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Sillycat1957

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Sillycat1957 last won the day on June 6 2020

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About Sillycat1957

  • Birthday 12/12/1957

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  • City
    Oakville
  • US State (if applicable)
    CONNECTICUT
  • Country
    USA
  • Gender
    Female
  • Status
    Lung cancer patient/survivor
  • Interests
    Lung cancer/immunotherapy

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  1. Hi there Terry B, So happy to hear your on the mend. Our bodies do strange things to us while on Durva. I completed al 26 infusions, with a mirad of side effects. I did, however, call my oncologist whenever something didn't just seem right. I was always screened by the nurse first, which in my opinion was best, because they deal directly with us and could tell me better if I should be concerned. My Dr would then call me. With that being said I wish you well and continued luck on your Durva journey 🙏 Namaste Roseann
  2. Hi everyone 😃 Thanks for the updates, I too, Barb have anaphylaxis, penicillin and a most common one Tylenol which is acetaminophen, it's in everything. So I'm still waiting for everyone to get their shots first. A nurse where my daughter works has gotten her first and second shot of the vaccine, side effects were minimal, however she has now contracted the virus! So go figure! She was one of the first group of nurses at her facility to be vaccinated because she is a critical care nurse. So that does scare me too! Well, still a wait and see game for me. I wish everyone the best! Have a wonderful day, Namaste 🙏 Roseann
  3. Golfman, Sorry to hear of your recurrence, but am glad to hear that you have a new treatment plan in place. Best of luck to you! Take Care, Namaste Roseann
  4. Lou T So sorry to hear about your wife's reaction to the vaccine. I hope she continues to improve. And the best of luck to you when you get yours! Take Care, Roseann
  5. Yeah, I guess it's just fear of the unknown. I will go with what my Doctors recommend. If I have a reaction, I hope it is not a bad one, If I don't I'll be very happy 😊 thanks everyone, for your valuable inputs, I'm just in no rush to get it Lol 😂
  6. Well, I choose not to get it. I never got a flu shot in my life! I'm allergic to penicillin and acetaminophen, so I'm very sceptical of any of that stuff. I shouldn't be right 🤣 I had all kinds of crap chemo, immunotherapy, pain killers Lol! But my Dad died the day after he got a flu shot back in 1995, first time he ever got one 😭 so no I don't think so, not at this time. Just my humble opinion 💟 Roseann
  7. Sounds good to me! Thanks for the article Barb, 👌
  8. Michelle, I love Lands End, they are next on my list for their beloved turtlenecks. I gained so much weight XS just does not work for me anymore, I think I need a M. I have since learned to order both a M and a L and return the one that doesn't fit. Getting smart in my old age, well retail savvy anyway 🤣 Have a great day Roseann
  9. Hi everyone, I just realized I never hit the submit button on my last post LOL! My shopping trip was very fruitful, fun and very gratifying! Barb, my last PET scan in November showed an SUV uptake of 2.2 down from 15.6 so I guess we both shoould do a happy dance eh! I am just disappointed that Durvalumab didn't do the work that I thought it would, my tumor is still 8mm after Chemo/Radiation combo. I know that is great but I can't help but be bummed, spending a year of being sick and fatigued and in pain in places and having to take stupid pain pills and whine whine foe what seems like nothing! But then again it did halt any progression right? Ugh! now I have to wait until the 24th to see my Oncologist, because our state was put bake in the stage 2 zone because of an uptake of Covid outbreaks, my appt was cancelled til then. Oh well, I'll remain as calm as I can 🙃 Roseann
  10. Hi Barb, Thank you LexiCat and Barb, that helps a LOT, however, I am on my way still to some much needed reatil therapy, the waiting for the results has done fried my brain, So off I go 😃
  11. Barb, still hoping for them great results, saying prayers and sending positive vibes your way! On another note, both of my results are in. My Bone scan came back and everything looks good on that Yay! My CT Scan was confusing, my tumor George stayed the same, 8mm, ok so he just wants to hang around been that size since last Pet scan in Nov of 2019. It also showed 2 nodules that were 2mm on my left lung that were there on previous scans but were not mentioned, WTF! Also I have a nodule on my Thyroid, from my previous scan, that should be followed up with an ultrasound, again WTF! I read through all my previous PET and CT scans and it doesn't mention anythin about nodules in my left lung anywhere, is this kept like a secret in invisible ink until it reaches a certain size? As for my thyroid, I have had multiple small cysts there in the past that have come and gone, but still, if they have been there shouldn't they have been on my report? Also, I should mention, my reports have been read and dictated by the same radiologist. So, did Durvalumab work for me? I'm not feeling very confident that it did right now. On the one hand it shrank my original tumor from 1.7cm to 8mm, but also chemo and radiation was still doing some heavy duty work in my body as well. Hmmm. I am going to do some heavy retail therapy today! I guess I will wait to see what my Oncologist says on the 24th, she is the expert, and I hope she can explain my year of torture LOL! Take care, Namaste, Roseann
  12. Barb, No, no, no, but yes I do understand the scanxiety you are feeling! Wholeheartedly, we want them so badly, yet, then, we are terrified of the what ifs. With that being said, we are better off with the knowledge of knowing exactly what those what ifs actually are, if anything. Could be a wonderful outcome like NED! Or if it isn't, well then, we can get our team of Docs on the ball right quick and get a plan in motion I say 😃 I had my bone scan on Monday, I go for my CT scan on Thursday. Ugh! I don't see my Oncologist until Nov 24th! But I get copies of my scans emailed to me, so I will be sure to be asking for an interpretation from my fellow Brainiacs lol! I will be thinking of you tomorrow Barb, I will say a prayer that your scan will be a clean NED one Take care 🙏 Roseann
  13. I'm always bouncing around reading different threads, and came upon this sandwich question, well my favorite is turkey and salami with provolone cheese, topped with red roasted peppers, drizzled with some olive oil, and some mayo on Italian bread Yum! I hate liver no matter what shape or form it comes it bleh! Take care everyone Roseann
  14. Barb, Never had a bone scan in my life. Last PET scan was Dec of 2019, and MRI was Jan 2020, I was surprised that my Onc was just doing a CT scan and not a PET scan, she said this visit was for re staging my cancer. I'm confused on that front as well, how the heck does the stage of cancer change? Aren't we still... In my case 3A until I progress hopefully I never will. Unless my scans are just NED? IDK I just hope that's the case hoping and praying that Gods' will is that Durva has did it's NED magic 😃 Oh well still a cancer newbie I guess Take care all, have a nice evening Roseann
  15. Tomm, you are just too much lol! glad your still NED and getting back to a normal pace once again 😃 Lindsay, my post Durva life is coming along, as I wait for my scans in November I'm starting to get a little squirrely here though, the scanxiety is starting to kick in! But, I am returning to my job part time next week Yay! so that will keep me occupied (Covid be damned) it will be a safe place to work, and I will be amongst friends and I just can't wait! Question? Anyone else have a bone scan after they completed Durva treatment? I've never had one, I read up on them and I'm just curious, I do have arthritis, and I read an article that stated that ICIs' can cause it to become problematic and cause some cancer progression. I did not like that, at all. This is a short excert of the article from MedPage Today dated Oct 9th, 2020 I can't fit the whole article, and there is no link to share it, so should I be worried? Thanks and Take care Roseann ***Cancer patients treated with immune checkpoint inhibitors (ICI) who develop severe arthritis may be at risk for progression of the malignancy, a single-center study suggested. Almost 90% of patients treated with ICI develop immune-related adverse events, which can include pulmonary, gastrointestinal, dermatologic, and rheumatic events. Arthritis has been reported in almost 4%, with the most common presentation being a rheumatoid arthritis (RA)-like phenotype characterized by small-joint involvement. In a cohort of 42 patients with ICI arthritis whose baseline Clinical Disease Activity Index (CDAI) was 15 and who were followed for a median of 7.4 months, the median time to arthritis onset was 2.8 months, according to Karmela Kim Chan, MD, of the Hospital for Special Surgery in New York City, and colleagues. In a multivariable analysis that adjusted for time to onset of arthritis after initiation of ICI therapy and for the use of disease-modifying antirheumatic drugs (DMARDs), each one-point increase in baseline CDAI was associated with a 9% increase in the likelihood of cancer progression (HR 1.09, 95% CI 1.00-1.19, P=0.05), the researchers reported online in ACR Open Rheumatology.
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