JenkazMrs Posted April 10, 2007 Share Posted April 10, 2007 Hi all, I know by reading through these boards that a number of you are doing well and Tarceva. We are in the UK we are having to fight to use this drug basically they won't fund it but you can buy it. NICE (national institute of clininical excellence) will not approve this drug. NICE however just offer guidelines to the NHS and it is actually up the patients primary care trust in there area weather or not they prescribe this drug. It is available however in other parts of the UK free to patients for example Scotland. NICE say that the drug is no more beneficial than cheaper chemotherapy drugs. We all know that patients respond to drugs better than others that goes for any type of drug, but I am trying to highlight the fact that Tarceva does work well in some people and they can respond well to it having good quality of life. I have set up a support website fighting for this drug in the UK some of you may already have been on it. But what I am looking for is some of you guys who are doing well on this drug to post on my website forums so that I have some evidence of the fact. It so hard at the moment I feel as though we are coming up against brick walls all the time fighting for this but I am not going to give up. The URL is http://www.lc-action4life.co.uk Thanks in advance Deanne Quote Link to comment Share on other sites More sharing options...
ernrol Posted April 10, 2007 Share Posted April 10, 2007 Deanne, How can I help? I went to the site. Where do you want me to post? What ever I can do to help I will gladly do. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted April 10, 2007 Author Share Posted April 10, 2007 Hi Ernie, If you post in the Tarcava section. you can start a new thread if you wish or post on an existing one. Thanks so much Deanne x Quote Link to comment Share on other sites More sharing options...
teriw Posted April 20, 2007 Share Posted April 20, 2007 I was amazed when I heard that Tarceva was not available to NHS patients. I'm sure that you all in the U.K. know this site, but here it is anyway. There is a petition to sign (once on the site, it's in the left column): http://www.roycastle.org/ Quote Link to comment Share on other sites More sharing options...
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