hollyanne Posted September 28, 2005 Share Posted September 28, 2005 Hi - My mom is about to start radiation on the neck and hip areas...she is in extreme pain. Originally she was taking percocet (a lot of it) which isn't working. The doctor has now put her on Dilaudid...can you tell me your experience with this medication, maximum dosage -- and thoughts about other pain meds to get her through this? Thanks, Holly Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 28, 2005 Share Posted September 28, 2005 Don't know about the one you mentioned. Lucie is on morphine sulfate, slow release, every day, with quick-acting mprhine sulfate for in-between. She has mutiple bone mets, which are being treated with Gemzar/Navelbine chemo. Don Quote Link to comment Share on other sites More sharing options...
Treebywater Posted September 28, 2005 Share Posted September 28, 2005 They gave Mom Fenanyl Pain Patches. Those seemed to help, though we weren't correctly instructed on how to use them (apply on area near the heart). I don't know anything about the meds you mentioned, but keep communicating with the docs until they find what will make the pain as managable as possible. Quote Link to comment Share on other sites More sharing options...
kamataca Posted September 28, 2005 Share Posted September 28, 2005 I don't know anything about those, but I do know that there are a lot of good meds out there, and your mom should be as comfortable as possible. Make sure the Drs know if what they are prescribing isn't working. You're such a good help for your mom! Kelly Quote Link to comment Share on other sites More sharing options...
antoinettev3 Posted September 28, 2005 Share Posted September 28, 2005 I'm so sorry that your mom is suffering from such pain. I took Dilaudid (4mg)for a while but found that it didn't work as well as Vicodin for me. A higher dose would likely have worked but the side effects were too bothersome for me. I'm not sure what the max dosage is on it. Fentanyl patches works very well but again I could not tolerate the side effects. They are considered long acting pain meds vs. short acting ones like Dilaudid, Percocet, Vicodin, etc. that you have to take every few hours. Thankfully most people are not like me and do not have such a hard time with narcotics. Go to: http://www.healthboards.com/boards/forumdisplay.php?f=100 There is tons of info on pain meds there. Most of the people posting suffer from chronic pain conditions other then cancer but they still offer a lot of experience with these powerful drugs. I pray that your Mom will find a drug that works for her and that the radiation treatment will elminate or at least reduce the need for pain medication. Good luck and God Bless. Antoinette Quote Link to comment Share on other sites More sharing options...
marym Posted September 29, 2005 Share Posted September 29, 2005 Hi Holly, I also have bone mets. I have been on morphine sulphate both long acting and liquid for immediate relief. I haven't needed the liquid except when I had withdrawal pain from decadron. The long acting is every 12 hours, but my doctor had me taking it every 8 hours. Good luck. Mary Quote Link to comment Share on other sites More sharing options...
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