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Everything posted by Curt

  1. Curt

    Amazon Smile 😃

    I just revived an email that Lungevity received $801.89 from Amazon Smile. To date Lungevity has received $8,906.55 from Amazon smile. Amazon will donate .5% of all purchases to a charity of your choice. You just visit http://smile.Amazon.com and setup which charities you want to receive the donation. It does not cost you anything. I shared this with friends on social media and many have chosen Lungevity.
  2. Conor hearing you have a mass on your lung is very scary. Take it one step at a time. Mass doesn’t mean malignancy. While doctors can make well educated guesses based on scans an actual diagnosis can’t be had until a biopsy is done. The advice that Gary and Michelle are giving is good. When they do the biopsy insist on their doing biomarker testing. If it is in fact cancer the results of the biomarker test will drive treatment options. Let’s hope the masses are benign, but know that if they are malignant there are ever improving treatments available. Hang in there.
  3. Hi Katie. I had a RUL lobectomy about 18 months ago. I also have return air duct plenums like Tom. I change those filters out every three months. I purchased a humidifier/air purifier. Dry air was rough when I was recovering. Here is the one I use. I change the filter on this monthly. https://www.honeywellstore.com/store/products/germ-free-cool-mist-humidifier-hcm-350.htm Good luck with recovery. The first few weeks are rough but you’ll start getting back quickly.
  4. I had a right upper lobe Lobectomy 18 months ago. I was petrified. The recovery after surgery was not as difficult as I feared it would be and I am still NED. I was up and back at it three to four weeks later. Very minimal lingering things like numbness at the incision locations. Very minimal. Your aunt will do great. Hang in there.
  5. Hi @Barbara H. I had a lobectomy about a year and a half ago. I was petrified of having the tube removed. It turned out to be a relief when it was taken out. It didn’t hurt at all.
  6. @Lin wilki I wondered the same thing about whether she really did have COVID or not. Her husband said he had mild symptoms but that hers were more severe.
  7. I spoke to one of my long time clients a couple of months ago during the peak of the COVID pandemic in NY. She was having an issue in her home that I helped her with it via Facetime. At the time she said that she believed that both her and her husband had COVID. They were both in their 70's and I was concerned for them. She said they were not feeling well, had symptoms of COVID but hadn't been tested. At the time in NY the common practice was if you exhibited symptoms you were assumed to be positive (testing was hard to come by) and asked to quarantine. Her symptoms didn't improve for o
  8. Hi @ChiMama. I had none robotic VATs in February 2019. The surgery was not as bad as I imagined it would be and I've made a full recovery with no follow up treatment. My lung capacity returned to pre-surgery levels. I have some residual discomfort, similar to what you describe from your biopsy, but it is manageable and still decreasing. You've gotten great advice from Lou and some others. You will do great.
  9. Coughing up blood is not usually a symptom of a lifting injury. You could cough up blood if you had a more traumatic injury to your lungs like dropping a box on your chest. It could also be a symptom of plenty of ailments, cancer being one of them. It’s worth getting it checked out for sure.
  10. Hi Cathy. I also had a Lobectomy. I hope your recovery is going well.
  11. Curt


    I’m sorry to hear about your diagnosis @Tbaker. Finding out is scary. Finally knowing what you are confronting and having a plan can bring some relief...and resolve. There are good treatment options available. Hang in there.
  12. I was lucky enough to have a VAT surgery but still experience the nerve issues a little over a year post surgery. They get better then worse again. I haven’t been able to figure out why sometimes they are ok and others they aren’t. I’ve started to do core exercises to try and strengthen the area. I’m not sure if that will help or hurt. My surgeon just says maybe it will go away and maybe it won’t.
  13. I remember when the wedding was the dream. I hope this time is as peaceful and calm as it can be. Your mom is lucky to have such an amazing caring person by her side. You and your mom will be in my prayers.
  14. Curt


    Hi @Tbaker The wait is the worst part. Finding out what I was confronting and what’s next was a relief for me. I hope your surgery gets here sooner than later.
  15. Curt

    One Year Today

    Happy one year Deb. Here’s to many, many more.
  16. Curt


    @REG Definitely not a death sentence! You’ve already met plenty of people who are proof of that. Initial phases before definitive diagnosis are very scary but there are good treatments available and things will settle down once you have a plan in place. Hang in there.
  17. I don’t think anyone ever thinks they will get lung cancer. Don’t beat yourself up over the smoking thing. Many people who never smoked, including me, get. The rates of none smokers getting lung cancer are increasing. I did have surgery last year. So far so good. Surgery is a good option for treatment if you can handle it. There are some other really good treatments available if surgery isn’t an option.
  18. I haven’t taken Keyruda so I’m not sure of the side affects. I will say that when you have cancer it feels like all ailments must be because of it. They should definitely be pursued but hopefully it’s just a cold that will pass. I had one a few months ago that felt exactly as you describe, though my joint pain was not so bad that I had to ice them.
  19. Hello @Jannysuzy I’m sorry to hear about your diagnosis. I’m glad you found this group. It is a great place for support. I was diagnosed with a “Typical” carcinoid tumor last year. As if there is anything typical about that. The initial time after diagnosis was terrifying for me. It started to settle down as I found out more and had a treatment plan settled on. For me it was a right upper lobe lobectomy. It’s amazing how your mind can switch from absolute despair into its fight response. Hang in there.
  20. Hello and welcome from the island of ENY.
  21. @D iane here’s to a quick and successful two more cycles. Hang in there.
  22. Hi @Ginger1 I have heard of lung nodules appearing and disappearing due to infections. Why was your other lung removed?
  23. Curt

    Surgery March 12

    @LyndaT the ventilator was also my biggest fear. I read somewhere that there was the chance you could be on one post surgery and was so scared of waking up with a tube down my throat. I went into surgery not knowing if I actually had cancer and was scared I’d wake up and not be able to communicate to find out. I asked my surgeon and he looked at me funny. He said it was incredibly unlikely that would happen. He said a very low chance and only if my lung didn’t re-inflate. He also said if I had to be I’d be sedated and wouldn’t know it was in. I woke up after surgery feeling great. Wh
  24. If you use the below link when you shop on Amazon .5% of your purchase will be donated to Lungevity. Your purchases won’t cost more than normal and you can use the link every time you shop on Amazon. It a a really easy, cost free way to support a great organization. Based on the boxes that show up on our porch each day I’d say my wife is on a one woman mission to cure cancer though shopping. Who’s with her? http://smile.amazon.com/ch/36-4433410
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