BC JOE
-
Posts
9 -
Joined
-
Last visited
-
DFK reacted to a post in a topic:
Durvalumab
-
DFK reacted to a post in a topic:
Durvalumab
-
Great news!!!!!!!!!! I do have a couple questions. My onco told me the tumor will never be gone it is now scar tissue which they hope doesn't contain any cancer. Yours is gone? Did your onco say that perhaps the chemoradition did the job? When i ask mine about my good response so far she says we don't know if it's the immuno or chemoradiation. I'm almost a year since treatment started and the last CT said "stable". 9 more Durvalumab treatments, have stopped twice for various problems. I don't post much but reading everyone's journey is very helpful. Joe.
-
BC JOE reacted to a post in a topic:
Durvalumab
-
DFK reacted to a post in a topic:
Durvalumab
-
Sillycat1957 reacted to a post in a topic:
Durvalumab
-
20 years here. ODAAT.
-
DFK reacted to a post in a topic:
Durvalumab
-
Charles reacted to a post in a topic:
Durvalumab
-
Charles, I ALMOST didn't get mine yesterday. Astra Zeneca is changing the way they distribute the drug at least in my area of Canada. Spent two hours on the phone Monday and someone from the pharmacy that is no longer distributing the drug went and got one from their commercial side and took it home with him kept it in his fridge and hand delivered it to the infusion clinic. Unbelievable how helpful some people in the field are!!!!!!!!!!!!!!!!!! I will be writing a letter to his supervisor about it. Infusion #8 yesterday. Side effects are less but the shortness of breath is a concern to onco, she thinks it's from radiation. Will write about my journey when lawyer gives me the go ahead. Thank you all for posting, it has help a lot.
-
Yes
-
Tom Galli reacted to a post in a topic:
Durvalumab
-
Robert Macaulay reacted to a post in a topic:
Durvalumab
-
Yes i do get blood work done at Life Labs. I look at the results before my onco through myehealth. Thanks. Hope you are right. My onco said " i've never seen this before " lol. All good now.
-
Thanks Bob. I have read all the posts here, more than once. I have watched closely what you and Tom have posted. I was a bit surprised you got different chemo than i did, given we are treated by the same agency. I got cisplatin and etopiside. Same radiation it appears. I started Durvalumab a couple weeks after chemoradiation, i get my 6th treatment tomm. Had alot of the usual side effects but got one i haven't read about. A couple days after 3rd treatment got what can only be described as a sunburn on my chest. Funny thing was no skin changes just felt like a sunburn. thankfully it went way in a couple weeks as my onco was going to stop treatment. I will post more of my battle soon. Thanks.
