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NikoleV

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  1. Visit our website to register: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups

     

    LUNGevity hosts weekly Virtual Meetups for patients, survivors, caregivers, and friends and family members of people with lung cancer to virtually connect face-to-face with others across the country. Whether you are new to your diagnosis or have been navigating the disease for many years, you can find encouragement, valuable information, and true friendship at our Virtual Meetups.

    LUNGevity’s Current Virtual Meetup Lineup
     
    Tuesday General Meetup: 12 pm ET | 11 am CT | 9 am PT
    For patients/survivors
    General meetup for those impacted by lung cancer
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    Wednesday Oncogene Groups
    Oncogene specific meetups

    EGFR - 1st Wednesday 12 pm ET / 11 am CT / 9 am PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    Rare Mutation (RET, ROS1, MET, BRAF) – 1st Wednesday 3 pm ET / 2 pm CT / 12 pm PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    No Mutation – 2nd Wednesday 12 pm ET / 11 am CT / 9 am PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    KRAS – 3rd Wednesday 12 pm ET / 11 am CT / 9 am PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    SCLC – 3rd Wednesday 3 pm ET / 2 pm CT / 12 pm PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    ALK – 4th Wednesday 12 pm ET / 11 am CT / 9 am PT
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

    Thursday Caregiver Connection (4th Thursday of the month): 8 pm ET | 7 pm CT | 5 pm PT
    For caregivers, family & friends
    You don’t need to take on caregiving alone. Connect with others who share common experiences and build your community of fellow caregivers.
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting. 

    Thursday Happy Hour (3rd Thursday of the month): 6:30 ET | 5:30 CT | 3:30 PT
    For patients/survivors
    General meetup for those impacted by lung cancer
    Register in advance for this meeting
    After registering, you will receive a confirmation email containing information about joining the meeting.

     

    Please note that meetups will not be held on holidays and during LUNGevity office closures. Contact support@lungevity.org for more information.

    Please visit the LUNGevity calendar to learn more about special meetups and expert speakers. https://www.lungevity.org/events

  2. The LUNGevity Patient Gateways are the resource for your specific type of lung cancer.
    With information, news, videos, and communities just for your type of lung cancer, you can quickly and easily find everything you need to live well in one place.

    Visit www.gateway.lungevity.org to find your Patient Gateway.

    Gateways.jpg

  3. Registration now open!

    The International Lung Cancer Survivorship Conference is bringing the world's leading lung cancer experts directly to you September 22-23, 2023.

    This free virtual conference is your opportunity to get special access to the top researchers, clinicians, and healthcare providers in the lung cancer space. Connect with others living with your type of lung cancer in breakout sessions and get your questions answered by experts.

    Learn more and register here: www.lungevity.org/ilcsc

    ILCSC 2023.jpg

  4. https://www.lungevity.org/news/media-releases/lungevity-launches-early-lung-cancer-center-to-accelerate-early-diagnosis-and

     

    LUNGevity Launches Early Lung Cancer Center to Accelerate the Early Diagnosis and Treatment of Lung Cancer
    Driving a multitude of lung cancer early detection initiatives allows more people to be diagnosed earlier when the disease is more treatable
    FOR IMMEDIATE RELEASE
    Media Contact
    Linda Wenger
    lwenger@LUNGevity.org
    (973) 449-3214

    WASHINGTON, DC (August 1, 2023) – LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, today announced the launch of its Early Lung Cancer Center (ELCC). The ELCC was created to accelerate the development and broad adoption of early detection and treatment options so people diagnosed with lung cancer have the best chance for long-term survival and a better quality of life.

    Lung cancer is the leading cause of cancer deaths in the United States, and the global burden of lung cancer is expected to continue to grow over the next 20 years. Approximately 80% of patients are diagnosed in the late stage, when the disease has progressed and mortality is high. By shifting most diagnosed cases earlier, survival and quality of life are improved. After decades of research, advances in therapeutics and detection methods are simultaneously enabling us to dramatically improve survival outcomes for people diagnosed with lung cancer. The Early Lung Cancer Center will help accelerate this progress.

    “The LUNGevity Early Lung Cancer Center is a multifaceted effort to improve lung cancer survival by making early detection and early disease management the norm. We are looking forward to working with our Center’s External Advisory Board, partners, and stakeholders to improve rates of lung cancer screening, establish and standardize incidental nodule programs, and leverage emerging technologies and research for the early detection and treatment of lung cancer,” explained Leah Fine, vice president of the LUNGevity Early Lung Cancer Center.

    Key opportunities for the ELCC include:

    Screening — Only 6% of the eligible population in the United States is being screened for lung cancer. The ELCC will utilize policy initiatives, patient-focused research, and educational programs to increase the uptake of lung cancer screenings.
    Incidental pulmonary nodules (IPN) — Nearly five million people have chest CT imaging (not for lung cancer screening) in the United States, with close to 40% of scans showing an incidental finding. Appropriate follow-up for these patients occurs just 30% of the time. The ELCC will work with health systems and researchers to implement and standardize IPN workflows for follow-up care for these patients.
    Early-stage therapeutics — The ELCC will ensure that patients have access to recently approved therapies by working through legislative policy and healthcare provider education.
    Emerging technologies — The ELCC is supportive of the development of new technologies, such as blood-based cancer detection tests or artificial intelligence for radiology, that, when proven, can expand access and work in tandem with existing protocols to detect lung cancer earlier.
    The ELCC’s External Advisory Board is composed of key opinion leaders to help guide and drive the transformation of lung cancer to a disease that is diagnosed and treated in the early stages when it is the most curable.

    “Early detection is key to improving lung cancer mortality,” said Nabil Chehab, Medical Franchise Head, Lung Cancer at AstraZeneca. “Diagnosing the disease at the earliest stage is core to our ambition. Supporting LUNGevity Foundation is another important step in advancing our mission to eliminate cancer as a cause of death.”

    “For more than a decade, LUNGevity has fostered early detection through policy work, translational research projects, and patient education efforts,” said Andrea Ferris, LUNGevity’s president and CEO. “The goal of the Early Lung Cancer Center is to strategically amplify those efforts, while building synergies with our partners, to create a world where no one dies of lung cancer.”

    LUNGevity thanks AstraZeneca for being a Founding Sponsor of this initiative. We are grateful for the leadership support of the Thomas G. Labrecque Foundation, the Stern Family, the Family and Friends of Meenakshi Ponnusamy, and the Pomerance and Berl Families.

    For more information about LUNGevity's Early Lung Cancer Center, visit www.lungevity.org/early-lung-cancer-center.

  5. https://www.lungevity.org/news/media-releases/lungevity-foundation-welcomes-leah-fine-mba-to-organization

     

    Leah will spearhead several of LUNGevity’s early lung cancer initiatives, bringing her expertise in oncology early detection, precision medicine, and multidisciplinary care to the role.

    FOR IMMEDIATE RELEASE

    Media Contact

    Linda Wenger
    lwenger@LUNGevity.org
    (973) 449-3214

    WASHINGTON, DC (May 10, 2023) – LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, is pleased to welcome Leah Fine, MBA, as the vice president of its soon-to-be-launched Early Lung Cancer Center. LUNGevity takes a holistic approach to accelerate early detection and early disease management through research, public policy, health equity, and lung cancer awareness initiatives. Together, these areas of focus translate to earlier detection, diagnosis, and disease intervention.

    “LUNGevity has been investing in research to detect early lung cancer for over 10 years, including a significant partnership with StandUp2Cancer and the American Lung Association, to understand what precipitates a normal cell turning cancerous. Our myriad of other efforts, including public policy and regulatory reform and screening awareness, complement our research strategy to ensure all people have access to scientific advancements so we can transform lung cancer,” shares Andrea Ferris, president and CEO of LUNGevity. “Leah’s extensive experience in program development and patient impact combined with her deep knowledge of lung cancer will expand and enhance our focus on early lung cancer, allowing us to create an even greater impact.”

    Leah Fine earned her bachelor of science in biology and journalism from George Washington University and later earned her MBA from the Berkeley Haas School of Business. Leah has a background in nonprofit and for-profit settings, where she gained experience in business development, strategic marketing, and program development and implementation in the healthcare space. These experiences provided insight into oncology early detection, precision medicine, and multidisciplinary care. Leah comes to LUNGevity from GO2 For Lung Cancer, where she oversaw the Center of Excellence Program.

  6. LUNGevity is sharing a survey request from the Society for Immunotherapy of Cancer (SITC). SITC is conducting a survey of the patient community, the results of which will be used to inform the society’s strategic plan. The society is hopeful that patients will provide input on their experience with immunotherapy. SITC would be most appreciative of your time and expertise to complete the survey linked here. They estimate the survey to take 25 mins or more. 

    SITC is a 501(c)(3) not-for-profit medical professional society of influential research scientists, physician scientists, clinicians, patients, patient advocates, government representatives and industry leaders dedicated to improving cancer patient outcomes by advancing the science and application of cancer immunotherapy. 
     

  7. See you tonight for our Caregiver Support Group!

    Thursday Caregiver Connection (4th Thursday of the month): 8 pm ET | 7 pm CT | 5 pm PT
    For caregivers, family & friends
    You don’t need to take on caregiving alone. Connect with others who share common experiences and build your community of fellow caregivers.
    Register in advance for this meeting: https://us06web.zoom.us/meeting/register/tZIodumpqDIoGdCqQYdf0poqUYCX791azl54#/registration
    After registering, you will receive a confirmation email containing information about joining the meeting.

  8. Have you ever heard of an ADC or antibody drug conjugate? This is a new style of targeted medicine for people living with lung cancer. We have a 2 question survey to get a sense about what patients and caregivers have heard, if anything, about ADCs.  This survey is for a medical education program for oncologists that we are partnering on with PeerView Oncology. If you have an extra minute, we would LOVE to have your input.

    https://www.surveymonkey.com/r/SNBFDVS

  9. **Please respond by Friday, June 2.

    Have questions about a new type of targeted medicine called “antibody-drug conjugates” or “ADCs”? 


    LUNGevity is partnering with PeerView Oncology to host medical education for providers on ADCs. The input from the patient survivor community on this new area of lung cancer care is VERY important to give to providers as part of the medical education. We would LOVE your feedback on this 2 question survey to help us and providers know how much the patient survivor community has heard and where more information is needed. 


    https://www.surveymonkey.com/r/SNBFDVS
     

  10. Reminder: a relaxing evening of stretching the mind and body is happening tomorrow at a Virtual Coffeehouse from 5:30-6:30 PM ET. Participate in a guided meditation and some gentle stretching to relieve stress, help balance your emotions, and lift your mood. Then enjoy connecting with friends and meeting others in the lung cancer community over conversation.

    Register here: https://smithcenter.org/programs-retreat/coffee-house-lungevity-04-26/

    Coffeehouse event 2.jpg

  11. There are so many ways to connect and learn virtually this week! Virtual meetups for people living with lung cancer and caregivers. A virtual coffeehouse and a Facebook Live.

    Sign up for the Tuesday, Wednesday and Thursday meetups here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups

    Virtual Coffeehouse this Wednesday: https://smithcenter.org/programs-retreat/coffee-house-lungevity-04-26/

    Facebook Live this Wednesday: https://www.facebook.com/events/1579733965850101

    April 24 weekly zoom.jpg

  12. LUNGevity is excited to announce Jill Feldman, lung cancer patient and advocate, as a speaker at the 2023 HOPE Summit May 5-7, in Rockville, MD. 


    Jill will be speaking during the session "Lung Cancer Makes No Execptions: Responding to Stigmas and Inequities."


    When Jill was 13 years old, she lost her dad and two grandparents to lung cancer. Then her mom and close aunt died of lung cancer when she was in her 20’s. In 2009, at 39 years old with four small children, Jill herself was diagnosed with EGFR positive lung cancer.


    Jill is committed to understanding and promoting patient-centered research as Chair of IASLC’s patient advisory board, member of the programmatic panel for the Department of Defense Lung Cancer Research Program, a member of the the ECOG-ACRIN Research Group’s patient advocate committee and thoracic committee and as the patient advocate on the National Lung Cancer Round Table steering committee. She is a co-founder of the EGFR Resisters, a grassroots, patient-driven community committed to accelerating research that will prolong and better the lives of people diagnosed with EGFR+ lung cancer. 


    The HOPE Summit is free to attend for those living with lung cancer and their caregivers. A limited number of travel grants are still available. To learn more and register, visit lungevity.org/hope-summit


    #ThisIsHOPE2023 #lcsm

    Jill Feldman.jpg

  13. Join LUNGevity Foundation and Smith Center for Healing and the Arts for a relaxing evening of stretching the mind and body at a Virtual Coffeehouse event on Wednesday, April 26 from 5:30-6:30 PM ET. This virtual event will be held via Zoom. All are welcome. Registration is required. Please register by 5:00 PM ET on April 26.

    Registration link: https://smithcenter.org/programs-retreat/coffee-house-lungevity-04-26/

    Coffeehouse event.jpg

  14. Through the Patient Gateways, you will be able to learn more about your type of lung cancer and get resources that help guide you through your experience with lung cancer. There are also tools that help you find a specialist and clinical trials, and connect you with other people with your type of lung cancer.

    https://sclc.lungevity.org/

  15. Through the Patient Gateways, you will be able to learn more about your type of lung cancer and get resources that help guide you through your experience with lung cancer. There are also tools that help you find a specialist and clinical trials, and connect you with other people with your type of lung cancer.

    https://kras.lungevity.org/

  16. Through the Patient Gateways, you will be able to learn more about your type of lung cancer and get resources that help guide you through your experience with lung cancer. There are also tools that help you find a specialist and clinical trials, and connect you with other people with your type of lung cancer.

    https://egfr.lungevity.org/

  17. Through the Patient Gateways, you will be able to learn more about your type of lung cancer and get resources that help guide you through your experience with lung cancer. There are also tools that help you find a specialist and clinical trials, and connect you with other people with your type of lung cancer.

    https://alk.lungevity.org/

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