Tomm

Charles -->>> Great news!! Your a real fighter and a "I can take it guy" and it sounds like things are much better for you now...The future looks bright, you may need sunglasses.. Barb -->> How are you doing after #5? Me-->> I got #6 on thursday and just got some fatigue, going to the saturday farmers market today.

Jane Lee .. great news to hear your tumor is dead

Hi Kelo, You really have an attitude of such a fighter and taking everything they toss at you and believing in your future. Positive forward thinking is a good thing for all of us. I am really sorry to hear your dealing with pain and I hope your team helps. I hope you have great success with your new protocol. Rower.. That's some nice research you did reading the Society of Oncology Association. (ASCO) abstracts. I'll try and read that too. Possible Durvalumab people: I want you to know that not everyone gets bad side effects but some that do are nice enough to share that information with us so we know what can happen and what to monitor. I am getting infusion #6 on Thursday, my thyroid is off THS 29.63 and I have fatigue and that's all. I have a Naturopath Oncologist that has me taking 18 natural supplements & coconut water. Other Durvalumab Patients: Please post that you are doing well or not and share that good and the bad, it will help others to know we are not alone. good luck fellow travelers

Charles, really sorry to hear you are having a delay in durva with all your side effects. It sounds like you have the will to withstand the obstacles it's throwing at you and the knowledge that it is helping. I think it's important to be an optimist like you and Kelo..It helps me to stay positive thanks for that.

Kelo the point of the links isn't about a cure from cbd/thc for any type of cancer but it's about CBD helping Chemo pass through Blood-Brain Barrier Study it sounds like your getting the kitchen sink thrown at you, hope you get some pizza out of it. Stay strong and please keep us post on your progress. Barb: no dizzy here but my fatigue increased on day 2-5 after and now OK ..

Tom, no proof that chemo works for everyone but it does for some, there are some clinical trials on these that I know we all hope will find the way for all of us.. thanks for being here for us, you have been a great help to me with this site and your knowledge and personal life that you share . best regards,Tomm

Kelo, I don't taste it, I put it in capsules and took it every 8 hours. If you keep taking it you will build up a tolerance and can take a larger does. Thc kills tumors too... keep us posted

Hi Kelo, your positive attitude helped me make the decision to take Durvalumab. The posts you make offer all of us hope to keep taking what gets thrown at us and fight back with a forward attitude. I a few years ago when I was getting chem/radiation I also ate CBD/THC oil and killed 4 tumors with the combo. There is a lot of research and some clinical trials using CBD/THC for brain cancer. I did a google search and found a few links that offer hope. This link is from us gov. site https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5964193/ and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6200872/ a lot of articles from this search ..cannabis brain tumor drug hope CBD's Role in Beating Deadly Disease Uncovered in Blood-Brain Barrier Study https://www.inverse.com/article/55030-cbd-could-help-deliver-chemotherapy-drugs wishing you the best on your travels...

Hi Barb, not gaining weight but losing 1+ lb. within a week ... not very hungry for a few days after. When I lose weight I have some non-dairy ice cream, more ghee and get the weight back. Sleep with difficult for me too. enjoy your weekend

infusion #5 done.. got some fatigue but my Thyroid is off the chart. I am not taking any thyroid medicine at this time. I was taking 60 units of armor but was told to stop Thyroid stimulating hormone measurement (TSH)29.633 uIU/mL0.358 || 3.74

Barb, I wonder too, the trial was not with durvlumab, it was a small test and it says MAY so I make a personal choice to use it because I really believe it did help me become Ned but I wait a few days after infusion. Administering cannabis to patients with cancer undergoing immunotherapy may lower the response rate to therapy without having an effect on progression-free survival (PFS) or overall survival (OS),

this link https://www.oncologynurseadvisor.com/home/cancer-types/general-oncology/cannabis-reduces-response-rate-to-immunotherapy-for-cancer/ I believe it helps to keep side effects away and cures

I found this link I want to share. This is Updated Pacific Study Data IMFINZI® (durvalumab) is the only immunotherapy to demonstrate overall survival at three years in unresectable, Stage III non-small cell lung cancer https://www.astrazeneca-us.com/content/az-us/media/press-releases/2019/imfinzi-durvalumab-is-the-only-immunotherapy-to-demonstrate-overall-survival-at-three-years-in-unresectable-stage-iii-non-small-cell-lung-cancer-06012019.html These are a few of the natural supplements I take that are anti-inflammatory. Fish oil caps turmeric extract called curcumin cgf chlorella CBD caps ..I don't take this the day before or for 2 days after infusion Propolis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4345176/ berberine magnesium melatonin

I hope your eyes improve, I live in the grass seed capital of the world and sometimes I can see yellow smoke float by (hay fever) so far I'm OK. Duva infusion #4 .. just some fatigue, all blood work good. Hope you all are doing well enjoy the season

Charles, It's really great to hear your great news and it let's us know it does work. What is your PdL-1 expression % ? It sure is nice that there is a treatment after chemo/radiation for us.

Charles, That's great news, you give us hope with your posts enjoy your great news... we are

Barb .. I'm not hungry at all ... guess everyone is different

fever gone.. I asked the oncology doc about my thyroid and he told me to see whoever takes care of that. I have a naturopathic physician and she is changing my dose. I found out that about 2 years after chemo there can be a thyroid issue and i was already on a small dose but now my numbers are more out of normal so will adjust.

infusion #3 yesterday.. I had a low grade fever and my thyroid is off, I did some research and found this link. I also got a case of fatigue. I think we all need to monitor our thyroid. Thyroid dysfunctions secondary to cancer immunotherapy https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5953760/ enjoy the season

Hi Barb, I just got fatigue but maybe it's left over from chemo. I get infusion #3 tomorrow, hope your goes will too. Charles .. so sorry to hear your still dealing with side effects. Did you get side effects with chemo/radiation?

I wanted a local craft beer...peanut butter and chocolate but I read that no alcohol is allowed with drug

Hi Barb, it must be a Duva thing, I had a slice of pizza today ..anyone else ?

Barb, glad to hear your doing OK with 1st infusion.. please update if you have any side effects and I hope others will tell us if they have side effects.. enjoy the weekend

Duva infusion #2 on Thursday. All I got was this fatigue but still able to mow the lawn and go to the saturday farmers market. Hope you are all doing well

Hi Barb, I've only had one infusion 13 days ago and no side effects, I already had some fatigue left from chemo/radiation but still working in the garden and going to town. I think it makes your hair grow faster and mine is coming back after the chemo loss. I read that Durvalumab can cause Vit. D loss and found my level very low, I'm raised my d pills up. I get my 2nd infusion tomorrow. Good luck on round one and the best to fellow travelers