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lynn

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Posts posted by lynn

    Groups to help peo. living alone-drivers,..on L.I.

    in GENERAL

    Posted

    Gail,

    The ACS (631-436-7070) has a program to drive patients to dr. appts and chemo...check with them as your Dad may be eligible for other programs as well.

    I was checking on live in services for my Dad and a neighbor recommended Assistance for Daily Living.She has used them for over 12 years for her Mom. They have an office in Smithtown ( may have others). Phone # 631-724-6157. Ask for Mrs. King ... she is fabulous and understanding.

    Another organization I called and was impressed with is South Shore Home Health Services(several locations....I think). Phone #631-567-6555.

    I was never able to use either of these resources. I hope this is helpful.

    Best, Lynn

    Rough day today...

    in GRIEF

    Posted

    Ann,

    I understand what you mean... I spent the weekend at my parents home digging through some 40 years worth of possessions. It,s so difficult and emotional.

    Thankfully, I have 2 brothers and a sister to help. We cried and laughed and got through it together. Of course we will be spending many more weekends there...lots to do. I hope you have someone to help you as you go through this...

    Best,Lynn

    Aspiration pneumonia - Need feedback

    in NSCLC GROUP

    Posted

    Kelly,

    I do know a woman who just this winter was on a vent for a Xanax overdose. She does not have lung cancer but has MS. It happened very quickly...she was fine and a few hours later she was being intubated by EMS. So as not to scare anyone...SHE WAS NOT TAKING HER MEDICATION AS PERSCRIBED!

    The good news is that after a few days on a breathing machine she recovered quickly and fully.

    I hope your Dad continues to improve...

    Lynn

    New Member with questions

    in INTRODUCE YOURSELF!

    Posted

    Hi Jen,

    My Aunt is currently being treated at Memorial Hospital and she is happy with her treatment (she has extensive SCLC). :cry:

    If it's only an hour from you I would check it out...no one can place you in a clinical trial without your consent...

    Best, Lynn

    deleting all posts

    in GRIEF

    Posted

    Christina,

    Shelly's response to you was so well-worded that I don't feel I can say much else.

    I have been so impressed with the genuine love and the maturity that you showed during Chris' illness that I believe you will rise to the occasion even now during such severe emotional pain. You have been through alot and healing takes time...be gentle with yourself...give yourself time.

    God bless,

    Lynn

    My Surgeons Bill

    in GENERAL

    Posted

    Hello,

    Just to let you know...Cardiothoracic surgeons study for at least another 7 years after attending medical school. Talk about complicated cases and STRESS, this specialty is at the top of the list there! Also, John is correct with the amount of malpractice insurance they pay PER YEAR.

    With each case he/she may make $2600 but because of the chance for legal action the surgeon is on the hook for potentially millions...not a fair ratio in my opinion. Also, HMO's continually cut reimbursement to physicians (they only get a PORTION of the actual billed amount) but the costs of overhead keep climbing. :twisted:

    The copay is part of the physicians fee and part of your contract with your insurance agency. To waive the copay puts the physician at risk for insurance fraud charges...

    Not paying the copay is like eating out at a nice restaurant,ordering an entree,dessert and coffee and then refusing to pay for the dessert! I doubt you would be welcome back there! :wink:

    Anyway, I hope your surgeons skill and training serve you well for many years to come...

    Best wishes,Lynn

    Hugh's Appointment

    in HOPE

    Posted

    Candy,

    Wonderful news!

    When my Mom was on chemo she was VERY sensitive to smells...so much so that she couldn"t go to church on Sundays(this was someone who went daily) because of the perfumes women wore.

    Best,Lynn

    HELP !

    in GENERAL

    Posted

    Kathy,

    I would definitely have Tim checked out as soon as possible. While it may be nothing or related to nutrition, chemotherapy can put one at higher risk for blood clots and blood clots that travel can be very dangerous.

    Hopefully it is nothing but I would have it checked out.

    Please let us know

    Lynn

    $6 Billion a year!

    in LUNG CANCER IN THE NEWS

    Posted

    The attorneys who have profited from this and other similar suits should be required to return a percentage of the money they have made off the suffering of others into a lung cancer research pool.

    Many plaintiff attorneys have said that they studeied law to" help others. "Personally, I would like to see them put their money where their mouths are and return a portion of their profits to those who need it most!

    I could go on and on....just my opinion...

    Lynn

    SED LEVELS????

    in NSCLC GROUP

    Posted

    Dear Rinksgal,

    The "sed" rate you refer to is probably the erythrocyte (red blood cell-RBC) sedimentation rate or ESR. This is the rate at which red blood cells settle out in a tube of unclotted blood, expressed in millimeters per hour.Blood is collected in an anticoagulant an allowed to sediment in a glass calibrated column. At the end of one hour, the lab technician measures the distance the erythrocytes have fallen in the tube.

    Elevated sedimentation rates are not specific for any disorder but indicate the presence of inflammation. Inflammation causes an alteration of the blood proteins which make the red blood cells aggregate, becoming heavier than normal.The speed with which they fall to the bottom of the tube corresponds to the degree of inflammation. Serial evaluations of the ESR are useful in monitoring the course of inflammatory activity and when performed with a white blood cell count can indicate infection.

    Hope this helps...hang in there,

    Lynn

    got a dumb question

    in GENERAL

    Posted

    Hi Ray,

    Remission is the partial or complete disappearance of the clinical(ex.medical tests) and subjective (perceived)characteristics of a chronic or malignant disease, according to Mosby's medical dictionary.It can also refer to a period of time during which the above occurs.

    I hope it's a word you become well-aquainted with!

    Lynn

    Did you Lose Your Eyebrows?

    in GENERAL

    Posted

    Bess,

    You might want to call your local ACS chapter. I know here in NY they run a program called"look good, feel better" (or something similar). They teach women on chemo makeup application and offer help with their "appearance". Sounds like a nice program...

    BTW...yes, my Dad lost his eyebrows 20 years ago during his first go-round and like the rest of the hair...it will return! :D

    Best to you,

    Lynn

    Sally

    in GRIEF

    Posted

    Peggy,

    Please accept my heartfelt condolences on the loss of your precious sister. I feel for her daughters too... please hold them close. Every word I try to type seems so inadequate.

    God bless you all at this most difficult time

    Lynn

    they are so hopeful

    in SCLC GROUP

    Posted

    Hello,

    Just last week I had a phone call from a dear family friend ... one I only speak with every now and again. His sister was diagnosed with extensive SCLC about 6 years ago. SHE IS STILL GOING STRONG!!! :D:D:D

    That makes 2 people I know personally who have defied the odds!!....and I have only personally known 4 people with extensive SCLC.

    I continue to pray daily for each and every person here.

    I pray that someday the overall statistics for SCLC will be more in keeping with my little set of statistics.

    God bless,

    Lynn

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