drerni Posted January 11, 2012 Share Posted January 11, 2012 I'm sure you've heard about it by now, (in case you haven't: LINK). Has anyone tries going this route? With our recent news, I'm looking into the possibility of flying with my mom to Cuba to get the vaccine, depending on what the doctors come back with next week. UPDATE: After looking at more of the research documents, it turns out it's for late-stage NSCLC patients. I'll try to get a hold of someone at the Canadian clinics who are trialing this or similar treatments this week. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted January 11, 2012 Share Posted January 11, 2012 Not heard of it. I'd check one of the primary cancer treatment trackers before I'd risk anything out of the States or Canada. Judy in KW Quote Link to comment Share on other sites More sharing options...
RandyW Posted January 11, 2012 Share Posted January 11, 2012 I have heard about this one before actually! Had done a little research but not much available because of trade Embargo with Cuba!! As for traveling to another country for some thing like this, please consider the health risks associated with it. I believe it was Martin Luther Kings Mom who died in Cancer clinic in Mexico couple of years ago due to unforeseen circumstances!!! As of right now this is not available in the US! reasons why I do not know. HOWEVER!!! as of about November of 2011 I have heard it is being run as a clinical trial in BRITAIN!! We do have a member over in Scotland who might be able to look into that !! or tell us how to look into it also!! Quote Link to comment Share on other sites More sharing options...
dianew Posted January 12, 2012 Share Posted January 12, 2012 I have heard of it also. There are at least a couple of other vaccine/immunotherapy type drugs in trials currently - one is Lucanix, which I have done, and another is Stimuvax. You should be able to google and get the most recent updates and trial locations. Quote Link to comment Share on other sites More sharing options...
RandyW Posted January 12, 2012 Share Posted January 12, 2012 If your searching for a U.S. Clinical trial use this site! http://clinicaltrials.gov/ They can tell you all the info you need fro any trial being conducted or recruiting in the United States!!! requirements to locations!! this is a gold mine! Quote Link to comment Share on other sites More sharing options...
drerni Posted January 12, 2012 Author Share Posted January 12, 2012 Thanks for the link. The Canadian Cancer Society personi talked to yesterday sent me there as well. Found a few potential trials, so now we'll see what happens. I find that while our doctors are helping us, it just doesn't seem like enough. I emailed a couple of contacts I found on the trials site directly as well. It seems like the only person really pushing for you.. Is you. Quote Link to comment Share on other sites More sharing options...
RandyW Posted January 13, 2012 Share Posted January 13, 2012 you have to fight for the one you love..... Quote Link to comment Share on other sites More sharing options...
t_beanes Posted April 9, 2012 Share Posted April 9, 2012 for european clinical trials http://www.eortc.org/ The primary intent of this website is the communication of clinical cancer research with oncologists and health professionals in the field, but it is recognized that the information presented here might also be of interest to patients, charities, funding organizations and the general public. Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 9, 2012 Share Posted April 9, 2012 thank you for that link I almost accidentally banned you cause I have got 2 spammers already in last 5 minutes here posting. Had to check and see who it was . that info can be beneficial to our European friends who join also!! I never knew about that link. Quote Link to comment Share on other sites More sharing options...
t_beanes Posted April 9, 2012 Share Posted April 9, 2012 u are welcome..I has posted that once before but I guess it went under ..may be not that many Europeans here..no idea..anyway... Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 9, 2012 Share Posted April 9, 2012 every once in a while and of course Eric is Scottish so.. and we have had British Members in the past! Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted April 10, 2012 Share Posted April 10, 2012 A Dutch member here. Thanks for the link. Ellen. Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 10, 2012 Share Posted April 10, 2012 you are quite welcome and we hope you are doing well these days!! Quote Link to comment Share on other sites More sharing options...
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