Keli Posted September 15, 2010 Share Posted September 15, 2010 Since my last post things have been up and down. I did get the full dosage of cisplatin, gemzar and avastin and this cancer went through it like a train. I found 6 new nodes all over just in that 3 week period. So My Onc. put me on ALimta. It seems to have stopped the progression so far. I havent found any new nodes. I went back to radiation due to my right hand not working very well and being numb from a node on my neck that just doesnt want to cooperate. 10 days the radiated 4 nodes on the right side of my chest and neck. It did help the hand at least I can start my car now LOL. The radiation Dr took a non diagnostic CT and stated the lung nodule looked like a bunch of scare tissue and not growing. got a CT on 9/13 and the tumor in the lung is still stable. No progression at all. The lymph nodes on the other had are not playing nice. I really ho9pe the alimta works -- I think my Onc is running out of things to give me. Anybody thats is on or has been on alimta -- Did you get really tired and winded?? - I feel as tho somebody took the breath outta me. Quote Link to comment Share on other sites More sharing options...
fillise Posted September 15, 2010 Share Posted September 15, 2010 I am sorry you are having a rough time, but so glad to hear that the primary is stable. My mom was on Alimta this time last year and it made her short of breath and very fatigued. Many folks find Alimta very tolerable and stay on it a long time. Susan Quote Link to comment Share on other sites More sharing options...
Joppette Posted September 15, 2010 Share Posted September 15, 2010 No experience with Alimita, but wanted to wish you well on whatever course they keep you on. Praying those nasty lymph nodes start behaving themselves! Judy in MI Quote Link to comment Share on other sites More sharing options...
recce101 Posted September 15, 2010 Share Posted September 15, 2010 Hi, Keli. Yes, Alimta does cause some fatigue in most people, and a lot in some. I also felt some shortness of breath while I was on it, especially in the first few weeks/months. It seemed to cause some soreness around the rib cage, and in retrospect I think this was due to some initial swelling there. The swelling/edema moved around my body from one place to another and back during the 12 months I was on that chemo. There's more detail in the link in my signature area below. Great news on the stability! Ned Quote Link to comment Share on other sites More sharing options...
Keli Posted September 15, 2010 Author Share Posted September 15, 2010 Went to get my blood tested today and now I have to get a transfusion tom the 16th. I just pray things start to turn around for the better for while. I found out yesterday my oldest daughter had an abnormal pap and thats a big weight on my shoulders. With just daily things going on -UGH. So the experimental radiation did work - it did what it was supposed to - but with no chemo ? -- now i am fighting to get them down so I have not decided if it was good yet or not -- Quote Link to comment Share on other sites More sharing options...
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