schmaydee

yeah ... i get the ernest and jim carrey thing a lot (prbly more from behavior than looks).... i sound many X/more of a "hillbilly" than JV ever did (w.kentuckyspeak)....... i quit trying to do much to improve it ....(way too late now)..... .........s

....i got it, ......or close enough.... thanks everybody..... ...s

katie... dont have rick waste any time on it...... i think i want to change it..... but i do appreciate it..... .....s

...oh no!!!! we need to be laughing a lot more than working..... i'll keep 'sperrymenting w/the pict..... i oughtta be able to figure this out.... (something for me to busy myself anyway)..... .....s

...my avatar/pict..... is too big...... anybody know how to make it smaller?... thanks.... ......s

...my onc-doc told me most folks dont dont start feeling it until the treatments are already over (if you get 10 of 'em i guess????)... whew..... i dont know how you lost weight on decadron..... (well, cause it doesnt effect you like it does me i guess)....i've stopped measuring my dietary intake in calories..... i use bushels now...... i'm WIRED-UP.... but i'm sleepy at the same time...... i'm really not sure "what" is doing "what" to me....really just taking a couple of sleeping pills at night and coming off the steroids.... ofcourse the pci thing..... ..........s

...i didnt have the head aches.... they told me that after the last one (last fri) ....... i wouldnt really notice much of anything.....(good or bad).... then in about 2 weeks or so i would "start" to feel a "little" better...... 3 weeks ,a noticable improvment..... in a month i oughtta feel pretty good...... .....but i have been feeling worse everyday (tired,befuddled,depressed)....not real bad..... just awoke today might feel a little better.... the very first day i start feeling better i'm cool w/it.... i'm not sure why they gave me 20......i was expecting 12 or so.... seems like my onc thought it was gonna be 10-12..... but the rad-doc wanted to more..... maybe weaker ones over a longer period..... not sure how they do it...... .............s

....hey ..i'm just glad they got everything straightened out where you could get in and get 'em...... if you only see the light ...then you can only be (@ most) 1/2 crazy.......( i gots de lites and de smells)..... they had me do 20 of 'em...... dont know if that was necessary..... i know i was feeling really good when i started and havent have a good day since i started 'em......(my last one was fri).....and i'm still feeling a little worse everyday...... . oh yeah..... i wouldnt let give me steroids (like i did) unless i absolutely had to have 'em ..... ......its all guessing anyway......(pci) but i think w/ls sclc you prbly should do some of it....... ...............s

yeah.... maybe.....i dont think anybody knows but it think it should be done (because nobody knows)... i think this (pci) has effected diff/worse than most folks......i'm a wuss.... i have 1 more tomorrow.... really w/me it was just a thing w/getting kinda ok..... then having to get sick all over again (voluntarily) and having recuperate all over again.... i look at it like i oughta have 6 months of feelin' good no matter what.....(maybe).....sure i might live to be 200.... but 6 months of feeling decent looks pretty good to me now..... and pci is gonna take away 2 months....... i just want "them" to leave me the hell alone...... let me get better or die one way or the other..... hehehehe...... 1 more .......s

yeah..... what addie said..... that's more like it..... i only have the color (blue) and smell thing while the "ray thing" is going.... starts and stops right w/it...... they said quite a few folks get that... it happens everytime.... exactly the same way.... ONLY 3 MORE TO GO !!!!!!!! .......s

....i dont think it makes a diff when you do the brianfrys... i'm cant figure how it works at all...... i can miss one and feel better the next day...... then i can go for 4 days w/o and feel worse...... i'm kinda fatigued....but really more "sleepy"...... and thats pretty much all the time (for me)...... oh yeah... when they shoot it...... you can (i do) see colors and smell odors (that arent "really there")...... kinda spooky...... huh? ......i prbly shouldnt have said anything about that!!!! hehehehe..... ......s

....my cousin has/had bell's ...i think it just lasted a little while (?) .....she also had and aneurism (fixed now).... what blew me away in this pci thing (and it must be "just me" because i havent heard of anybody else being effected like this).... was... i was feeling great...... the very next day after pci i got sick.... (they usually say it takes a week or 2) and i've been sicker than crap ever since..... i'm not saying its the pci..... prbly a little flu.. a little steroids... a little??? who knows.... i have no idea.... what i'm trying to say is from what i thought, it would be a lot easier on me than what it is..... i would rather someone had said ...."it can be as bad or worse as chemo (which its not...no way)..... but i would have been more (realistically) prepared.... dont get worried about it..prbly wont be bad at all....... but it "can" get pretty crappy.... .....s

....they're having me do "extra"......i have to get 'em through fri.....today's my 15th they kinda wanted to give me 20...then said 15.... now its 20... i got sick (prbly a flu bug)..... and missed 3.... ......sure would be a drag..... getting brainmets.... cause you missed 1...... (or really) asking yourself later if you had 1 more ....it wouldnt have happened.... at least i can kinda shirk responsibiliy if i do all of 'em "they" want me to..... ....p.s. if you've never done any steroids youre in for a treat....... whew.. .....s

yep, it's more of a "sleepy" thing..... than a "tired" thing..... i sure dont want to talk anybody out of pci.... i think its what needs to be done most of the time.... but the effects are DRAMATICALLY different and more severe than the idea i had imagined..... kinda blew me away a little.... its not as toxic as chemo/rad ....but it aint a flu-shot either..... prbly most of my prob is ....i went through the chemo/rad pretty well.....and finally got to where i felt "really" well......then started in on this and get to feel like crap all over again..... (whine...whine.... whine...).....i'm even starting to make myself sick...... sorry..... .... vandy is w/o equal insofar as how screw'd the traffic/parking/bookkeeping etc is..... but they have all the modern "stuff" ..... at southern hills...."they may hit me w/a chicken and then spit some rum on me" but i'm n/out in 20-30 mins and i dont have put up w/a lot of the frustration........i just dont have (really never had) the patience..... when my dad was in there (vandy).....theres a med bldg thats on top of the vandy parking garage (across from the main vandy entrance).....you can pull right off of w.end (i think its w.end? 28th, bway whatever) and if you drive "back there" (it wont look there will be any places unless you do) there's usually places....... if that makes sense ...if we're even talkin' about the same part of vandy????? ........s

...kind of a follow up on this old thread...... this pci thing is kick'n my butt....!!!! i'm not sure exactly whats up.... but it (or something) has knocked me down harder than the chemo and radiation that got rid the tumor in my chest..... i cant hardly get out of bed..... and i never stayed in bed the whole time i went through the whole cancer treatment...... i'm not taking the steroids right (3/day)......i've been taking 1..... but geez... i hope its the steroids....... i never heard anybody say this stuff was ANYTHING like this...... everybody said you'd just be a little tired and stupid (for a little while)....... but it aint like that for me..... anybody else? .........s

ann.... i'm doin' the pci thing now.....it's kinda strange..... i think i had a flu-bug or something puttin in it's $.02 just to get things interesting.....it made me pretty sick to my stomach.......but i dont think it does that to most people.... it's not bad like chemo/rad all at once.....nothin like that.... hair falls out......mainly a little fatigue....... and a little "stupid"....but it (usually) goes away supposedly..... they gave me steroids too.....them's "some" whacky pills there......helped me pick-up 14 lbs in about 3 days....(no kidding)...kinda like eating speed... ..if youre limited stage i definitly think you need to do it.....(pci)....if you "feel strong" (recuped) after your last treatments....get it as quick as you can..... .......s

what do you expect?....they're just a bunch of idiots or you wouldnt be doing this in the 1st place....think about it..... like i said before...have "who ever" needs all that stuff get what they need from 'em...... let "them" chase that rabbit..... ....s

....i think youre just bummed out right now..... being sick the way we are and just having cancer is really rough..... i think you make your own luck (to an extent)...... like i mentioned before going to vandy may not be the best thing....especially if you have a low threshold for aggravation anyhow (i have always had that)..... as far as the pci..... i dont really know squat.... but i think you should do it..... it made me sick as the chemo/rad (almost immediately) but as soon as i got on the steroids it was tolerable...... there's an 85% dead rate for 5 yrs (depending on who you talk with)for this stuff and you will not have the chance to go back and get it later......you never really know whether you need it or not until you get brain mets...then its too late..... my understanding is (most of the time) they either get rid of the cancer at the stage we're at now or they never do...if it ever comes back...you never get rid of it.....30% of the time it comes back into the brain because the chemo doesnt get in there as well as other places... he!! you prbly know a lot more about it than i do......but pci seems worth it to me........ ....s

...sounds like a hell of a mess to me....i'd make the new dr (or whoever) take care of all of that....if the new dr wouldnt.... i would find one who would..... ....s

...youre going to the wrong places.....i'm getting back to have my bloodwork done w/n 10-15mins of my appointment time if not before..and always see the onc-doc w/n 30mins from that..... the rad-doc does much better than that.... ..now the imaging thing is a little longer (i get it at the hospitals)....but i preregister and get it w/n an hr..... i walked out on an ENT last week that tried to pull that 2 hr stuff (if everyone walked out i bet it would put and end to it).....docs are very busy folks...but they (really their staff) make the appointment times and they are responsible to keep them....... ......s

...sounds like bullsh** to me. and they care more about the money (or the pressure put on 'em by the hosp to use their stuff) than they do about you... ultimately the doc makes the decision.....i didnt know any of them, so it didnt make any diff to me.... but it did make a diff about the location.... my onc-doc was in southern hills (close to my old apt) and it was very convenient.....but i moved in w/my sis (in old hickory) when i got sick......so i wanted to get the rad work done @ summitt..and it wasnt a prob.....ofcourse they're all in the same bunch (not the same practice)......sarah cannon.... thats the big prob i had w/vandy.....they didnt give a flip what my dad had to go through. he was in real bad shape and commuted 150miles to get there,only to have to wait an hr or 2 beyond his apointment time to see anyone.... unexcusable,ever, ......s

di....i dunno... my onc-doc said they dont even do pet scans for sclc (or he doesnt). said that it was for nsclc (or other cancers not sclc). mine didnt even consider doing another ct scan....much less a biopsy.... he said go get pci and come back in 6 weeks...i said oui... sounds like they're having a hard time deciding if they have got it (well enough) or not.....takes about 8 weeks for the chemo/rad to get done w/you after you stop.....they might have wanted to do that...... i think all these oncs pretty much know what to do...you can pretty much look at everone on here,see what kinda cancer (and stage) they have...and they are all taking the same stuff the same way.....its just a matter of how attentive the docs are,THEIR OFFICE STAFF, and their patient load. ....s

hehehehe.... ..... the onc didnt say that....he'd never do that..... he said the blah,blah part (actually so many cm's by so many cm's)...... i was the the one that made the cig-pack analogy...... my docs have never said anything about the cig thing (i smoked 3-5 packs a day).....if they did i would think that they "must not be very smart"...and send them packing.... but then again i quit smoking when i got cancer...... ..s

....i was kinda surprised they didnt have me set up for another scan...they did one ct scan 3 weeks(?) ago......and said the tumor was blah,blah (the size of a cigarette pack)...and it is blah, blah (smaller than a golfball)....it must be dead.... you're in remission...... i'm not sure i'd recommend the vanderbilt thing......that's where i had my dad go (esophageal cancer).... very bad experience..... especially w/getting in and out of there and the waiting...... i think they are just not totally sure your cancer is "absolutely gone".....ofcourse nobody can be.... doesnt mean you cant get the pci... i got to where i was really feeling good before the pci.... close to where i could get back to work and everything...how are you? is your strength returning.....that might be some of it.... ...?... i use dr patton (onc) at southern hills ....and dr cohen (rad) at summitt (in the annex not the hosp)...both are easy to get into see (that means a lot).... i would recommend both or either...... .....s

is decadron a steroid nancy? do you feel better since you (completed) dont have the treatments? how long does it take to get back up to speed after youre done w/pci? ...i went in today and my rad-doc fixed me up w/some steroids....i think i'm feeling better.... i was told i might get fatigued "after" i had completed the treatments so i was a little taken back......when i got sick immediately (the next day) after getting the first treatment.... di.....i'd get on somebody's butt about the pci thing...(youre in remission right?).....if so....i'd want a reason for "why not". my onc-doc kinda told me "the (tumor) must be dead"......."youre in remission" "lets do pci and come by in 6 weeks"..... the pci thing was /is a lot more than i thought it was gonna be...i got real sick w/that stuff..... maybe the steroids will do the trick... ...s