Judy M.

Thank you do much Tom. I'll give it a try. Only have my phone. Will that work? Sent from my SM-J100VPP using Tapatalk

And take the Miralax and Prunelax both when I need to. Not just one. Miralax morning, Prunelax evening. Sent from my SM-J100VPP using Tapatalk

* Wal Mart. My phone hated me. Sent from my SM-J100VPP using Tapatalk

Yes. Got mine at good old Ask Mart. Hope it works as well for you as it is for me. Sent from my SM-J100VPP using Tapatalk

Don't know how I ended up getting this in the small cell group, but proves I shouldn't try a blog. My cancer is actually NSCLC, adenocarcinoma. Maybe a smarter person can move it to the right group for me ( I hope). Judy M Sent from my SM-J100VPP using Tapatalk

Saw Radiology Oncologist for follow up yesterday. Got specifics on my S.B.R.T. Am writing this because my treatment plan has been rather unique. Hoping if it works out it will help someone down the road. Tom suggested a blog, but have no idea how to do that. So here is what I've done on advice of Med. Oncologist: Had 5 fractions of 1000-1500 centigrays each on all three of my lung tumors at twice a week over 21/2 weeks for a total of 4500-5000 centigrays. S.B.R.T. is normally done daily or every other day. I'm thinking they gave me a couple of days between because of Rad. On. concern about toxicity since I had received the standard radiation treatment of 33 fractions for another cancer less than a year earlier. Physicist assured me the fractions were too high for the cancer to develop resistance in that length of time. Have had no adverse reactions from the S.B.R.T. Now having Cisplatin/Alimta chemo every 3 weeks for 4 rounds. Just completed 2nd round. The difference in my treatment is that I was diagnosed with stage IV because of tumors in both lungs. That would normally mean 1st line chemo. Med. On. gave me the choice to try this for a cure and I took it. We will see when scans come up how it works out. Reason for the option was scans showed no spread of cancer outside my lungs. On another note ( and this one is a bit embarrassing) have had constant battle with constipation for years and normally take full dose of Miralax daily. The chemo seems to have made this an even greater problem. Was told I could take Sennekot besides the Miralax. No good. Didn't work. Ask for help and Oncology nurse told me to try Prunelax. Had never heard of it, but it works. Hope this helps someone else. Enough misery with cancer treatment for us all without having to deal with this one. Judy M Sent from my SM-J100VPP using Tapatalk

Congratulations Mally! Have no idea. Oncologist did pelvic and abdominal scan before chemo. Nothing there. Yay! At one time said scan in the middle of chemo and now talking scan at the end. I really think they reevaluate and make decisions based on what they're seeing as treatment progresses. Sounds like yours thinks you're doing pretty good. Just M. Sent from my SM-J100VPP using Tapatalk

Julie And I nursed 2 of my 4 children and still got breast cancer. This and no family history was why I really never worried about that. And I can affirm that breast cancer patients get a lot more public support than lung cancer patients having walked in both of those shoes. I don't believe stress causes relapse, but we do all feel better without it. But easier said than done in the situation. Sent from my SM-J100VPP using Tapatalk

Happy for (eventually) good results. Sent from my SM-J100VPP using Tapatalk

Glad to see your like so that we know you're okay Jeffrey. Hope your healing is speedy. Judy M Sent from my SM-J100VPP using Tapatalk

Had some mouth sores from chemo crop up. Biotene and salt/baking soda rinse are healing them up pretty quickly. Have since read that Cisplatin, part of my chemo cocktail, is notorious for that. Also that if I'll munch I've or popsicle through chemo treatment it will stop them. And that chemo tends to go to your mouth. Given the nasty taste experience I can believe this. Suppose it's along the same line as cold caps to spare your hair. Planning to take a bag of popsicles to infusion next round. It's a learning experience. Just Passing that on to any of you who haven't yet started or are dealing with the same issue. Judy M Sent from my SM-J100VPP using Tapatalk

It's 4:15 where I am. I'm awake and I'm praying Jeffrey. You're not alone. Judy M Sent from my SM-J100VPP using Tapatalk

SO happy to hear you finally got some good news and are headed to surgery. Will be praying for you the rest of today and in the morning. I'm an early riser and prayer, so I got you covered going into that surgery. An R.N. Once told me surgeons will scare you to death with all the dire possibilities so that they appear even more brilliant when all turns out fine. Made me think of it when I read your post about what the surgeon said. My husband had the same dire possibilities list with surgery to remove a tumor from his spine years ago. Freaked us both out. But he's fine. And we do believe his surgeon is brilliant so I guess it worked. Lol. Judy M Sent from my SM-J100VPP using Tapatalk

Thank you, Tom. Glad to hear it's about the same each time rather than becoming more difficult. My S.B.R.T. Didn't use the gold fiducials you had. The machine was a Varian TrueBeam and used C.T. to actually see my tumors each time. An elastic band was placed around my diaphragm as part of the planning and used to track my breathing. Judy M. Sent from my SM-J100VPP using Tapatalk

That's,great! I'm so happy for you! Sent from my SM-J100VPP using Tapatalk

And is there a difference between S.B.R.T. And 3D radiation or is it the same thing? Sent from my SM-J100VPP using Tapatalk

Yet Another Question Day 7 after chemo and getting my energy back. Have 3 more rounds to go. So my question is whether recovery will be about the same each time or do progressive rounds take longer each time to recover from. Tom, after just one round my hat's off to you for surviving 18 rounds in 3 years. Chemo isn't for wimps. Judy M Sent from my SM-J100VPP using Tapatalk

Tom Thanks so much. Glad to hear that Chemo brain will end. Since I have 3 weeks between treatments was hoping this horrible taste would end some time before my next treatment, but maybe not. Everything except sugary things tastes extremely bitter like a bitter pill. I do want to share with you that even though I don't have the results on my scans I'm experiencing the results of the S.B.R.T. My shortness if breath that I thought was C.O.P.D. has definitely improved. So I'm supposing that was the result of the tumors. Explains why my C.O.P.D. diagnosis went from mild to severe all of a sudden. Judy M Sent from my SM-J100VPP using Tapatalk

Chemo Questions Does chemo brain last at all or is it only temporary? And is there a time limit on how long food tastes nasty? Or is all this just individual? Thanks for any input. Just M Sent from my SM-J100VPP using Tapatalk

Lemon water helps also. Both have backed it off for now Sent from my SM-J100VPP using Tapatalk

Had scans last Wednesday and started chemo on Thursday. Doc is wanting to keep scans his little secret until I see him on Wed. I may let him. Lol. Not too bad until this morning when nausea hit in spite of meds. Lemon water and peppermint candy is helping, so thought I'd pass that along. Hope all you guys are doing well. Judy M Sent from my SM-J100VPP using Tapatalk

Pure Aloe Vera gel. I hate this new phone. Sent from my SM-J100VPP using Tapatalk

Julie I had the standard radiation treatment of 33 treatments taken 5 says a week for 6 1/2 weeks for another cancer and just completed 5 S.B.R.T. treatments for lung cancer. I had no trouble at all with it other than some skin redness sort of like a mild sunburn and not painful just itchy. And one cannot scratch it. Very bad idea. That's asking for infection. Will tell you what my Radiology Oncologist told me since it worked very well for me. Use only Dove soap and just sqeeze soapy water over the treat area. Do not rub that area ever. He also had me apply aquaphor on the treated area 1-3 times a day. You can get it at Wal Mart. And the treated area would sting a bit immediately after sometimes. I'd put ours Aloe Vera gel on it before I got dressed again and that would stop it. You can get that at Wal Mart also. I'd heard the horror stories, but had very little trouble with radiation treatments. I'm the opposite. Getting ready to have chemo for the first time next week and wondering how I'll reacte. Seems no one knows because everyone is different. That may be true with radiation also. Don't really know. Just sharing my experience. Hope yours is as easy as mine have been. Just M Sent from my SM-J100VPP using Tapatalk

The only thing I know is that an elevated white blood cell count usually means you have an infection. It's an indication your immune system is fighting something. Just M Sent from my SM-J100VPP using Tapatalk

Sandra The hospital gave me a booklet that lists various services including financial aid. Here are a few that are listed: Cancer Care 1-800-813-HOPE Chronic Disease Fund 1-877-968-7233 The First Mile Foundation www.thefirstmile.org Life Beyond Cancer Foundation www.lifebeyondcancer.org Patient Advocate Foundation 1-800-532-5274 This one says they offer a state by state directory of information for patients seeking financial relief for a broad range of needs. I haven't had contact with any of these, but perhaps they may be of help to you. At least it's a place to begin. Judy M Sent from my SAMSUNG-SGH-I337 using Tapatalk