCX791azl54#/registration
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Advocacy Opportunity:
Share your experiences with lung cancer by completing this survey – responses will help CISCRP (an independent non-profit organization) better understand meaningful aspects of health for lung cancer patients. If you complete the survey, you can enter a raffle for a chance to win a $50 Amazon gift card.Complete the survey here: https://survey.alchemer.com/s3/7772279/Lung-Cancer-Survey-Part-II-Lungevity
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ASTRIDE: A Randomized, Open-label Study of Serplulimab Plus Chemotherapy (Carboplatin-Etoposide)
More info here: https://www.lungevity.org/for-patients-caregivers/navigating-your-diagnosis/participate-in-research/featured-clinical-trialsContact:
Marshika Vickers
Phone Number: 510-473-2872
Email: marshika_vickers@henlius.comASTRIDE: A Randomized, Open-label Study of Serplulimab Plus Chemotherapy (Carboplatin-Etoposide) in Comparison With Atezolizumab Plus Chemotherapy in Previously Untreated US Patients With Extensive Stage Small Cell Lung Cancer (ES-SCLC)
This is a study to learn the effects of the study drug plus chemotherapy on ES-SCLC, compared with atezolizumab combined with chemotherapy. Atezolizumab combined with chemotherapy (etoposide + carboplatin) was approved by the Food and Drug Administration (FDA) in March 2019 in the treatment of ES-SCLC.
Who can participate?
This study is for adults who:
Are 18 years of age and older
Have been diagnosed with ES-SCLC
Have NOT already received treatment for ES-SCLC
Note: If you have received chemotherapy for limited-stage SCLC, it must have taken place more than 6 months before starting this study.
Other criteria also apply. -
"Our goal is to use T cell engineering to stop DTPCs from growing and ultimately prevent the development of drug resistance in patients who are living with EGFR-positive lung cancer. This would improve not only the duration of their lives, but also the quality."
Read our interview with Dr. Alexandre Reuben as he discusses using T cells to tackle drug resistance in EGFR+ lung cancer.
https://www.lungevity.org/blogs/using-t-cells-to-tackle-drug-resistance-in-egfr-lung-cancer
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FDA Approves New Treatment Option: Osimertinib Plus Chemotherapy for EGFR+ NSCLC
The US Food and Drug Administration (FDA) approved a new treatment option for people diagnosed with locally advanced or metastatic non-small cell lung cancer (NSCLC) whose tumors have EGFR exon 19 deletions or exon 21 L858R mutations.
Prior to this approval, treatment with osimertinib alone was the gold-standard targeted therapy for this population. The recent approval offers another option to patients – the combination of osimertinib with chemotherapy. Learn more about this new approval by visiting https://bit.ly/49vGwej
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I was moderating a LUNGevity virtual meetup yesterday and there was great conversation about food choices while being in treatment. The group recommended the ACS website for healthy eating tips. Do you find convenience in eating out or just enjoy eating out every now and then? Here's a good article with Tips for Eating Out.
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Do you have questions about Proton Therapy for lung cancer? Join our virtual meetup on Tuesday, February 27, at 12:00 pm EST as we explore proton therapy for lung cancer treatment.
Special guest, Amber Vellenga, RN, BSN from Sibley Memorial Hospital, Johns Hopkins Medicine Proton Therapy Center will lead the discussion on the topic and answer questions.
Register for free by visiting: https://us06web.zoom.us/meeting/register/tZUqceGvqj0pGtHDC_OJD-PrFGmQ2AY6MniJ#/registration
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The Lung Cancer Patient Gateways are each specialized for your type of lung cancer. Visit the Small Cell Lung Cancer Gateway to watch our latest 101 video with Dr. Lauren Byers. https://sclc.lungevity.org/small-cell-lung-cancer-101
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What is the HOPE Summit?
The HOPE Summit is the annual conference for lung cancer patients, survivors, and caregivers to connect and learn. This year, we will gather in Atlanta May 3-5 to come together as a community and share the latest in living well with lung cancer. Bring the kids, there will be activities for school aged children throughout the day on Saturday!Ready to register for free? Visit www.lungevity.org/hopesummit24
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Don't miss this virtual webinar, March 8! Register here: http://www.lungevity.org/learn-uchicago
Agenda:
1:30 - 1:35 pm Welcome remarks and introduction
1:35 - 2:25 pm Speakers - introduced by Marina Chiara Garassino, MD
Rajat Thawani, MBBS - Importance of biomarker testing, when it should be done, what's the ultimate type of testing
Jacobi Hines, MD – Immunotherapy for patients who will have surgery
Maria Lucia Madariaga, MD – Prehab prior to surgery
Aditya Juloori, MD - Combination XRT and Immunotherapy
2:25 - 2:50 pm Q&A - moderated by Jessica Donington, MD, MSCR
2:50 - 2:55 pm Overview of LUNGevity programs
2:55 - 3:00 pm Closing remarks
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Learn with LUNGevity and UChicago Medicine! Hear from internationally recognized experts about the latest in lung cancer treatment and ways to navigate your diagnosis.
Learn about vital support programs and resources offered by LUNGevity Foundation and UChicago Medicine Comprehensive Cancer Center at a virtual lung cancer education event.
This free virtual event will be held via Zoom, registration is required.
Register and view the agenda here: https://www.lungevity.org/learn-uchicago
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Happy Friday Everyone! How are we feeling this week? Any updates to share?
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Please share your biomarker testing experience so we can learn and develop programs that help to create positive testing experiences for people living with and being treated for non-small cell lung cancer across the world. Take the short survey here: https://survey.eu.qualtrics.com/jfe/form/SV_4YLfkmraOzYx9Gu
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Not affiliated with LUNGevity, passing along for anyone interested.
UAB School of Nursing, The University of Alabama at Birmingham
See attached flyer for details and contact information.
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Join LUNGevity and Johns Hopkins Kimmel Cancer Center today to get your questions about biomarker testing, lung cancer treatment options, and clinical trials answered. Register for free for the Ask the Experts Zoom Webinar. https://bit.ly/3uWuKKC
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Are you living with KRAS lung cancer in the Dallas-Fort Worth or surrounding area? Join us for Hope and Progress for KRAS Lung Cancer on January 20th for a free, in person event. Registration is now open.
Visit https://www.lungevity.org/hopeandprogressdfw for more information and to register. We hope to see you there!
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LUNGevity is thrilled to announce registration for the 2024 HOPE Summit is now open!
The conference for lung cancer patients, survivors, and caregivers will take place May 3-5 in Atlanta, Georgia. Join us and learn how to manage and navigate aspects of everyday life with lung cancer while building your community of support.
Learn more and register for free by visiting https://shorturl.at/hCHI1
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Caregiver Spotlight: Bill
November is #NationalCaregiversMonth and we will be spotlighting a different caregiver each week. Our first Caregiver Spotlight is Bill, husband to Betty who has been living with lung cancer for over 6 years.
Bill says, "My wife is a 6+ year survivor and recently, when talking to some people about her cancer and my role as Caregiver, she highlighted that whenever I talk about her cancer I use the word "we". "We" get infusions, "we" go get scans, "we" need prescriptions filled, "we" need to schedule follow-ups, “we have questions for the doctor”, “we” need to go to the ED, that sort of thing. To me, using “we” when talking about the cancer is not a conscious or intentional thing, but instead completely normal and intuitive as Betty is not alone as a cancer patient as it impacts our family on a daily basis. My role as Caregiver is that of a partner in the disease and "we" tackle it together."
Thank you, Bill, for sharing your experience as a caregiver with us. If you are caring for someone living with lung cancer, visit the Caregiver Resource Center for support services, resources, and other helpful information. lungevity.org/caregivers
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November is also National Caregivers Month! Join us on Thursday, November 16th for our Caregiver Connection virtual meetup with special guest speaker, Michelle Bolden (Call For Caring Inc), to discuss Planning the Self Care Journey for Caregivers. Sign up for free by visiting http://lungevity.org/events
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Join us today in partnership with Cancer Support Community, November 1 at 6:00 PM ET, for a FREE webinar on Understanding Clinical Trials: providing cancer patients and their loved ones with the tools, knowledge, and confidence needed to understand and make decisions about clinical trials.
This program was made possible with generous support by Merck and in partnership with LUNGevity, Living Beyond Breast Cancer, and Colorectal Cancer Alliance.
Register here: bit.ly/UnderstandingClinicalTrialsWebinar
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Join us tomorrow! You can find encouragement, valuable information, and true friendship at our virtual meetups.
EGFR virtual meetup happens the 1st Wednesday of each month, 12 pm ET / 11 am CT / 9 am PT
Register in advance for this meeting: https://us06web.zoom.us/meeting/register/tZ0kd-6srjopHNMCLxI8m53JQu9JqSYoPF8C#/registration
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Join from Anywhere: This event is free, but registration is required; you will get the Zoom link by email after you register.
For the Atlanta Community: Join us at a free watch party to view the webinar in real time and meet other local people affected by lung cancer. Lunch will be served. Watch parties are happening at Cancer Support Community Atlanta and Piedmont West.
For more information and to register, visit: www.lungevity.org/hopeandprogress
Contact hope@lungevity.org with questions
HOPE Summit 2024: May 3-5, 2024 Courtland Grand Hotel, Alanta, GA
in CONFERENCES
Posted
Are you joining us in Atlanta May 3-5 for HOPE Summit? Saturday night is looking like lots of fun! From 7:15-9:15pm you'll be able to choose from the following activities:
Sip and Paint with The White Ribbon Project: Join founders Heidi and Pierre Onda for a meaningful “Sip and Paint” session. Complete a ribbon for yourself to keep, give to someone else, bring to your community, or make available for someone newly diagnosed. Check your email for the RSVP link for this event.
Improv Your Life with Sheryl Katzovitz: Join Sheryl— a medical training coordinator, seasoned theater performer, Atlanta native, and devoted mom and grandma— as she leads you through a series of fun games and exercises to expand your creativity and bring your playful side out of hiding! Zero theater experience required, just a willingness to try something new and be in the moment.
Fun Zone with Epic Experience: Hosted by an organization that empowers adult cancer thrivers and survivors to live beyond cancer. Enjoy games such as Rumikub, cornhole, and Umali.
Having a difficult time deciding? Don't worry, you'll have enough time to check out all of the activities! Learn more about the HOPE Summit Agenda and register for free by visiting lungevity.org/HopeSummit24