j ross
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Posts posted by j ross
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Ron Joseph
in GRIEF
Dear Janet
I am so so sorry to hear your sad news. Please accept my condolences. Although I am so far away I am thinking of you and your family.
Jennie
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Happy things have improved. Think9ing of you.
Jennie
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Hello Jim
If one of us has a set-back we all feel it. This is upsetting but you will once again prevail,
Jennie
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hello Chris
Pluerodesis is done when there is fluid between the pluera and lung. (This is not very technical). Luckily they found there was no cancer cells in the fluid. I believe they seal the cavity so no more fluid can accumulate. (They sometimes call this talc procedure). The only problem is that this area area always lights up on a pet scan due to this procedure so one never knows whether this is tumor or aftermath of procedure. [Hope this is understandable]. The rash was at first unsightly. Now it has cycles of severity although it is manageable. Barry does not like using creams etc.
We do ask if tarceva is a option but our oncologist feels that if things
are ok they should be left. We have been told by a senior oncologist at a lung cancer centre in London that they have had modest success on switching patients from iressa to tarceva on progression.
The main barrier to leading a normal life quite frankly is the worry.
Best wishes
Jennie
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hello Chris
My husband is on iressa which is similar to tarceva.
He has been on this drug for one year now and is stable (or ned they are no sure which). Side effects have been manageable diarrhea and skin rashes acne. Long may this last
Best wishes
Jennie
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In the uk they tend not to give drugs but to wait until the count is higher or give a transfusion.
This happened once to Barry when he was receiving chemo. He had to wait a week (he did not need a transfusion] but treatment commenced the following week.
Jennie
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Rich
This is the news we like to read. Brilliant. Please keep it going.
Jennie
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Brilliant news which is needed.
Jennie
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Hello and welcome
As you can see from our profile Barry's presentation was not dissimilar to your own. He did have surgery and he feels this helped. Good luck
Jennie
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Hello Nelson
We live near London. My hushand Barry was diagnosed 18 months ago. The first oncologist more or less wrote us off. We sacked him. Barry is now on Iressa which I don't think they are precribing any more except for existing patients for whom the drug has been beneficial but you should ask about Tarceva which is meant to be more effective and has been shown to be particularly beneficial for never smokers. Never be fobbed off which I think is a tendency in the NHS. Get clued up on treatments and be very assertive. Barry is currently leading a normal life. He is working and travelling and feels ok.
Jennie
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Welcome Ayla. My thoughts are with you and your father. Where are you from as I notice you write down dates the European way?
Jennie
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hello Robin
My husband Barry is now 18 months from diagnosis and is leading a normal life, Welcome
Jennie
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I think that you are both doing very well. Have a lovely holiday.
Jennie
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The photos were lovely to see. They brought back memories as we were there many years ago. It was so hot that it was difficult to see everything in the heat. One day we will return but in the spring or autumn
Jennie
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Dear Janet
Sorry that you are going through a difficult patch.
Bary had a pleurodesis procedure and has had no problems since. If the patient can take it it seems to have a good success rate.
Jennie
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I have been getting angry too. A very prominent UK media producer called Harry Thompson died this week of LC. The media reported his death and commented how particularly cruel this was at the age of 45 as he had never smoked. I emailed the BBC and Newspapers pointing our that this was LC awareness month and that smoking and lc was not a straight forward issue Have had no replies. The one UK charity, The Roy Castle Foundation, seems to concentrate on smoking.
Jennie
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Hello Debra
Sorry to read about your diagnosis. My husband, Barry, was diagnosed with LC April 04. He too had surgery and they found it was more extensive than previously thought. He has been on Iressa (similar to Tarceva) for almost a year and currently is working and leading a normal life (apart from the worry). He too is a never smoker.
Best wi;shes
Jennie
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Of course there are problems with socialized medicine, I have to agree with that. Yes the first oncologist we saw we had a huge problem with but since we have received good treatment and no cost.
I cannot say that in future there will not be problems but whatever system you live in there are problems as reading posts on this board testifies.
You need to be well up on what is available and persistant whereever you live.
Jennie
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Dear Ellen
You are right to be angry. Here in the Uk there have been issues with very expensive cancer drugs.
What has worked in some cases is that patients have threatened to take health authorities to court under the European Human Rights Act which gives individual"the right to life". The authorities have then caved in rather than fight a battle in the European Courts. Drug companies also give drugs on a compasionate basis sometimes.
Jennie
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Brilliant news! We know how you feel as each yearly event goes by. Thank heaven for these new drugs/
Jennie
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If you fancy a trip to London we would welcome you.
Jennie
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Friday nights here was Dr Kildare night. Oh!!!!!!!!!!!!!
Jennie
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Pat and Brian
Thinking of you.
Jennie
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Excellent! We are about to go and eat out so we will toast your good news
Jennie
Another Dad with NSCLC
in INTRODUCE YOURSELF!
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I know that everyone is different but for what it is worth when Barry had chemo is was not nearly as bad as we feared it would be. In fact he felt better afer the first treatment.
Jennie