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missyk

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Posts posted by missyk

  1. Hi Alli and welcome. Glad you found this site...sorry you had to.

    I know (as does everyone else on this board, I'm sure) that hearing stage 4 seems like insurmountable odds...but there are many people here who are beating those odds every single day. Hope is the most important thing. A positive attitude. It's not always easy...but it's do-able with lots of love and support for the person doing battle.

    As far as support goes. My experience is just to be how you've always been with your mom. If you've always joked around...try to find times where you still can laugh together. If you normally have had in-depth conversations with her, keep those going. Just remind her that you love her, that you're there to help her any way you can, and that you're behind her 100%! Mom tells me that (other than the grandbabies) that's what helps her the most.

  2. Since Mom's had so many radiation treatments to so many different areas of her body (starting with the pelvic region when she had cervical cancer) we joke with her that she glows green. :lol:

    She does, however, hit the skids about a week after treatment ends. She says "I FEEL wonderful, I just have NO energy, no stamina." Gradually she starts to regain that lost stamina and energy...it just takes a while.

    Again, as Ry said, if there's a fever or anything you're in doubt about...call the dr. It's not being a pest or overly worried, it's being cautious.

  3. Welcome, Traci, but sorry you had to find us. As Dazy said, there are many here who are family members and/or caregivers to someone who has lung cancer and anyone effected by this disease is welcome!

    Not knowing your mom's treatment history I can't say for sure...but I know that my mom gets extremely fatigued after radiation treatments end, usually a week or two after. She told me just last night that she "feels" wonderful, her butt's just dragging very badly and she has no strength. Hopefully that gives you a little insight, at least.

    Again, glad to have you here...welcome to the LCSC Family! Many prayers for you and your mom!

  4. Thanks for posting this. I saw on the news last night that he'd passed and knew of the work he'd been doing in raising awareness for all kinds of cancers. Many prayers and many thanks to his family for allowing us to share not only in his life on the track, but in his journey with cancer, too.

    And awww crap...I'd NOT heard that Benny was in ICU. Crap crap crap! Sending prayers his way, too!

  5. It's early yet...just found out, actually...but you guys are so much like family I just had to share.

    I'm pregnant! LOL

    My daughter will be 8 in April and this wasn't "planned" at all...but we're happy. Mom is in her glory and said I must have planned it because I know she can't go anywhere when she knows there's a new baby on the way! :lol:

  6. Seems like Katie has you covered on the ins and outs...and I have nothing more to offer there (She's awful good at what she does!)

    But I'm sending lots of prayers and good vibes that you get this all straightened out soon so you and your mom (and dad) can take a nice deep breath and have a moment of peace!!

  7. Does your hospice offer the help of a social worker? If they do...get ahold of her (usually it's a woman) and ask for her help in understanding the ins and outs of the program. We did that when Mom was using hospice.

    As far as ER goes, here, we weren't "allowed" it, either. We were to call the hospice nurse on call and she would "take care of things". When Mom chose to have the SRS again this last time, hospice ended services (for now) because it's considered "life extending". When/if she needs the services again, they'll be back.

    I'm sorry you're having to go through all this confusion! Many prayers for you and John!

  8. Hmmmmm...Never thought about naming the tumors! LOL And I thought we were odd! *Grins* :lol:

    GREAT news on your update!! Happy New Year, indeed...and wishes for continued success in treatment!!!

  9. If you read down through Mom's history below you'll see why I sometimes quip that she's the "clotting queen". It's terrifying and there have been times when even she figured it was a clot and just let it go and go until it was causing serious issues for her...never cluing US in that there was a problem.

    You can't know, at all times, what's going on inside her body. So, as everyone else has said...give yourself a break on that one.

    As far as clotting goes...Mom is either clotted up or running thin, usually. We've come to see it, as time's gone on, as just part of how SHE reacts to all the stuff they're doing to her. It takes some time to get used to "the new normal"...but somehow you do.

    Many prayers for you and your family...

  10. This is going to sound REALLY strange (at least it did to us while Mom was going thru it) but Mom was able to eat the burger part out of a very LARGE CHAIN HAMBURGER PLACE even when she could no longer eat the bread.

    So, maybe you can try the cheeseburger...just try it without the bread?

  11. Oh Geri how I LOVE this topic!!

    My family is so FAR from serious most of the time it can make people wonder!!

    +++++++++++++++++++++++++++++++++++++++++++++++++++++

    Mom:(Calling me to remind me of plans for Christmas) "I have a brain tumor"

    Me: :shock: You DO????

    +++++++++++++++++++++++++++++++++++++++++++++++++++

    Mom: Well, hospice came and took everything out.

    Me: Why? Ya not dying fast enough or something?

    ++++++++++++++++++++++++++++++++++++++++++++++++++

    Mom relaxing, getting a foot rub from her hospice aide before they pulled out (because she wasn't dying fast enough! LOL) I walk in, look at the aide and say "You know, the ONLY reason she got lung cancer was to get her legs and feet rubbed. We got tired of doing it!"

    As you can see...we TRY to have a good time. Granted, there are always times that the sadness takes over...but usually, around here, the laughter follows quickly again!

  12. Because of all the statements about not liking the words for the lower anatomy of women...

    My best friend's mother used to use "middle possible".

    We've never been able to explain it and her mother died many years ago so we can't even ASK now...

    And Maryanne...that's just funny!!!

  13. Congratulations!!!

    I used to joke with Mom that the only reason she "got lung cancer" was to get the leg and foot rubs from her hospice aide! LOL :wink:

    Wishing you all the best and that the families you work with are wonderful, too!

    xoxo

  14. "The New Normal" (that's how I always see it in my head when I say it :wink: ) is about the worst thing I've ever dealt with...yet has been a blessing. It has taught me, as it seems to have helped you to see, that *I* can't fix the world, as much as I'd like to and that sometimes it IS ok to slow down and just live life one day at a time and ENJOY it!!

    And yes...I believe everyone touched by this disease ends up being a "survivor" in a way, too.

    Many prayers for you and your mom!

  15. Danielle...

    Welcome! As you've seen from being around a lil while, there's no better place for support, information, and caring around!!

    I just have to say, the dr's telling your mom "inoperable and incurable" made me bristle. (But I do that sometimes :wink: )

    The first words that were said to me that really sunk in here were these: There is NO 0% survival!! And there is ALWAYS hope!

    My mom was told she's be lucky to see a year when she was first diagnosed...in May of '05. :shock: She's fighting, her dr's are fighting with her, and so are we (including the people of this board!) her family!

    Welcome, again, to the family. Let us know how we can help you if you need it! And remember, there is always hope!

  16. ((Kasey))

    Many prayers for a quick recovery from what you're dealing with right now (hives suck! and muscle strains are the pits!! Plus pnumonia? Sheeh woman!)

    Also kicking in prayers for wonderful scan results when ya get to them.

    Remember, I'm here to give someone/thing any butt-kicking that's needed :wink:

    :x

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