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schmaydee

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Everything posted by schmaydee

  1. so sorry summer.... .....s
  2. we're praying for you marge.......hopefully the taxotere will do the trick.... ........s
  3. ..i have had the same side effects w/pci. the decadron fixed it (except for the fatigue).i think for most people you feel crappy for a couple of weeks after all of the treatments are done..... .....s
  4. hang in there betty we're prayin' for you..... .......s
  5. the pci treatments effected me differently than most and have made me very fatigued, sick to my stomach....headache (if i dont take decadron)...docs say it could last until june..... ..i went through a lot of sickness because i didnt want to take steroids...but i've changed my mind about that....as soon as i went on the decadron my appetite came back (too-much) ...... i was still fatigued but otherwise alright...might wana consider the decadron.... ...s
  6. my gosh... what an ordeal..... glad to see you back.... ......s
  7. none of this is good..... this stuff is hard on everybody.....its hard on your sister too if she care's for you at all.....and i imagine she does.... ive been through losing my dad to cancer......and having the cancer myself..... and i'd rather have the cancer... ...i'd try to chill....you may not be thinking "exactly right" ......i know that i'm not thinking normally......i catch myself thinking some pretty crazy stuff.... i'm not sure how much my rationale is affected.... prbly couldnt whoop her anyway.....unless you sucker-punched her....hehhhee .......s
  8. ...i wish i could do something to make you feel better......youre 1/2 way through it though and it'll get better......hang in there betty..... .....s
  9. hey you toughed it through.......the first was absolutely the worst one for me....they never got "fun" but they got "less bad".....what chemo are they giving you.....zoltran helps w/the nausea if youre insurance pays for it ($$$$$)...... ......s
  10. i told my onc i wanted some of those "crazy pills" that my sister takes (xanex)...i use them for my "sleep cocktail" (ambien & xanex)....but they are good about helping w/anxiety.... and we all have reasons for some anxiety.....whatever helps..... ......s
  11. ...oh yes, XANEX.....one of my favorites.... (actually i only take 3 pills....ambien,xanex and decadron).... i take the 1-xanex and 1-ambien at night to sleep...really helps a lot..... ......s
  12. hehehe... ...i kinda wish they would .....especially on a day when i'm not feeling very well...... i'd prbly send them a $19 check and pay my bank $20 to stop payment on it...... (and still give them a cussing)..... actually ...i'm they may do a lot of good stuff... just nothing thats of any use to me......they appear to be geared more for people who DONT HAVE CANCER.... than those who do.... .......s
  13. ..its hard to get an answer for that question or "How many people live w/this ...for how long????" He!! .....its THE MAIN QUESTION EVERYBODY WANTS TO KNOW.... i guess people dont want to say 'cause (lets face it).....it aint good....and no one wants to depress or discourage anyone.... whether its good or bad i want to know.....not sure how accurate the answer would be for you (the way you asked it) because "long term" survivors prbly dont hang out here much anymore..... i just wrote NCI after looking all over their place trying to find 5 yr mortality rates ......(long time) i never could "actually" find it..... i wrote them telling them i couldnt find the info..... they sent me back a letter w/15 hyper-links none of which answered my "1" question....i would have rather them said "we arent gonna tell you"....instead of trying to confuse me w/bullsh!t... my experience is nobody will tell you squat (even your own onc) when you start asking about actually dying.....sure.. nobody really knows for sure...and they dont want to be held responsible for info they cant be sure about......... but you better believe there's all kinds of #'s on it (if you can find 'em)....i'm sure there are survivor #'s for EVERY CANCER, every stage, any mets (and where they are at) how long you've had it..etc....just cant find the info..... i'm sure they dont want you to... i wrote them back thanking them for being, vague,lazy,worthless and stupid...... ...s
  14. ...great!!!, ....the best i can tell i'm still kinda messed up from the pci treatments.....i got real sick when they weaned me off the steroids (both times) so i'm back on them now...... that has me concerned......my last PCI was Dec 3, 2004....thats a real long time ago.....just wait and see i guess.... ..... all in all i'm doin' ok.....dont feel "good"....but i'm not sick as crap......(which is good enough...i guess).... ......s
  15. Di..yeah really!!! i mean......you dont have to post the pic here or put it in the tennessean....but i dont see how you could "not" have pics for the ol' scrapbook... how you doing w/the effects of the brain-frys?......looks like you tolerated 'em "pretty good" (great)..... i havent seen where you mentioned you had much trble.... .....s
  16. dont get depressed mouse...it'll get better..... i dont have the bp prob......but i know if i dont take the decadrone i'm a real sick puppy.....zolfran helps (a little) decadron fixes it (or it does for me pretty much).....i'd try keeping the decadron and trying the bp med... are you taking the decadron because of brain radiations? .........s
  17. ...hey its bad... but it could be worse (a lot worse)......really spooky!!!....how do you feel? .... they (docs) pretty much do the same stuff to all of us (that have the same type and stage of cancer). theyre giving you cisplatin and they gave me carboplatin....but everybody usually gets one or the other.... you prbly wont get sick until you have done all 3 days of chemo.....and you may not get REAL sick at all (but dont count on it)....a lot of folks dont... most of the time they can get rid of the tumor (when youre "limited stage sclc")......and even if youre extended stage......and you'll feel "a lot" maybe as good as ever... and you might even beat it.....seems like a lot of times they miss the lymph node thing is and its really NOT cancerous.....(who knows) this (cancer) is a crappy deal......but its what all of us here have to deal w/........you still have a VERY good chance for some quality time ahead of you.....(a lot of folks dont) i mean they could of said "no treatment is gonna help you"....."youre sure a gonner"......"where do i send my bill"......"would you like for me to shoot you in the head?" (kidding).....i'll pray for you... try not to let the "worry" kill you before the cancer does... .......s
  18. ...... i feel a lot more aerodynamic! ......but that could be my imagination.... hard to tell after the pci.... sbeth..i have that upside down frown thing going on too....and "it" grows "fast".....of course "i" couldnt see it and noone told me about it....(kinda like having something in your teeth i guess) sure made me look goofy(er)...why cant it just be all or nothing... .......s
  19. ...you look great bald addie (really).......excellent mohawk too!!! ....and nice to see a beautiful smile.... ......s
  20. ....i tell ya.....ofcourse its different for boys..... but i like being bald.... i dont really like "looking so goofy".....but other than that i like most everything about it.... all of "us" are gonna be cool whether we have hair or not!!!!! ....s
  21. so very sorry....... .......s
  22. well maybe.... you cant tell from an xray that its gone but the fact that the dr. said what he said means something....they CAN tell that there's not any congestion (and stuff) w/an xray.....there will prbly be part of it left (scar tissue) for a long time.....but all the cancer in it is dead.... good chance if you make it through the chemo/rad you'll get rid of it (the first time) then its just a matter of where/when it pops up next... ......s
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