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catlady91

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Everything posted by catlady91

  1. Was this the same clairvoyant who predicted 9/11?
  2. Sorry to hear about your first wife Gary G; that must have been tough however I'm glad that your story is more hopeful. Cancer is extremely common. They say that 1 in 2 people will get cancer which is pretty scary. Unfortunately I don't have much support from friends as they've never had a loved one suffer with cancer which can be lonely and make me feel alone. A lot of people also don't feel comfortable talking about cancer especially in the UK. I think a lot of it stems from lack of education or interest. Before mum was diagnosed, I knew very little about cancer. I myself wouldn't have
  3. I'm not sure what medical power of attorney is. The unfortunate thing about living in the UK is having different systems from the US. I haven't really heard of it in the UK but I can try to find out. What does it entail in the US?
  4. My mum doesn't want me at the appointment in person or via Facetime as she says I'm too neurotic and ask too many questions 😂. A friend of my mum's who is a scientist is going with her, which I think is better as she's more objective and has a better understanding. Even so I can't go with my mum as they say that my mum can only bring one person and someone who has had the vaccine against COVID. I haven't had it yet and my mum's friend has. So I actually think her friend going with her is a better option. It's good to have someone who is rational, less emotional and with a strong scientific bac
  5. My mum has a meeting with the team next Monday. As far as she knows there's talks of giving her three rounds of chemo every three weeks (2.5 months of treatment in total). We thought that she would have treatment for much longer like six months or more. Mum's going to ask more questions on Monday. I wish I could come with her but I can't go because of COVID. The immunotherapy didn't seem to work for very long. I thought that the effects last for several months. I don't know where it's pseudo regression. Obviously I hope that it is but I don't want to raise any hooes especially as at the
  6. I can't find any info about this anywhere. If one immunotherapy drug doesn't work, can you try another or if one type of immunotherapy doesn't work, does it mean that they all won't?
  7. Hi Tom, She had a new doctor who seems miles better than the previous one. He didn't seem too concerned about it. My mum was told that she would have some scarring after radiation anyway. She received the highest dose as they treated her very aggressively. I'll get my mum to ask her doctor more next time. It's just one thing after another 😞. When can I ever relax and live in peace instead of constant fear?
  8. I'm really sorry to hear about your predicament; cancer is no easy journey. A lot of people on here have had multiple recurrences and are stage 4 and have been living with their cancer being stable for many years. You'll meet many of them on here. There are many treatment options out there for lung cancer. Perhaps you could try another immunotherapy drug to shrink the tumors. Also you could get a second opinion from a different doctor if you're not satisfied with your current one. My mum's consultant was awful so she switched to another one who is miles better and has more experience. You
  9. My mum developed radiation pneumonitis quite badly a few weeks ago and was treated with steroids which she recently stopped taking. She still feels breathless sometimes but is much better. I'm very worried as at her last visit with the consultant he said that she had pulmonary fibrosis (scarring of the lungs). He didn't elaborate about it or say much about it. He said that it's normal that my mum has these problems as she was given such a high dose of radiation. I've read about pulmonary fibrosis and it's a very serious condition. Idiopathic pulmonary fibrosis has a life expectancy
  10. Hey Zara, welcome to the forum. Stay positive! My mum was diagnosed with T4 N2 M0 in Feb and now she is NED! Don't let a negative doctor put you off. There's been a lot of advances in treating lung cancer. My mum's consultants said that 10-15 years ago, it would have been a very bad prognosis but now there's been a lot of advances in treating lung cancer. There are even people with stage 4 who have been living with cancer for years and are stable. You'll probably come across of a few of them on here. Also Tom is a good example of beating stage 3 lung cancer even before advances in treatment. D
  11. Hi Saturn Bound, sorry to hear about your mum. My mum was diagnosed with stage 3B NSCLC, subtype squamous cell in February of this year. She had aggressive chemo-radiation and she's currently undergoing immunotherapy as maintainance therapy. At the moment she's NED and touch wood it will stay that way. It must be a very anxious time for you. It certainly was for me. I'm sorry to hear about the metastasis but there are many people who have been living for stage 4 with metastatic lung cancer. It's no longer the death sentence that it once was. Even the first lung consultant that diagnosed m
  12. I'm so sorry to hear this very tough and sad news Zeynep. Unfortunately SCLC is very aggressive. My heart goes out to you. I know what it's like to really love your parents. I too would struggle to accept such a prognosis. There are people who defy the odds though. There are people who are told that they have only months to live, but end up living for years. My cat was diagnosed with two brain tumours and was given only 2/3 months to live. He ended up living for a little over 3 years! He was an old cat as well; lived to 19 and a half. I consider that to be a miracle. I don't want to give
  13. My mum is doing incredibly well. Apart from immunotherapy side effects which are normal, her doctor said that her response to treatment has been excellent. She went to the hospital on Friday about the steroids for her inflammation from immunotherapy- she saw another doctor who on the team who confirmed that her scan was excellent and she couldn't even see the tiny remaining bit of tumour. She said that such a good response so soon isn't common and that my mum's exemplary. This is fantastic but fears creep in the back of my mind. What if my mum is NED and then the cancer comes back as smal
  14. Thank you for taking the time to reply Tom. Your story is incredible and inspires me and others. Despite so many recurrences you're still alive and well and NED for over 15 years! Even 10 years ago stage 3 lung cancer was a death sentence. It's incredible how many treatments there are now and that stage 3 and even stage 4 lung cancer is no longer a death sentence for many. I'm praying to God that the immunotherapy will prevent the cancer from returning and that her body is responding well to immunotherapy.
  15. Thanks for the reply Tom. Gosh that sounds like it was a huge ordeal for you, having a lung removed and the cancer coming back to the other lung. Usually stage IIIB is inoperable. Did the doctor's want to try surgery to remove the tumours when they came back to the other lung? Sorry for asking so many questions. I've heard that surgery is seen as a "cure" or in American terms the treatment to long lasting NED, but it seems that despite surgery, the cancer still comes back. I felt so down about my mum not being able to have surgery. Despite the tumour having shrunk hugely (from 37mm to 3mm
  16. Is Cyberknife radiotherapy or surgery? Did you have surgery Tom and at what stage?
  17. Fantastic Ed! Stories like yours give us hope! It's incredible how many different treatments are available now.
  18. My mum was diagnosed with stage 3B squamous cell, NSCLC in Feb. The medical team has been very positive from the beginning despite the late stage. She had intense radiation and 2 rounds of aggressive chemo in March and April. Since June she's been having immunotherapy (durvulamab). Her latest scan seems to be NED. She had a PET scan last week. The oncologist looked at it and said that no areas lit up (meaning no cancer) and that this is a very good scan. It still needs to be confirmed with the specialist radiologist who needs to analyse the scan. This is really hopeful. Like everyone here
  19. Hi Katy, welcome! I'm sorry to hear what you're going through; my mum was diagnosed with stage IIIB squamous cell non-small cell lung cancer. It was a huge shock, but my mum's medical team is fantastic and currently it appears that she's NED, but it needs to be confirmed the the radiologist specialist. Her oncologist said that on the PET scan no areas lit up. So fingers crossed that NED will be confirmed and the cancer won't come back. There's been major advances in treating lung cancer despite the bleak things you read online (which I would avoid). Even stage 4 which previously was a dea
  20. Thanks Gary for the reassurance. I thought that calcium level was an indicator that cancer is present.
  21. My mum showed me her test results from her blood test which her doctor said was normal. I saw my mum's calcium was slightly raised. The normal limit is 2.6 mmol or 10.5 mg. My mum's level was 2.8 mmol or 11.2 mg. It's on the mild side of raised with over 3.5 mmol or 14 mg being very serious. I'm worried because raised calcium can indicate cancer. I'm worried what if it means the cancer has progressed or hasn't gone. My mum's doctor didn't seem concerned about the results and said that they're normal. My mum said her calcium levels have always been higher than usual even way before she ha
  22. Also the doctors haven't really said anything about if the lung cancer was to return.
  23. Thanks everyone for your replies. I know that I should stop allowing these worries to consume me but I don't know how. I don't have any friends who understand and I don't want to talk to my mum because she's so positive. My mum sees her lung cancer as a chronic condition like you mentioned and she's not letting it get in the way of her life. She has a great quality of life and is very active. The doctors tell her how well she looks. They're extremely positive and her oncology team are aiming to cure here, which is one of the positives that keeps me going. Her team has been excellent! I don't k
  24. I'm very neurotic naturally and a big worrier. I worry about the smallest things. Now I'm worried that even if my mum is cured of her current cancer, that she'll develop small cell lung cancer, which is deadly. I've read about people who were previously treated for non-small cell only to have the cancer come back or develop to small cell. What are the chances of that. My mum was diagnosed with 3B squamous cell non-small cell lung cancer. My mum was a heavy smoker, but gave up almost 15 years ago. I know that small cell almost always develops in smokers or former smokers.
  25. Thank you so much LexieCat for your reassuring answer. My mum is really in a lot of pain with her tooth. Hopefully it'll get better. She has to wait until August 7 for a specialist to do the root canal. I'm lucky that I don't have many problems with my teeth but on the occasions that I do, it's not pleasant. Even sensitive teeth can drive you mad. Have you received your results back yet? X
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