Judy M.

Prayed for clear report. Sent from my SAMSUNG-SGH-I337 using Tapatalk

Tom, Thank you for your continued support. I belong to 2 public libraries and will check to see if either has your book available. Pretty sure one of them will figure out a way to get it for me if they don't. I feel like I'm overusing the forum right now, but so glad it's here. Not just for questions but to share what I'm learning. None of it may be new to others, but I figure you never know, someone might benefit from it. I agree that the quality of my life is in my hands and I intend to have another good day today. God bless you. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Tom Just saw your response to my baldness question. Thank you for replying. And, as you see from previous post that is what I'll be receiving. Good to know hair will grow back. Just need to get prepared for it with something to cover my head until that happens. Since it seems I have a couple of weeks before chemo starts I'm trying to get as prepared as possible for it. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Have yet another question after confirming the chemo I'll be having. It will be carboplatin/taxol. This appears from my research to be a standard combo. Learned there's about 100% chance I'll lose my hair with taxol, but the greatest chance of that being a permanent situation appears to be with taxtere which is a similar drug. My question is whether there are any vitamins I shouldn't take during treatment. Also, for my ladies who also had breast cancer previous to lung cancer learned yesterday I must stop taking the anastrozole that I take daily to prevent breast cancer from returning during my chemo. Got this info in answer to a question I ask during chemo education with N.P. I don't think she had thought of this because she had to look it up. Probably because the 2 primary cancers thing isn't the norm. So, my sisters in this situation might want to ask the same question if any of you are taking hormone blocking medication. Also, has anyone tried juicing during treatment? Read a bit about this. Don't know whether it promotes healing, but even if it doesn't would seem an easy way to get those fruits and veggies the docs want you eating. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Tom, Thank you. I found those and have read 1 of the articles. Will read the others. It does concern me somewhat that there seems to have been some disagreement between my Medical Oncologist and Radiology Oncologist on how best to treat me. Seems they brought on another Radiologist to help plan the radiosurgery. The way it was explained to me today is that they're treating each lung as a separate cancer. Rather unique way of looking at it. But I had prayed and decided whatever plan was mapped out I'd accept as God's will. And so far as I can tell there are no guarantees with any treatment plan when it comes to this anyway. You just soldier on. Tried to find your book to read but only found it available on Amazon for Kindle. Is there anywhere I can get another format. Thanks for being there for all of us. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Suzanne Thank you so much. I'm sorry to hear that you"re sad. It seems the longer time I've had to pray and come to accept my diagnosis the easier it has become emotionally. I'm a big fan of Elizabeth Elliot. She counseled that when something really awful happens you should think of what you'd be doing if it hadn't happened and do that. She called it 'doing the next thing.' That has helped. And doggedly turning my mind to good thoughts each time I start to obsess over the situation. Which is so easy to do. Especially on days that I see a doctor. That doesn't change anything. Just ruins the good time I could have had if I wasn't doing that. And my obsessing won't change anything. I guess I'm saying that I'm just trying to accept the things I can't change and keep a quiet mind. I can't control what the disease may do to my body, but with God's help I can control what I let it do to my mind. I'm going to pray for you every day. Let me know what you learn about your planned treatment. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Oh, and I want to add that my Oncologist told me today that he took the Radiologist to some medical site ( can't remember all these terms but I have it recorded and can find it if anyone wants to know) and stereotactic surgery is now standard of care for stage IV. Good news I think. Sent from my SAMSUNG-SGH-I337 using Tapatalk

My son says he hates the keyboard on my phone. Right now I do too. Sry about all the mistakes. Judy Sent from my SAMSUNG-SGH-I337 using Tapatalk

Tom, Where did you find articles showing risks and uncertainties in treating stage IV with stereotactic surgery? I'd like to read those. I think the short way of referring to the chemo I'll be receivjng is carbo/taxel? Is that right. N.P. talked to me about risks and side effects of chemo. She mentioned the taxel or taxol (don't yet know the spelling) is also used to treat breast cancer. I hope it isn't the one that can cause permanent hair loss. Bald for a while is a bump in the road, balk foever a boulder. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Just saw Med. Oncologist. The original plan was radiosurgery on all 3 lung nodules plus mild chemo. New plan is radiosurgery on largest (3cm.) Nodule in left lung and reg. Radiation + mild chemo on 2 small nodules (less than 1 cm.) In right lung. The reason being that the Radiology Oncologist doing the planning didn't think he could do radiosurgery on the 2 in my right lung. Could that be because they're too small? Glad the plan is now in place and should be able to get started next Monday. That's the good news. Not so good news is that the cancer tested negative for all the targeted therapy markers. Immunotherapy testing isn't in yet. Feeling good today and thankful for that. Hope the rest of you guys are also. God bless you all. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Suzanne Welcome. Our stories are SO similar. Which you know if you've read my posts. I also just recently joined this group and it's been very helpful. I was diagnosed with breast cancer February last year. Had surgery and radiation and everything was going great. Then developed pneumonia in Jan. which eventually lead to disgnosis of stage IV adenocarcinoma in March. Not a spread of the breast cancer, but an actual primary lung cancer. My birthday is also in March and had the P.E.T. scan the day before my birthday. I also quit smoking 17 years ago. Ironically, if my research is correct my cancer is the type nonsmoking women usually get. This certainly wasn't a part of my plan for my life. I'm still waiting to get started on my treatment. See my Oncologist again tomorrow, so maybe things will get rolling then. I've been ( as another member put it so well) freaked out off and on. It's a stunning thing to get hit twice with 2 separate cancers. But my Oncologist's N.P. says both are adenocarcinomas. I didn't know that. Don't know that I have any great advice or info. But I can certainly assure you that you aren't alone. Right now my faith in God is holding me together. It goes like this: I freak out, I run and cry out to Him in prayer, He gives me peace in my heart and mind, repeat. Then repeat again. He knew this was coming and I'm trusting that though it wasn't part of my plan it is part of His and He knows what He's doing. Please, keep us updated on how things are going with you. I'm so glad you've become part of this group! No the reason for joining of course, but the choice to join and share your journey. Judy M. Sent from my SAMSUNG-SGH-I337 using Tapatalk

Hi Carl I'm also newly diagnosed and freaked out off and on also. It comes and goes. Being a part of this forum has been a great help. Have received hope, info, and the company of those who have stood where we're standing. Hope I can give back and share also one of these days. Happy to see you here. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Or just Durrani Oligometestatic Method. Sent from my SAMSUNG-SGH-I337 using Tapatalk

If anyone is interested the treatment my Medical Oncologist is talking about can be read online if you type in Durrani Oligometastatic non-small cell lung cancer. I've read it. Just read it again and realized it's pretty specific about the radiation. Judy M. Sent from my SAMSUNG-SGH-I337 using Tapatalk

Thank you for the article and also for letting me know the term to use for this. I know Cyberknife is actually a machine, but didn't know what else to call it. Amazing the things you find out you don't know and learn on this path. I'm ready to get the ball rolling and get into some treatment before it spreads beyond my lungs, but I'm trying to pray, relax, and trust the Lord's timing. As far as I know stress never improved anything. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

That sounds like what I've read about it and what my medical oncologist was talking about. What the Radiology Oncologist was talking about with no seeds to mark my tumors and 5 or 6 treatments lasting only a couple of minutes sounds more like the usual radiation treatment just targeted to only treat the tumors rather than my entire lungs. Thanks for sharing your experience with me. Since the Radiology Oncologist has never done this sort of treatment for stage IV that means my Medical Oncologist has never tried this at this hospital at least. Next time I see him I'm going to ask him why he chose me as a first subject for this. Since he's written a paper on it along with a lot of other Oncologists I think he must have done it at some time somewhere. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Great news! Glad to hear it. Juidy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Tom, how long did your cyberknife radiation treatments take? What I've read says 30-60 min. and 1-5 or 6 treatments. The radiology oncologist I just saw said there would be 5 or 6 but only take a couple of minutes. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Or ask for referral to someone what has used stereostatic surgery to treat stage IV. Decided to try that. This is my life. Not sure I want to be someone's first effort. Sent from my SAMSUNG-SGH-I337 using Tapatalk

Thank you so much! Now I'm reassured that this is the same treatment my medical oncologist talked to me about. The radiology oncologist seemed reluctant to go this route and wanted me to know this is not standard of care for stage IV lung cancer. I did know that as my Med. Oncologist told me that. But standard of care seems to be heavy chemo and has pretty low survival rates. My Med. Oncologist said this is moving into standard of care. Which means it's rather new in treating stage IV. Now I just have to hope that my Radiology Oncologist who admitted he's never treated stage IV this way knows the correct dose to use. Sent from my SAMSUNG-SGH-I337 using Tapatalk

Just saw the radiology omcologist. He doesn't use Cyberknife and knows little about it. This is what I understood my Med. Oncologist recommmended. What he's talking about doing is a radiostatic radiation targeting the tumors. He seems to think this is the same thing, but admits he knows nothing about Cyberknife. He said 5 or 6 treatments taking minutes. This sounds more like traditional radiation to me. I don't want that. Am I right in thinkking it isn't the same? He was reluctant to treat my tumors this way and wanted to make sure I knew this isn't standard of care. I'm confused. Help! Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Thank you so much! That's good news. I thought you might have. And your NED using it has given me hope. God bless you for sharing. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Hi everybody. I'm a stage IV adenocarcinoma patient newly diagnosed. Because I have what my Oncologist called Oligometestatic lung cancer ( meaning I have 3 nodules in my lungs but it has not spread elsewhere) he recommends I have cyberknife radiation combined with mild chemo. My question has to do with the radiation. Because I'm a breast cancer survivor I previously had 33 radiation treatments to my right side for that and 2 of the nodules are in my right lung. I know the previous radiation on that side weakened my rib bones. So, I'm hoping I can still have the cyberknife. Has anyone had cyberknife radiation after having already undergone a usual 6 week period of radiation? My concern is that this might disqualify me or my ribs might break. I was told I'd not be able to have radiation to that breast again. Thanks for any input you might have. Judy M. Sent from my SAMSUNG-SGH-I337 using Tapatalk

I also smoked for 30 years, Mally. And now, 17 years later have been diagnosed with a type of lung cancer nonsmokers usually get. But I praise God I was able to quit and wouldn't trade these last 17 years. It was excruciatingly difficult at first, but grand ever since. Only wish I'd been able to quit sooner. I must have tried 100 times over a 10 year period before I finally quit for good. For me at least the key was perseverance. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk

Sry I misunderstood. Glad your chemo is going well. Judy