LaurenH
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Posts posted by LaurenH
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Faye,
Tom and Susan are right. No one deserves cancer. And anyone with lung cancer deserves to be treated with compassion, not callousness. LCSC is a place where you can find support and understanding.
At LUNGevity, we are working very hard to end the stigma and help secure an investment in research that matches the impact of this terrible disease. Thank you for sharing your story and being part of this community.
We are here for you.
Lauren
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Digital Community Manager
LUNGevity Foundation- PaulaC, Tom Galli and Susan Cornett
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Hi, Judy,
We are glad to have you back! I'm glad to hear that you've finished treatment and that your scans showed that your tumors have shrunk. Please keep us posted on how you're doing!
Thank you, Tom and Steff, for being great sources of information!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Sally,
I will see if any of our members have experience with this treatment and ask them to chime in on this thread. Keep us posted! We'll be thinking of you.
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
New health care legislation was recently introduced in the United States Senate, and if passed, it would roll back major provisions of the Affordable Care Act.
The Graham-Cassidy Bill could have important and negative implications for lung cancer patients, survivors, and their families, including higher costs and reduced access to health care coverage for the sick and low-income. Below are several areas of our concern:
The bill prohibits pre-existing condition provisions; however, it allows states to permit waivers to health plans allowing them to charge different, increased, premiums based on a variety of factors. This could make health insurance unaffordable for lung cancer patients and their families.
States would be able to waive the minimum essential health benefits that health insurance companies are required to provide currently, this includes prescription drug coverage, and could affect lifetime and annual limits on these benefits.
Medicaid expansion and reduced funding for the Medicaid population would be affected under this legislation, which would likely result in less affordable health care for lower-income Americans.
Experts say there is a chance this legislation could pass, and we need your HELP. Please TAKE ACTION by contacting your Senator TODAY and ask them to vote NO.
Call (844) 257-6227 to directly connect to your Senator’s office.
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We are excited to announce that BridgetO will be a new LCSC Moderator of the Introduce Yourself and NSCLC forums.
BridgetO is a survivor from Portland, OR. She joined LCSC in December 2016 after being diagnosed with lung adenocarcinoma, grade 1, stage 1a, with a KRAS mutation.
BridgetO is an invaluable member of this community, and we look forward to seeing her shine in her new role as Moderator!
- Susan Cornett and Tom Galli
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Hi, Lilly,
I'm very glad to read your good news! And I'm happy that you've been able to spend so much quality time with the people you love doing the things you love.
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Jennifer, I am so sorry for your loss. Lung cancer is a terrible disease. You and your family are in all of our hearts. We will continue to work every day to raise awareness and funds for more research in honor of your brother and all those we've lost. Thank you for being part of this community. We will always be here for you.
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Our friends at Savor Health have shared the following tips to help you have a healthy end of summer:
Enjoy Fresh Summer Foods
Labor Day is almost here, which means summer is ending soon. Make use of the many fresh foods that are in season right now, such as:
Dietary Fiber "In a Nutshell"
While the term carbohydrate often carries a negative connotation with respect to health and nutrition, there are actually many healthy sources of carbohydrates that are rich in essential nutrients, phytochemicals, and dietary fiber, all of which are an important part of a healthy diet.
Holly's Health Hints: Eat With ColorHave you decided you want to eat healthier, but not sure where to start? You can’t go wrong if you remember to eat with color! Make it simple on yourself and choose a plate full of a variety of color. Green, red, orange, and yellow – the colors in a plant based diet represent important vitamins and minerals your body needs. A colorful plate ensures you will be eating a wide range of fruits and vegetables with necessary vitamins, minerals, fiber and antioxidants for optimum health and energy. And the brighter the better as plant foods rich in color contain more fighting power.
August: Concord Grapes
A recent study published in the Journal of Nutrition found evidence of grape seed extract and other grape products having a chemo preventive effect, meaning they help to slow the initiation of cancer formation.
Concord Grapes Sorbet RecipeFor a refreshing (and low calorie, non-fat) ending to a meal, try this recipe for Concord Grape Sorbet. So many of us turn to ice cream on a hot summery or early fall day, but sorbet can also be a true delight when you have really flavorful in-season fruit.
Tips for Men's Health
It’s always a good time to think more critically about health and healthy habits. Men aren’t always proactive about their health. Since studies show that 1 in 3 males will be affected by cancer in their lifetimes, it’s time for them to take charge.
Need answers? Call 1-888-721-1041 to speak to a registered dietitian for personalized support.August is Awareness Month For the Following:
Savor Health is dedicated to helping cancer patients and their loved ones by offering expert dietary counseling as well as cancer diet meal delivery.
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Possible advocacy opportunity for NSCLC stage 3 patients who have chemo/radiation within the last year. Please email kbrown@lungevity.org if you would like to learn more.
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Hi, Jeannie,
I'm glad you're getting some answers. When are you expecting your test results? We'll be thinking of you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Daughter74,
I'm glad you've been able to make connections and find helpful information from this community. Thank you for opening up not only about the challenges with your dad's lung cancer but also in your relationship with him. We won't give up hope for him either! Please stay in touch and feel free to ask questions and join in the conversations when you can. We are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Ines,
I am sorry that your husband ended up in the hospital. I will reach out to some of our community members and encourage them to respond to your DVT question.
Please post an update when you can!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
This organization is looking for people who are willing to share their opinions about Non-Small Cell Lung Cancer.
They are looking to speak with patients (ages 18-80) and caregivers with Stage III or IV Non-Small Cell Lung Cancer.
Qualified participants will be compensated $100 (Telephone Interview) OR $150 (Focus Group) for their time and opinion.
Anyone who is interested can email Patient.Research@schlesingerassociates.com to see if they are a good fit for the interviews!
Please see the attached flyer for complete information.
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September 14 is the National Day of Action for Medical Research!
The purpose of the Rally for Medical Research and the National Day of Action is to call on our nation's policymakers from all 50 states to make funding for National Institutes of Health (NIH) a national priority and raise awareness about the importance of continued investment in medical research that leads to MORE PROGRESS, MORE HOPE and MORE LIVES SAVED.
Aside from supporting lifesaving research, NIH funding sustains a vibrant and innovative 21st century U.S. economy and supports jobs. Thanks to the $2 billion increase to the NIH budget that Congress approved for FY 2016, the U.S. saw an additional economic gain from investing in the NIH of $4 billion compared to 2015. In 2016, NIH funding and jobs generated by that funding produced $64.799 billion in new economic activity compared to $60.717 billion in 2015. Nineteen states saw an economic gain of $1 billion or more.Click here for more information and to register.
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LUNGevity Foundation's Career Development Awards (CDA) for lung cancer research fund critical lung cancer research projects and offer the recipients world-class mentorship by LUNGevity’s prestigious Scientific Advisory Board.
“LUNGevity created the CDAs to identify outstanding scientists early in their careers and encourage their continued development in the field of lung cancer research to grow a strong pipeline of dedicated lung cancer researchers,” says Charles Rudin, MD, PhD, Professor and Chief, Thoracic Oncology Service, at Memorial Sloan Kettering Cancer Center and chair of LUNGevity’s Scientific Advisory Board. “We work closely with these researchers with the hope of seeing them become the next generation of scientific superstars.”
LUNGevity is proud to support the following researchers its 2017 Career Development Awards:
Mehmet Altan, MD, The University of Texas MD Anderson Cancer Center, Identification of predictive markers of toxicity to immunotherapy. Dr. Altan will work to develop a way to predict which patients are most likely to develop serious side effects from some types of immunotherapy – these side effects can limit use of the treatments. Once patients can be flagged as high-risk for tissue damage, measures can be taken to limit the tissue damage proactively; patients may then experience better outcomes with their immunotherapy.
Valsamo Anagnostou, MD, PhD, Johns Hopkins University, Dynamics of neoantigen landscape during immunotherapy in lung cancer. Dr. Anagnostou will leverage an existing clinical trial to discover why some patients become resistant to immunotherapy and to get a handle on how to help them overcome the resistance.
Zofia Piotrowska, MD, Massachusetts General Hospital, Overcoming heterogeneity and resistance in EGFR-mutant NSCLC. Dr. Piotrowska intends to uncover the reason a subset of lung cancer patients develop resistance to their best option for treatment: a third-generation EGFR-blocking tyrosine kinase inhibitor drug. In addition, she will study a new combination of drugs in a clinical trial that may help patients who develop this type of drug resistance.
“We have seen a lot of great progress in treating lung cancer, and we still need to better understand how lung cancer develops resistance to drugs, and why some patients experience side effects from treatment,” notes Upal Basu Roy, PhD, MPH, director of LUNGevity’s translational science research program. “Our funding this year’s group of awardees will help make progress in facing these challenges and continue to improve outcomes for lung cancer patients.”
Each of these prestigious three-year awards is for $100,000 per year, renewable in the second and third years based on research progress. Awardees serve as non-voting members of LUNGevity’s distinguished Scientific Advisory Board for the terms of their awards. Awardees are mentored by senior lung cancer experts at their own institutions as well as by experts from the Scientific Advisory Board.
Under the guidance of LUNGevity’s Scientific Advisory Board, a group of 21 prominent scientists and researchers, LUNGevity ensures that grants are awarded to the researchers whose proposals demonstrate the greatest potential for finding lung cancer at its earliest, most treatable phase, as well as extending and improving lives for lung cancer survivors.
LUNGevity is the only lung cancer organization with a programmatic focus on early detection and a robust Career Development Award Program. Our researchers are working on finding a better way to detect lung cancer, and to better diagnose, treat, and prevent its recurrence. The foundation’s overall research program, including CDA awards, is a crucial factor in moving the science forward to improve outcomes for people living with lung cancer.
LUNGevity’s Scientific Research Program is supported by the American Lung Association, Bristol-Myers Squibb, Genentech, The Thomas G. Labrecque Foundation, Upstage Lung Cancer, and individual donors.
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Welcome, Mary Lou! We are glad that you found this community. When you're comfortable, please share a bit of information about yourself and why you were looking for a lung cancer support community. We are here to help!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundaiton -
JWH, we're so happy to read your good news! Thank you for the update. I'm glad your recovery is going well. We'll be thinking of you on September 1 and hoping for NED! Please keep us posted and know that we will always be here for you.
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
LUNGevity Foundation is proud to announce that Drew Moghanaki, MD, MPH, has joined its distinguished Scientific Advisory Board.
Dr. Moghanaki is a highly regarded expert in the field of radiation oncology and leads the Clinical Research program at Hunter Holmes McGuire Veterans Affairs Medical Center in Richmond, Virginia. Dr. Moghanaki has been instrumental in bringing more than $34 million in funding to improve outcomes for lung cancer patients through a phase III lung cancer trial for veterans and a key VA partnership to increase access to lung cancer screening.
LUNGevity’s Scientific Advisory Board oversees the Foundation’s scientific strategy and ensures that grants are awarded to the researchers whose proposals demonstrate the greatest potential for finding lung cancer at its earliest, most treatable phase, as well as extending and improving lives of all people diagnosed with lung cancer. LUNGevity’s awardees are working to improve our ability to detect, diagnose, and treat lung cancer, as well as prevent its recurrence. LUNGevity is the only lung cancer non-profit with a long-term, strategic focus on the early detection of lung cancer.
“We are thrilled to have Dr. Moghanaki join LUNGevity’s Scientific Advisory Board,” said Andrea Ferris, president of LUNGevity Foundation. “He brings expertise in radiation oncology as well as a deep knowledge of the VA healthcare system. We are excited to have his unique perspective and expertise to help guide our research program.”
Read the full press release here.
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LUNGevity Foundation is proud to announce that Drew Moghanaki, MD, MPH, has joined its distinguished Scientific Advisory Board.
Dr. Moghanaki is a highly regarded expert in the field of radiation oncology and leads the Clinical Research program at Hunter Holmes McGuire Veterans Affairs Medical Center in Richmond, Virginia. Dr. Moghanaki has been instrumental in bringing more than $34 million in funding to improve outcomes for lung cancer patients through a phase III lung cancer trial for veterans and a key VA partnership to increase access to lung cancer screening.
LUNGevity’s Scientific Advisory Board oversees the Foundation’s scientific strategy and ensures that grants are awarded to the researchers whose proposals demonstrate the greatest potential for finding lung cancer at its earliest, most treatable phase, as well as extending and improving lives of all people diagnosed with lung cancer. LUNGevity’s awardees are working to improve our ability to detect, diagnose, and treat lung cancer, as well as prevent its recurrence. LUNGevity is the only lung cancer non-profit with a long-term, strategic focus on the early detection of lung cancer.
“We are thrilled to have Dr. Moghanaki join LUNGevity’s Scientific Advisory Board,” said Andrea Ferris, president of LUNGevity Foundation. “He brings expertise in radiation oncology as well as a deep knowledge of the VA healthcare system. We are excited to have his unique perspective and expertise to help guide our research program.”
Read the full press release here.Dr. Drew Moghanaki joins LUNGevity Foundation Scientific Advisory Board
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Hi, Dave,
Here's hoping for good scans today! I'm sorry it's been a long and frustrating process. I hope that each day you get a little stronger. Please post an update when you can.
We're thinking of you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Susan,
I am so glad to hear your good news!! Congratulations! We are eternally grateful for YOU and all you do for this community!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation- Tom Galli and Susan Cornett
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Hi, ViviAnn,
I will reach out to our members to encourage someone with experience with palliative care to respond in this thread. In the meantime, here are some posts and links that you may find helpful:
https://www.caregiver.org/understanding-palliativesupportive-care-what-every-caregiver-should-know
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation
Clean Bill of Health
in MEMBER UPDATES
Posted
Great news, Wheezer! We are happy for you!
Lauren
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Digital Community Manager
LUNGevity Foundation