Sabacat

Hey Jack, did you ever get an explanation of the changed language on your CT report? Susan

Why not? I don’t think it’s stupid or selfish. In fact, I’ll bet lots of other folks who will be at Timberline Lodge for Christmas want to see snow, too.

Oh, no!!! So sorry to hear that! Hoping you'll still be able to have your treatment on Friday and that your case will not get any worse! Susan

That’s true, but her doc is affiliated with Christ Hospital in Cincinnati. What really shocked we was her saying that they don’t give ANY injections of any kind in the office.

Wow, it’s becoming more real! ☀️🤞☀️🤞☀️ I had sent a message to my Mom’s geriatrician about getting her lined up for the vaccine (she’s 91). Got a reply from a nurse that they didn’t keep a list since they don’t give any injections in the office. What?!?!???? 😳

Sounds positive to me! Be sure to update us when you find out what the options are. Susan

It IS expensive if not covered on your drug plan. I get it from Canada.

I hope so!!! That sounds truly awful. Oddly, I have been on 60mg Dexilant, a strong PPI, for about 8 years due to Barrett’s esophagus and have never experienced that side effect. Maybe a different drug would give you relief without the side effects. Please let us know if it clears up. Will be thinking of you!

Thanks so much, Jack!

Thanks, Tom! Just read Judy's blog post - very interesting! Thanks for pointing it out or I would never have found it. My medical onc definitely plans to continue chemo and immunotherapy after the radiation. Anxious to hear what the radiation onc has to say! Susan

PS - he also told her it would likely be 10 treatment sessions.

Not to hijack this thread, but since Tom is so knowledgeable about radiation maybe he can prepare me for my visit with the radiation oncologist on Tuesday. I'm being sent to him because my primary tumor has not responded to the triplet (well, it appeared to after 2 infusions, but then seemed to enlarge back to and/or slightly above original size). I did have some other lymph nodes that did improve. Anyway, when the NP (due to onc being away for the holiday) shared this with us and we asked about side effects, she said there really shouldn't be any except possibly fatigue BECAUSE THEY WILL USE LOWER DOSES OF RADIATION AS THIS IS PALLIATIVE. She has a very difficult accent and we didn't pursue that with her further, but I was somewhat shocked. I thought they were going to try to 'kill' the primary tumor with this radiation treatment. That is certainly MY goal. Also, in her conversation with the radiation oncologist, who was looking at my scan at the time, he said that he saw a couple of lymph nodes that he could probably include. If they "zap" the lymph nodes, does that destroy them just as if they were surgically removed? If so, does that increase the chances of lymphedema, which I already am having. I am seriously concerned about that, as they say there is no cure for it and I can see that having a significant negative impact on my quality of life down the road and might want to opt to try to let the chemo and immunotherapy afterwared take care of those lymph nodes. Of course, I will take up all these questions with the radiation onc, but any thoughts you might have with all your experience would be appreciated. thanks! Susan

Have been wondering about you recently! Thanks for checking in. Every 10 weeks sounds like they're not too worried about the "suspicious" tissue. Sounds like that train is traveling to a good place. Susan

YES! Happy Thanksgiving to Lou and everyone here!! Don't know how I'd get through this without you!

Great news, Babs!!!