Guest Phyllis Posted May 19, 2004 Posted May 19, 2004 I have a CT scan scheduled for May 23rd and am driving myself nuts worrying about it. I am on Carbo/Taxol and the last scan showed some shrinkage and overall good results, but I guess I was expecting more dramatic results. I have a cough still, which seems to be getting better but is still there. I have pain in my left shoulder which I do not know if it is because of carbo/taxol or progression on disease. I could kill my one oncologist who said "Well you are probably chemo resistant by now" and the other who said "Well when the carbo/taxol stops working we'll try gemzar/navelbine" as if it is a given that the carbo/taxol is not going to work. I hate doctors somedays. I feel like they have always treated me like I have x number of days on this earth so lets just throw some drugs at her and see what sticks. I have an appointment with the onc. in MS on June 10th because I am trying to get the rfa scheduled. My step-mother says the onc down there said that if there is shrinkage they would do the rfa. The way I heard it was that shrinkage was desirable but not totally necessary. Just wanted to be sure the rfa was a last resort, which I think I should have some choice here anyway. The onc down there said that if I started to get 16 ozs. of blood out of my lungs he would personally put me in the hospital, which I don't even know what he means by that. Does he see it as a palliative measure only when the surgeon sees it as life extending? I called to try to get an appointment to see the rfa surgeon while I was there also, but they are being polite and know I am coming but non-committal. My step-mother says they probably want to see what the onc says first, but she can put some pressure on them through her friend at the hospital if necessary, but I guess I will wait so that I don't alienate them. I get so upset. I just mowed my yard and my neighbors this past weekend (and not a riding lawn mower) without breaking a sweat. I may have a lot of tumors but I should be fixable. Sorry this is so long I am just a little stressed. Thanks for listening. Quote
Elaine Posted May 19, 2004 Posted May 19, 2004 I'll be praying for great news and that all works out to the best for you. Gosh I can only mow for about 20 minutes at a time, so you must be doing great! Elaine Quote
chloesmom Posted May 19, 2004 Posted May 19, 2004 I sure do hope for good results for you with your tests and I know how that anxiety builds up in the time prior! It happens to me to, and I try to keep telling myself--it is what it is and I cannot take any better care of myself than I am right now. I am doing everything I possibly can to stay healthy, so it should be good news on test days. A lot easier said than done, I'm sure--here's to good results for you on the 23rd! Quote
Guest bean_si (Not Active) Posted May 20, 2004 Posted May 20, 2004 Some doctors should be ground into dust. I am amazed that you have so much strength. That says a lot. You are in my prayers. I wish I had a magic wand to make this the day after and you read good news. Cat Quote
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