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Everything posted by michellep

  1. Hello Jean! I'm sorry to hear about your diagnosis and hope you'll get some good news soon. I understand how how uncaring the doctors can be. I received a telephone call telling me about my husbands cancer. It was so difficult because I was left being the one to tell him. He had so many questions and I had no answers. It was awful Please keep us updated (((hugs)))
  2. I'm so sorry to read about your daughter but I'm glad you found this wonderful community of people. I agree that your daughter is in denial and the fear is taking over her rational thinking. I don't have any advice on how to talk to her but please know that we all care and if you have questions or just want to vent please do so. Please keep us updated (((hugs)))
  3. I've been away from the message boards for a while and just saw your post. My heart truly goes out to you and I hope you can get some answers soon. Please let us know how things are going. Don't forget to take care of yourself too.....that's also very important. ((hugs))
  4. Hello Karen! I have heard about Opdivo having excellent results! Please let us know how it does for you ((hugs))
  5. michellep


    Hello Rain! Please let us know what you find out and if you have questions or just want to vent.....we are here! ((hugs))
  6. Reach out to us anytime dear one!
  7. My heart breaks for you Jan! Please look into the lifeline partner program. I wish it had been available for me when I was taking care of my husband. If you ever need to talk or ask questions we are here for you also ((hugs))
  8. WOW.......just WOW I am so very happy for you and hope the next scans are just as good for you!
  9. I agree that it is most likely a combination of shock and denial. Give your friend some time and when he's ready to share his feelings just be there for support. Please keep us updated ((hugs))
  10. I myself have not experienced it but I do hear many good things about medical marijuana being very helpful in dealing with the side effects related to cancer. If you visit one of the dispensories in your area they can show you options for edible types you might be about to use such as brownies etc. Please let us know if you decide to try something and how it works for you.
  11. The "unknown" and having to wait for answers in awful I'm sure. I agree to stay away from Google. There is too much conflicting information out there. I would suggest you make a list of questions and be prepared to ask away when you see your doctor. Please let us know what happens. ((hugs))
  12. I've heard the supplement "Part G" is the best. I don't know if they cover the drugs you need but it's work looking into. I have a neighbor who is receiving chemo (not sure which combo) and it's being paid for. Her annual deductible is only $149. That's excellent!
  13. Hello Baker! I myself have no experience with Vinovallbin , however, I'm sure someone will follow me who does. Welcome to our site and please keep us updated on your progress ((hugs)
  14. Wow! This really hit home for me. When my husband was diagnosed with lung cancer only one of his eight adult children from a previous marriage came to see him and it was not out of concern. It was only what I called an "inspection" to report to the others. My husband had always been a good father to them and was heartbroken from the lack of phone calls or concern from any of his family members. We had "no one" that we could count on. It was a very devastating time and my heart broke for him. He was the most loving and giving man I had ever known and was the love of my life. I will never understand nor will I ever forgive. I wish that on no one
  15. Hello Randii.....I am sorry to hear about your friend. You said he doesn't have money for treatment. Has he checked into some type of Medicaide perhaps? There must be some type of resources that can help. No treatment at all is not good. Please keep us updated!
  16. I'm so sorry you are dealing with so much right now. I was a full time caretaker for my husband with no help from anyone until I was forced to call hospice. My advice to you dear one is that you can't take care of everyone else without taking care of yourself as well! Please keep us updated and I wish the best for you. ((hugs))
  17. I certainly understand your concern and your questions. I would suggest writing down "all" of your questions before seeing your doctor. You're dealing with a lot right now and you need some answers. Please keep us updated ((hugs))
  18. Tarceva is a pill form of chemotherapy. Your doctor should tell you when and how it's taken as well as any side effects. My husband had a rash from it which is common but can be treated. Never hesitate to ask your doctor LOT"S of questions. That is indeed their job. I'm sure others will follow with more information for you. Please keep us updated. ((hugs))
  19. I'm so sorry to read your post but I am glad you are here. I myself don't know anything about Optivo or side effects but I'm sure someone will follow me who can help. Please keep us updated ((hugs))
  20. Hello and welcome to our site. Can you tell us a bit more about what you've been through? Have you started any treatments and what are they? I'm sure others will follow that can help you so keep us updated.
  21. Hello Karen and welcome to Lungevity. I'm sorry about your diagnosis but glad you are here. I myself don't have any experience with the chemo combo you will be taking but I'm sure someone will follow me who can help. Please keep us updated and let us know how you're doing! ((hugs))
  22. Just thought this might help prepare some of you when you're newly diagnosed.
  23. michellep

    My journal

    During my husbands illness with lc I kept a journal of daily events. When he went to heaven in Oct 2009 a made a few entries afterward and put it away. Since then I sold our home and moved away. I hadn't seen that journal in almost 7 years and came across it today. It brought back an avalanche of emotions and it feels like his passing just happened yesterday. Today is a bad day for me
  24. Hello Judy! I'm so sorry to hear about what you're dealing with. Please keep us updated and if you have any questions.....ask away! ((hugs))
  25. If you have questions or just want to vent......please do so. Keep us updated ((hugs))
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