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Puffball

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3rd try @ intro.  The first two times I got an error message :x . 

 

My name is Laurie and my partner of 26+ yrs. is Kris. I took Kris to the ER on 12/18/14 as her legs and tummy were numb; this happened quite suddenly/3 days.  Following a spinal MRI, we were told that Kris had cancer, specifically tumors to the lung, spine & cerebellum. She was admitted to the oncology unit that day and radiation to her spine and brain began the next day.

It was quite a shock needless to say – we had no idea!

 

Kris is 57 yrs. old and a brain MRI and lung biopsy while she was hospitalized revealed that the lung cancer was small cell (Stage IV) with metastasis to the spine and brain. No symptoms to the lung or brain.  The tumors on the brain are called lesions and are very small.  The thoraxtic spinal tumor was the big tumor and caused the lack of feeling. 

 

Kris was in the hospital until Christmas afternoon and continued with the spinal and brain radiation; the last one on 1/5/15.  Gradually most of the feeling has come back to her legs and tummy – not all but most.  Following a 2 wk. break, chemo began on 1/18/15.  She finished round 2 of 3 scheduled rounds on 2/20/15.  Round 3 will probably begin on March 11.

 

I am really happy to have found this site! Looking for support and education.  Kris can use a PC but rarely gets ‘on’ it so I am her voice.  She also doesn’t want to know to much.  From the old school, hadn’t been to a doctor for at least a dozen yrs. before her ER visit.  I do the worrying for both of us J.

 

We live in the boonies – no cell phone coverage and I sometimes don’t get on the PC every day. I will always get back to folks; just ask your patience.  Thank you!

 

Laurie

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nice to meet you both!! glad you found us but sorry you had to.... this site is full of insopiration and support.... there may be on ly a few posting but we know where to find others and answers to help you both out!!!

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I'm sorry to hear about your wife, but I am glad to hear that she is getting treatment. I'm hoping someone in our group can relate to you and jot down a few words. LUNGevity has a lot of places to learn, it has a wealth of information so please take your time. www.LUNGevity.org

Please keep us posted on how you and your wife are doing. 

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I too am very glad that you found us but sorry for the circumstances. I myself am not familiar with the type of cancer your partner has been diagnosed with but I'm sure others will follow me who are.  Please browse through our other forums and I'm sure you'll learn a great deal.  ((hugs))

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  • 2 weeks later...

Thanks for the replies.  I'm hoping to upload a photo of us soon - its on the other PC of course :| .  I haven't been able to find much info. on small cell (SCLC) specifically since it appears that most lung cancers are of the other types and SCLC only affects approx. 15 % of lung cancers from what I can determine. I would like to connect with some SCLC folks or obtain more info. on SCLC.   As I said before, Kris doesn't do research and doesn't want to know to much.  I started reading about clinical trials (tho' none seem to be for SCLC) and she said "I don't want to hear about it now".   I'm on 'overload' right now so thought I'd reach out to folks.  Thanks as always.

 

Laurie

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let me see what Katie can help with on the connection level. Have never helped on that situation so will get in touch with her to try adn help you out...

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Hi Laurie- we have support partners that we can match with Kris or with yourself.  It's called Lifeline www.lungevity.org/lifeline and we can match Kris to a survivor or you to a caregiver.  There are survivors of this disease- look on this website and watch our videos.  I know Don is still living life with lung cancer and that's been over 10 years.  The best thing to do is get familiar with any symptoms and manage things like dehydration and low blood counts and of course trying to help her with being hydrated and eating.  Hang in there.  I will keep you both in my prayers.

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